Knowledge of the caregivers of thalassemic children regarding thalassemia: A cross-sectional study in a tertiary care health facility of eastern India

Knowledge of the Relatives of Thalassemia Patients with Special Regards to Splenectomy as a Treatment Modality: A Cross-Sectional Survey

“…In the present survey,we had male predominance with 61.8 % male and 38.2 % femaleThalassemia patients, which had similarities in male predominance with findings of Goyal et al [13] , Bandyopadhyay et al [16] and Saxena et al [8] . In our study, 83% of relatives were males; this finding wasmuch more as compared to Biswas et al [9] (24.1%). Only 67.2 % of the relatives knew that Thalassemia is a congenital disease, which had similarities with findings of Inamdar et al [14] (68.5%) and Aggarwal et al [17] (60.2%).The finding was better compared to Saxena et al [8] (47.5%), Ishaq et al [11] (44.6%) and Biswas et al [9] (47.6%) but less compared to Ali et al [12] (82.0%).…”

“…Previous studies has been done on relatives of Thalassemia patient regarding their knowledge and awareness of Thalassemia by Saxena et al [8] , Biswas et al [9] , Maheen et al [10] , Ishaq et al [11] , Ali et al [12] and Goyal et al [13] and about stress level among caregivers of Thalassemia patient by Inamdar et al [14] . Although, splenectomy has a vital role as a treatment modality for patient with Thalassemia, it was observed that knowledge regarding splenectomy was not evaluated in detail in the previous studies [8,9,10,11,12,13,14] . This survey was conducted with the aim of evaluating the knowledge regarding different aspects of Thalassemia in relatives of Thalassemia patients in our population with special emphasis on the role of splenectomy in management of Thalassemia, and to find out the knowledge vacuity.…”

Sociodemographic determinants associated with parental knowledge of screening services for thalassemia major in Lahore

“…A recent study conducted in India showed that genetic etiology was known to only 47.6% of the caregivers of thalassemic children. It was also assessed that knowledge about screening services ranged between 50-52% 10. Many factors affect the knowledge of transmission of disease and option of preventive services.…”

Knowledge, attitude and practice in parents of chronically transfused thalassemic patients regarding thalassemia in thalassemia day care unit in government medical college, Amritsar, Punjab, India

“…1,2 This chronic debilitating disease affects nearly 200 million people worldwide with males and females having a similar rate. 3,4 India is home to 30-40 million carriers of Management of the patients includes regular blood transfusions to keep Hb above 9-10gm/dl, iron chelation therapy to reduce iron overload and surgical interventions like splenectomy. Allogenic hematopoietic transplantation is the definitive curative treatment available till date.…”

“…A caregiver who has good knowledge regarding the disease can not only provide a better quality of care to his/her ward but also may spread knowledge in the society in which he/she lives which helps immensely in raising community awareness related to the disease. 3 This traumatic disorder is inherited to the next generation due to the parent's ignorance, which can be prevented by carrier screening, premarital counseling, prenatal diagnosis and generating awareness amongst masses. Premarital screening is a successful approach for Thalassemia prevention but is not feasible in India because of social and cultural taboos and non-availability of screening and diagnostic services to a large portion of population residing in remote places inaccessible to health services.…”