Knowledge of Down Syndrome among Down Syndrome Childrens Mothers In Riyadh Care Centers

Alosaimi, Majed; Hakeem, Anan; Alfentokh, Osamah; Alsomali, Ahmed

doi:10.24911/ijmdc.51-1598359450

Cited by 3 publications

(6 citation statements)

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“…This could be attributed to the educational intervention program learn mothers new skills, care of associated health problems, use community services and social support which affect mothers , attitude and adaptation positively. The result was in line with Alosaimi (2020) [38] who found that, The majority of mothers had good knowledge and favorable attitude toward caring for their children with DS.…”

Section: Discussionsupporting

confidence: 85%

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Effectiveness of Promoting Mothers’ Caring Practices Regarding Their Down Syndrome Children on the Family Coping

Hegazy¹,

Baraka²

2021

AJNR

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Down Syndrome is a lifelong chromosomal disorder caused by an extra copy of chromosome number 21 inside each of the body's cells. This genetic disorder, causes mental retardation and developmental delays. Aim of this study was to determine the effect of promoting mothers' caring practices regarding their children with Down Syndrome on the family coping. Subjects and Method: A quasi-experimental research design used for sixty mothers and their children with Down Syndrome at Pediatric Outpatient Genetic Clinic of Tanta University Hospital. Three tools were used for data collection: Structured Interview Schedule to assess socio-demographic and mothers , knowledge about Down Syndrome, Mothers' Care Reporting Sheet and Family Crisis Oriented Personal Scales. Results: The total scores of knowledge for more than three quarters of mothers were low before educational program while, more than half of them had moderate level of knowledge and less than half of them had high level immediately after program. The total scores of most mothers , reported care were unsatisfactory before educational program while, the majority of them had satisfactory care immediately and one month after program. Family adaptation for nearly two thirds of caregivers was fair before program while, all of them had good adaptation immediately after program. Conclusion: There was a significant improvement of mothers , knowledge, reported care and family adaptation towards crises. Recommendations: Continuous health education program should be applied to mothers of children with Down Syndrome in health care facilities to improve their knowledge and practice that affect family adaptation.

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Section: Discussionsupporting

confidence: 85%

“…Similarly, Barnoy et al, (2017) [37] who found that, mothers had low level of knowledge about DS. On the other hand, The study was incongruent with Alosaimi (2020) [38] who found that, mothers of DS children had good general knowledge about DS in special care centers.…”

Section: Discussioncontrasting

confidence: 59%

Effectiveness of Promoting Mothers’ Caring Practices Regarding Their Down Syndrome Children on the Family Coping

Hegazy¹,

Baraka²

2021

AJNR

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“…They also found multiparity to be a major contributing factor towards the incidence of DS in Saudi Arabia. To the contrary, Europe has the lowest rates of occurrence, primarily because prenatal screening and acceptance of abortion in cases pertaining to DS 8 . It is widely accepted amongst all the researchers that maternal age plays the foremost role in the probability of conceiving fetus with DS characteristics.…”

Section: Introductionmentioning

confidence: 99%

“…Alosaimi et al found that 4 out of 5 mothers in Saudi Arabia does not know that children with DS requires special care, and 3 out of 5 mothers did not know the causality of DS. Alosaimi et also discussed that in Saudi Arabia majority of parents were informed with the diagnosis of their child with DS after the delivery by pediatrician, obstetric or gynecologist 8 . The same complain is noted in the study by Skoto and Hall S that parents were informed about the diagnosis of child either after birth or complains of developmental delay and one in two mother got depressed after finding out that their child has DS respectively 11 .…”

Section: Introductionmentioning

confidence: 99%

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Knowledge and Awareness Regarding Trisomy 21 among Parents of School Going Down Syndromes in Islamabad and Rawalpindi: a Descriptive Cross-Sectional Study

Fajar¹,

Yasir²,

Sukaina³

et al. 2022

PJMHS

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Background: Down syndrome or trisomy 21, is mostly associated with characteristic facial features, delayed physical growth and mild to moderate intellectual disability with co-morbidities. Not many people are well aware of facts related to down syndromes. Aim: To identify the level of awareness and knowledge among parents of school going down syndrome. Methodology: A descriptive cross-sectional survey conducted at special children’s schools in Islamabad and Rawalpindi, from February 2021 to March 2021. Sample size was 44. We adopted convenience non-probability sampling technique. Parents that fulfill the inclusion criteria i.e. school going down syndromes, 5 to 32 years of age and residents of Islamabad and Rawalpindi, in an interactive counselling session, keeping the questionnaire anonymous. After data collection it was entered in SPSS v25 for statistical analysis. Results: Analysis of the questionnaire regarding the Knowledge of physical features of a child with Down syndrome showed that most 97% of the people were aware about facial profile and nose. 65.9% people responded positively regarding their knowledge about small head, ears and nose. 88.6% had knowledge about wide, short hands and short fingers. 65.9 knew about single deep crease across palm. 88.6 told that Down’s children had long tongue. 45.5% knew they have squint. 88.6% have knowledge about loss of muscle tone. Regarding memory 45.5% knew they have poor memory while 93.2% knew they are slow learners. Conclusion: Our selected candidates are mostly well aware of this condition but there is still the need for spreading further awareness to overcome the problems faced by the child and for their better management. Keywords: Awareness, Down Syndrome, Communication

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Family History of Thyroid Disease and Risk of Congenital Hypothyroidism in Neonates with Down Syndrome in Iraq

Alhasany¹,

Albu-Rghaif³

et al. 2021

SSRN Journal

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Knowledge of Down Syndrome among Down Syndrome Childrens Mothers In Riyadh Care Centers

Cited by 3 publications

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Effectiveness of Promoting Mothers’ Caring Practices Regarding Their Down Syndrome Children on the Family Coping

Effectiveness of Promoting Mothers’ Caring Practices Regarding Their Down Syndrome Children on the Family Coping

Knowledge and Awareness Regarding Trisomy 21 among Parents of School Going Down Syndromes in Islamabad and Rawalpindi: a Descriptive Cross-Sectional Study

Family History of Thyroid Disease and Risk of Congenital Hypothyroidism in Neonates with Down Syndrome in Iraq

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Knowledge of Down Syndrome among Down Syndrome Childrens Mothers In Riyadh Care Centers

Cited by 3 publications

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Effectiveness of Promoting Mothers’ Caring Practices Regarding Their Down Syndrome Children on the Family Coping

Effectiveness of Promoting Mothers’ Caring Practices Regarding Their Down Syndrome Children on the Family Coping

Knowledge and Awareness Regarding Trisomy 21 among Parents of School Going Down Syndromes in Islamabad and Rawalpindi: a Descriptive Cross-Sectional Study

Family History of Thyroid Disease and Risk of Congenital Hypothyroidism in Neonates with Down Syndrome in Iraq

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Knowledge of Down Syndrome among Down Syndrome Childrens Mothers In Riyadh Care Centers