Le processus d'adaptation des adultes présentant des séquelles de traumatisme cranio-cérébral

Dumont, Claire; Fougeyrollas, Patrick; Gervais, Marie; Bertrand, Richard

doi:10.2182/cjot.06.01x

Cited by 8 publications

(43 citation statements)

References 48 publications

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“…The reasons for exclusion are specified in Figure 1. One eligible study was in French and was translated for inclusion 25 . One study in German could not be located and was excluded at the title and abstract.…”

Section: Resultsmentioning

confidence: 99%

“…The sudden impact of the ABI on cognition and function contributed to participants' relinquishing control to others 49–51 . It was difficult for participants to see that they had any control over their recovery or progress 25,28,53,57 . They became part of a ‘system’ where decisions were made on their behalf, 26 with an assumption that others ‘knew what was best’, 67 leaving them feeling overwhelmed, 29 moody 27 and depersonalized.…”

Section: Resultsmentioning

confidence: 99%

“…Others ‘swallowed my pride’ 66 and continued with therapy despite their personal goals being unrecognized 66,70 or feeling they were ‘back in 3rd grade’ 70 . This depersonalized experience diminished their self‐worth 46,58,76 leaving them feeling like a ‘second‐class citizen’ 25 . This problem was heightened for participants with communication difficulties who felt less like a person without their voice 44,58 …”

Section: Resultsmentioning

confidence: 99%

“…Identity was challenged as participants contrasted their current situation and new selves after ABI with their former lives 28,29,37,38,48,52,57,69,73 . A changed sense of self meant participants needed to get to know themselves again 25,73 . This process of coming to terms with a changed self 25,60 was described as shocking, 29,32 traumatic, 76 distressing, 50 confronting, 25 confusing 60 and emotionally charged 50,76 .…”

Section: Resultsmentioning

confidence: 99%

“…Participants experienced ‘unpredictable’ 35 and often ‘invisible’ 30,57 after‐effects following their ABI 25,26,28,29,31,32,34,35,39‐42,47,52,53,57‐59,61,63,65,69,72,73 . Those with communication issues felt particularly constrained in their choices due to difficulty expressing their needs 53,55,58,77 .…”

Section: Resultsmentioning

confidence: 99%

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Perspectives of choice and control in daily life for people following brain injury: A qualitative systematic review and meta‐synthesis

Murray

Weeks

Kessel

et al. 2022

Health Expectations

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Background and Objective Acquired brain injury (ABI) can result in considerable life changes. Having choice and control over daily life is valued by people following ABI. This meta‐synthesis will analyse and integrate international research exploring perspectives of choice and control in daily life following ABI. Methods Databases were searched from 1980 to 13 January 2022 for eligible qualitative studies. After duplicates were removed, 22,768 studies were screened by title and abstract, and 241 studies received full‐text assessment with 56 studies included after pearling. Study characteristics and findings were extracted that related to personal perspectives on choice and control by people with an ABI (including author interpretation and quotes). Data from each study were coded and then segments of coded data across the studies were compared to create multiple broad categories. Findings Findings were then reduced from categories into 3 overarching themes with 12 subthemes. These themes were: (1) feeling like a second‐class citizen; (2) reordering life and (3) choosing a path. Participants with an ABI tussled between their feelings of loss following brain injury and their thinking about how they start to regain control and become agents of their own choices. The themes describe their sense of self, their changed self and their empowered self in relation to ‘choice and control’. Conclusions Re‐engaging with choice and control after ABI is dynamic and can be challenging. Health professionals and supporters need to facilitate a gradual and negotiated return to agency for people following ABI. A sensitive and person‐centred approach is needed that considers the readiness of the person with ABI to reclaim choice and control at each stage of their recovery. Clear service or process indicators that are built on lived experience research are needed to facilitate changes in service delivery that are collaborative and inclusive. Patient or Public Contribution This review included the voices of 765 people living with ABI and was conducted by a diverse team of allied health professionals with practice knowledge and research experience with people following ABI. Twenty‐nine of the 56 included studies had participants contributing to their design or analysis.

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Section: Resultsmentioning

confidence: 99%