Sociodemographic determinants associated with parental knowledge of screening services for thalassemia major in Lahore

Abstract

Objective: To assess the sociodemographic factors affecting parental knowledge regarding availability of screening services for thalassemia major.
 Methods: A cross sectional study was conducted among biological parents of thalassemic children at three registered centers of blood transfusion in Lahore. A sample of 186 parents was selected through systematic random sampling. A pretested questionnaire was used to collect data. IRB clearance was obtained and informed consent was taken before data collection. Data was analyzed at SPSS version 23 and chi square test was applied and p value was fixed at ≤ 0.05 as significant.
 Results: Parents of registered thalassemic children have adequate knowledge about Disease transmission and screening services. 91% of the participants knew that thalassemia major gets transmitted through parents. Cousin marriage was mentioned as a source of transmission by 77% of the participants. 91% of the parents knew about prenatal screening and 89% about premarital screening. Knowledge of parents was significantly associated with male gender, higher education and income.
 Conclusion: Male gender, higher education and income are associated with better knowledge of parents.
 How to cite this:Manzoor I, Zakar R. Sociodemographic determinants associated with parental knowledge of screening services for thalassemia major in Lahore. Pak J Med Sci. 2019;35(2):---------. doi: https://doi.org/10.12669/pjms.35.2.613
 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Caregivers burnout of their children with thalassemia

“…Regarding to the relation between caregivers` knowledge, burnout and their demographic characteristics of studied, the results of the present study revealed that, there were a statistically significant relation between caregivers` total knowledge scores and their age, gender, level of education, marital status, occupation, place of residence, monthly income and number of family members. These results agreed with study performed by Manzoor & zakar [25], whose conduct study in Lahore (study sample equal 186 parents) and entitled as "Sociodemographic determinants associated with parental knowledge of screening services for thalassemia major in Lahore" who stated that, there were statistically significant relation between parents total knowledge and their gender, level of education, marital status, occupation and monthly income. Also, these results disagreed with study Performed by Williams [26], whose conduct study at mysore (study sample equal 60 caregivers) and entitled as "A study was to assess the knowledge of caregivers regarding thalassemia in selected hospital at mysore with a view to develop information booklet" who found that, there were no significant relation between total knowledge scores and their age, gender, level of education, marital status, occupation and monthly income.…”

Health promotion practices and coping behaviors among caregivers of children suffering from thalassemia major

“…It was found that about 91% parents had knowledge about screening services to be done before and throughout the pregnancy and 89% knew about genetic screening to be done before marriage. 3 Study done by Biswas et al also found that 52.4% of study subjects had heard about premarital counselling and 50.9% about antenatal screening. 4 The results of present study was similar to a study conducted Rao et al in 2004 for evaluation of psychopathology of parents having children with chronic illness and coping mechanisms used by them.…”

Maternal knowledge on curative therapies and its impact on medical care and psychological health among children with thalassaemia in Sri Lanka

“…Similar findings were reported by studies from the same region. For example, Manzoor I, et al reported poor parental knowledge of screening services for thalassaemia major among mothers who were housewives, had a lower education level and had lower family income 23 . One important finding of our study is that having an accurate knowledge on HSCT was associated with a lower prevalence of hepatomegaly and splenomegaly.…”