La participación ciudadana en la investigación desde la perspectiva de investigadores de atención primaria

Pons‐Vigués, Mariona; Pujol‐Ribera, Enriqueta; Berenguera, Anna; Violán, Concepción; Mahtani-Chugani, Vinita

doi:10.1016/j.gaceta.2018.05.011

Cited by 9 publications

(8 citation statements)

References 24 publications

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“…Indeed, researchers' views about what is science shaped the role they assigned to citizens in PR and provide a glimpse about how PR or participatory processes are carried out. This is in line with the views of primary care health workers from Spain, which consider that leaving behind the hierarchical paradigm of science is essential to conduct PR [12]. Regarding structural barriers, both IPP and TPP discourses identified lack of funding and resources as the major barriers to carry out PR.…”

Section: Plos Onesupporting

confidence: 76%

“…In Spain, although experiences in participatory processes are scarce in health research, there is a positive predisposition and an increasing interest in PR, especially in the field of primary healthcare. However, there is a lack of training and knowledge about how to conduct participatory processes, and researchers have often doubts about who should be included, how to select participants, and how to take into consideration the potential conflicts of interest between the public and the research team [12]. Since researchers' attitudes determine how research is conceptualized and developed, we believe that a comprehensive understanding of the meanings and practical implications of "public participation" for experts in PR is crucial to promote public participation in health research in our country [13].…”

Section: Introductionmentioning

confidence: 99%

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Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research

et al. 2022

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Participatory research (PR) is on the rise. In Spain, PR is scarce in the field of health, although there is an increasing interest in the matter. A comprehensive understanding of the meanings and practical implications of “public participation” is essential to promote participation in health research. The aim of the study is to explore the discursive positions on PR among individuals with experience in participatory processes in different areas and how this understanding translates into practice. We conducted a critical discourse analysis of 21 individuals with experience in PR and participatory processes (13 women, 8 men), mainly from the field of health and other areas of knowledge. Sixteen were Spanish and the rest were from the United Kingdom (3), United States (1), and Canada (1). Interviews were conducted in person or by telephone. The fieldwork was conducted between March 2019 and November 2019. The dominant discourses on public participation are situated along two axes situated on a continuum: the purpose of public participation and how power should be distributed in public participation processes. The first is instrumental public participation, which sees participatory research as a tool to improve research results and focuses on institutional interests and power-decision making is hold by researchers and institutions. The second, is transformative public participation, with a focus on social change and an equitable sharing of decision-making power between the public and researchers. All discursive positions stated that they do not carry out specific strategies to include the most socially disadvantaged individuals or groups. A shift in the scientific approach about knowledge, along with time and resources, are required to move towards a more balanced power distribution in the processes involving the public.

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Section: Plos Onesupporting

confidence: 76%

Section: Introductionmentioning

confidence: 99%

Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research

et al. 2022

Self Cite

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“…This research may open new possibilities through a better investigative approach, involving common people as active participants and improving patient empowerment [ 28 ]. Citizen collaboration strengthens the applicability to the clinical practice that distinguishes investigation in PC.…”

Section: Expected Resultsmentioning

confidence: 99%

“…Citizen collaboration strengthens the applicability to the clinical practice that distinguishes investigation in PC. Finally, citizen collaboration guarantees a better social and cultural sensitivity and improves viability, external validity, and cost-effectiveness of the research [ 28 ].…”

Section: Expected Resultsmentioning

confidence: 99%

Assessment of Pain Treatments in Disorders of Upper Limbs: A Qualitative Study Protocol Based on Patients’ Experiences

Karcz,

Artigues-Barberà,

Ortega Bravo

et al. 2023

Nursing Reports

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Chronic musculoskeletal pain (CMP) is one of the most common symptoms of musculoskeletal disorders. Carpal tunnel syndrome (CTS) and subacromial syndrome (SAS) are the most prevalent musculoskeletal disorders of the upper limbs. By collecting the opinions of patients with CTS and SAS, we aim to identify variables that could be introduced in the follow-up of CMP, and to detect barriers and facilitators of its treatments to improve their acceptance. This qualitative study is being conducted in Lleida, Spain, and explores the experiences and feelings of patients, and their acceptance of the standard of care. It follows the consolidated criteria for reporting qualitative research (COREQ) through focus groups, addressing issues with rigor and representativeness. By collecting patients’ opinions, we expect to obtain valuable information to complement the set of variables previously used by health professionals in the follow-up of CMP, and to understand treatment barriers and facilitators.

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“…La investigación comunitaria requiere de la participación ciudadana en cada una de las fases para complementar las necesidades y prioridades de las personas y la comunidad. De tal modo que, se asegura que los resultados sean más aplicables y transferibles, así como que tengan mayor impacto en la calidad de vida, la eficiencia y en la equidad de los sistemas de salud 10 . Para lograr esto los investigadores deben convertirse en parte de la comunidad, no solo trabajar con ella, esto requiere un fuerte compromiso social con las personas y con los objetivos planteados en la investigación.…”

Section: Colaboración Con Stakeholdersunclassified

El activismo académico como necesidad en la investigación comunitaria en salud

Fernández‐Sánchez¹,

Guerrero-Castañeda²,

González-Soto

2022

cietna

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El activismo académico retoma la visión de la investigación en salud como una forma de promoción de equidad y justicia social, se busca la generación de conocimiento científico desde los participantes y para los participantes en sentido de construir una relación bilateral entre la academia y las comunidades. El objetivo es discutir estrategias que permitan desarrollar el activismo académico en la investigación en salud comunitaria. Se discuten diversas estrategias utilizadas en el activismo académico: la reflexividad y posicionamiento de los investigadores; el compromiso de las partes interesadas; la inmersión del investigador en el campo; y la generación y transferencia de conocimientos. Se buscó centrar la discusión en el poder de transformación del activismo académico y en los motivos que convierten a las estrategias expuestas como elementos claves a considerar por el investigador comunitario. Los enfoques innovadores y contemporáneos en la investigación comunitaria en salud resaltan la construcción de conocimiento desde una mirada crítica y reflexiva. Los enfermeros comunitarios pueden retomar estas estrategias para buscar un verdadero cambio social en salud de las comunidades privilegiando la transformación comunitaria.

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La participación ciudadana en la investigación desde la perspectiva de investigadores de atención primaria

Cited by 9 publications

References 24 publications

Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research

Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research

Assessment of Pain Treatments in Disorders of Upper Limbs: A Qualitative Study Protocol Based on Patients’ Experiences

El activismo académico como necesidad en la investigación comunitaria en salud

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