Kualitas Hidup Anak dengan Kanker menggunakan Penilaian Pediatric Quality of Life Inventory di Rumah Sakit Umum Daerah Abdul Wahab Sjahranie Samarinda

Abstract

Latar belakang. Terapi kanker pada anak dapat mempengaruhi kualitas hidup pasien serta keluarga. Pediatric Quality of Life (PedsQL) Inventory merupakan kuesioner yang digunakan untuk menilai kualitas hidup anak. Tujuan. Untuk membandingkan kualitas hidup anak dengan kanker berdasarkan penilaian orang tua dan anak, serta menilai kualitas hidup anak pada kanker darah dan solid tumor. Metode. Penelitan cross-sectional dilakukan pada usia 2-18 tahun di Bangsal rawat inap anak Rumah Sakit RSUD Abdul Wahab Sjahranie Samarinda dari bulan Juni hingga Agustus 2021. Subjek penelitian mengisi kuesioner PedsQL 4.0 dan PedsQL 3.0 modul kanker. Uji statistik independent T-test digunakan untuk membandingkan kualitas hidup anak dengan kanker. Hasil. Total subjek penelitian adalah 43. Hasil PedsQL 4.0 pada anak dengan kanker dan orang tua serta PedsQL 3.0 antara anak dengan kanker darah dan solid tumor yaitu : fungsi fisik 65,39 vs 70,28, fungsi emosi 58,95 vs 62,06, fungsi sosial 69,77 vs 72,89, dan fungsi sekolah 63,30 vs 65,76. Kualitas hidup yang lebih rendah pada penilaian oleh orang tua dibandingkan anak. Kesimpulan. Perbedaan penilaian kualitas hidup antara orang tua dan anak pada keempat parameter yang dinilai menggunakan PedsQL serta penilaian kualitas hidup anak paling rendah pada domain nyeri dikedua kelompok subjek.

Health-Related Quality of Life Assessment in Children with Cancer Using Pediatric Quality of Life InventoryTM in Ulin Hospital Banjarmasin

“…All study subjects met the inclusion criteria and aged 2 to 18 years, along with their parents who were willing to take part in the study. [1,8]. Non solid tumor (leukemia) is the most common type of cancer found in this study.…”

“…Differences in protocols in each institution can also affect HQoL of pediatric patients with cancer [18,19]. These results are different from the study of Anggreini et al who obtained results that HQoL of children with blood cancer was lower than solid tumors [1]. Other studies reported that children with blood cancer, especially leukemia, initially showed a decrease in HQoL, but would increase with time of medication.…”

“…However, according to the National Cancer Institute, during the late stages of the disease and 6 months before the end of life, children with blood cancer have significantly lower HRQoL compared to patients with solid tumors. The results of Sand et al's research gave the same results as the results of parent report of the HRQoL of children was lower than child report themselves [1].…”

“…Cancer in children is more common in males than females. The most common type of cancer found in children is leukemia [1,2].…”

Long-term effects of chemotherapy in children with cancer

“…Every year, more than 175,000 children worldwide are diagnosed with cancer, and an estimated 90,000 among them succumb to it, resulting in a cancer mortality rate of 50%-60% (Ministry of Health of the Republic of Indonesia, 2020). There are several common types of cancer among children aged 0-18 years, namely leukemia (11.6%), brain tumors (7.02%), osteosarcoma (4.41%), nasopharyngeal carcinoma (3.5%), lymphoma (2.83%), retinoblastoma (2.8%), soft tissue and solid tumors (2.4%), hepatoma (1.81%), wilms tumor/kidney cancer (1.58%), and testicular cancer (1.25%) (Anggreini & Supit, 2022).…”