“Kiss myAsthma”: Using a participatory design approach to develop a self-management app with young people with asthma

Davis, Susan Ruth; Peters, Dorian; Calvo, RA; Sawyer, Susan Μ; Foster, Juliet; Smith, Lorraine

doi:10.1080/02770903.2017.1388391

Cited by 75 publications

(120 citation statements)

References 30 publications

(51 reference statements)

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“…We did not find privacy to be an important consideration for children and young people, which contrasts a previous survey about hypothetical trial decision making 32. Our findings on participants’ priorities regarding website design, such as font and colour are in line with another study involving young people in the development of a self-management app for asthma30 and studies showing that adults40 and young people value clarity in a website providing trial information 41…”

Section: Discussionsupporting

confidence: 59%

Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development

et al. 2019

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ObjectivesTo understand stakeholders’ views regarding the content and design of paediatric clinical trial multimedia websites. To describe how this knowledge informed the development of the multimedia websites.DesignQualitative study comprising two rounds of interviews or focus groups, with thematic analysis of interview transcripts.ParticipantsSixty-two people (21 children and young people with long-term health conditions, 24 parents and 17 professionals).SettingOne UK children’s hospital and one UK Young Persons’ Advisory Group.ResultsWhen asked what was important in deciding whether to join a trial, children, young people and parents prioritised information about what participation would involve, what the trial was testing, potential benefits and risks of participation and knowing they could leave the trial if they later changed their minds. Young people and parents trusted trial teams to follow regulatory and quality requirements and therefore did not think such information was a priority for the websites, although logos of trusted organisations could lend credibility. Professionals largely concurred with these views. Children and young people advised on the importance of designing the multimedia website to ensure its appearance, tone and wording suited the intended audience and on using animated characters to facilitate children’s engagement.ConclusionsOur study provides insights into the information that families value when deciding about healthcare trial participation. It provides guidance on the design of information resources to appeal to children and young people, while also being acceptable to parents and professionals who are often gatekeepers of children’s access to information. Our findings will be of use to others developing similar multimedia websites. We report specific information needs and new visual preferences that are not usually addressed in printed trial information. Our work illustrates what qualitative research and participatory design practices can contribute to the development of information resources more generally.Trial registration numberISRCTN73136092; Pre-results.

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Section: Discussionsupporting

confidence: 59%

Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development

et al. 2019

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“…Adolescents additionally provided feedback on app user experience, including ease of use and new features or modifications that would encourage continued engagement. Although almost 200 asthma self-management apps exist, few comprehensive asthma self-management apps that accommodate the interests and needs of adolescents are currently available [11,22]. Our study is an important step in developing an app that optimizes the user experience by involving users in app design.…”

Section: Discussionmentioning

confidence: 99%

Adolescent Preferences and Design Recommendations for an Asthma Self-Management App: Mixed-Methods Study

Roberts¹,

Sage²,

Geryk³

et al. 2018

JMIR Formativ Res

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BackgroundApproximately 10% of adolescents in the United States have asthma. Adolescents widely use apps on mobile phones and tablet technology for social networking and gaming purposes. Given the increase in recreational app use among adolescents, leveraging apps to support adolescent asthma disease management seems warranted. However, little empirical research has influenced asthma app development; adolescent users are seldom involved in the app design process.ObjectiveThe aim of this mixed-methods study was to assess adolescent preferences and design recommendations for an asthma self-management app.MethodsA total of 20 adolescents with persistent asthma (aged 12-16 years) provided feedback on two asthma self-management apps during in-person semistructured interviews following their regularly scheduled asthma clinic visit and via telephone 1 week later. Interviews were audiorecorded, transcribed verbatim, analyzed using SPSS v24, and coded thematically using MAXQDA 11.ResultsRegarding esthetics, app layout and perceived visual simplicity were important to facilitate initial app use. Adolescents were more likely to continually engage with apps that were deemed useful and met their informational needs. Adolescents also desired app features that fit within their existing paradigm or schema and included familiar components (eg, medication alerts that appear and sound like FaceTime notifications and games modeled after Quiz Up and Minecraft), as well as the ability to customize app components. They also suggested that apps include other features, such as an air quality tracker and voice command.ConclusionsAdolescents desire specific app characteristics including customization and tailoring to meet their asthma informational needs. Involving adolescents in early stages of app development is likely to result in an asthma app that meets their self-management needs and design preferences and ultimately the adoption and maintenance of positive asthma self-management behaviors.

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“…We previously reported on a process for co-designing and developing a smartphone app for asthma where 20 young people aged between 15 and 24 years were key collaborators in the design process (13). The goal-setting asthma app, which endusers named "Kiss myAsthma", was developed and tested in three phases.…”

Section: Introductionmentioning

confidence: 99%

A consumer designed smartphone app for young people with asthma: pilot of engagement and acceptability

et al. 2019

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Objective: This pilot aimed to test the engagement, acceptability, and usefulness of a goal-setting smartphone app, Kiss myAsthma, in young people with asthma. Methods: Young people aged 15-24 years old were invited to trial a smartphone app for asthma management. A mixed-methods approach combined quantitative analysis of self-report questionnaires and app usage log data with qualitative thematic analysis of open-ended questions at baseline and six weeks after downloading the app. App log data (pages visited, frequency of use and content of participants interaction, e.g. goals set, symptoms recorded) were analysed. Results: Nine of 12 participants completed both baseline and six-week questionnaires. Participants reported high satisfaction with app content and usability (median score 5 out of 6 [range 4-6]) and rated the app highly on 'feeling confident in my ability to manage my asthma'. At six weeks there was a clinically signification change in asthma quality of life (e.g. Emotional Function domain score baseline: 4.

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“Kiss myAsthma”: Using a participatory design approach to develop a self-management app with young people with asthma

Abstract: A clinically sound asthma app has been developed which is considered highly acceptable to the young co-designers. A six-week test of the engagement, acceptability, and usefulness of the app in young people not involved in the participatory design will follow.

Cited by 75 publications

References 30 publications

Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development

Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development

Adolescent Preferences and Design Recommendations for an Asthma Self-Management App: Mixed-Methods Study

A consumer designed smartphone app for young people with asthma: pilot of engagement and acceptability

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