Knowledge, Attitudes and Practices of Parents in the Vaso-Occlusive Crises of the Sick Children in Brazzaville

Abstract

Objectives: to evaluate the parents' knowledge of vaso-occlusive crises, to identify their attitudes and practices. Method: a retrospective, transversal, descriptive and analytical study carried out between January and June 2016 at the HUC of Brazzaville. The parents of sickle cell children aged 2 to 17 years, followed for at least one year, were interviewed. Results: a total of 319 parents were interviewed, including 221 women (69.3%) and 98 men (30.7%) with a mean age of 40.8 ± 9 years. They were unschooled 65 cases (20.4%), had primary education 41 cases (12.9%), secondary 149 cases (46.7%) and higher level 64 cases (20.1%). They had one child sickle cell 258 cases (80.9%). They knew sickle cell disease 283 cases (88.7%), its genetic transmission 249 cases (78.1%). The source of information was a health worker 211 cases (66.1%). They had a good knowledge of the vaso-occlusive crisis 101 cases (31.7%). In a vaso-occlusive crisis, they used a health facility 207 cases (64.8%), self-medicated 66 cases (20.7%). Their home practices were good 99 cases (31%), fairly good 135 cases (42.3%) and bad 85 cases (26.5%). Parents aged 25 to 34 (OR = 1.8 95% 1 -3), secondary (OR = 1.7 95% 1 -2.7) and with good practices (OR = 4.5 95% 2.7 -7.5) are those who have a good knowledge of vaso-occlusive crises. Conclusion: The importance and severity of vaso-occlusive crises in the sickle-cell child's life experience, the crucial role played by parents in their care requires that the information, education and communication of these children be strengthened To improve their quality of life.

Attitude and Behavior of Parents of Children With Sickle Cell Disease Toward the Disease: An Observational Study in Saudi Arabia

“…Most of the parents had some level of education, with more than 28.8% having a bachelor's and above education. In another study, 20% of the parents were uneducated [20].…”

“…Most of the parents had some level of education, with more than 28.8% having a bachelor's and above education. In another study, 20% of the parents were uneducated [ 20 ]. Education level has been reported to have an impact on the attitude of the parents towards their child’s disease [ 21 ].…”

“…This is in contrast to the United States study, where formal professional counseling was rare outside the family [ 24 ]. In the Congo study, 66% of parents received adequate information from their health workers [ 20 ]. Seeking an appropriate source of information is a sign of increased public awareness, a good omen for improved overall community health.…”

“…The responses reflect a proactive and open stance towards the management and social perception of SCD. Previous studies reported that 65% of the parents sought medical advice during a crisis, while 20% exercised self-medication [ 20 ]. Local beliefs, herbal medications, and traditional remedies were seldom used in the current study.…”

Effect of Sickle Cell Crises Prevention Guide for Children on Parents Knowledge and Reported Practices

“…Also, this was in agreement with Yadav, (2017) who reported that after providing education post test scores of knowledge improved significantly (100%). Similarly, in study conducted by Okoko et al, (2017) who indicated that knowledge of the sickle cell disease in Brazzaville is poor for 66.6% of parents.This was disagreement with Nakazwe and Siziya, (2017) who reported that respondents had average knowledge about sickle cell and factors that precipitate crises(53.9 %).…”