Leisure, Gender, and Kinship in Dementia Caregiving: Psychological Vulnerability of Caregiving Daughters With Feelings of Guilt

Romero‐Moreno, Rosa; Losada, Andrés; Márquez, M.; Laidlaw, Ken; Fernáñdez-Fernández, Virginia; Nogales-González, Celia; López, Javier

doi:10.1093/geronb/gbt027

Cited by 59 publications

(67 citation statements)

References 31 publications

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“…Consistent with previous research, our results show that being female and providing a higher number of hours of care per day are associated with higher depressive symptoms (Covinsky et al, ; Pinquart & Sörensen, ). In addition, compared with individuals caring for spouses, younger caregivers (Spillers et al, ) and those caring for parents show higher levels of guilt (Romero‐Moreno et al, ) and ambivalence. Interestingly, those providing care for more hours daily reported lower guilt scores but higher depressive symptomatology.…”

Section: Discussionmentioning

confidence: 99%

“…Second, although the sample size of the study is acceptable (bearing in mind the difficulties in accessing this population), it does not allow us to test the influence of specific variables that have been shown to play a significant role in similar studies of caregivers. For example, kinship affects caregivers' distress (e.g.,Romero-Moreno et al, 2014;Viñas- Diez et al, 2017), but this variable has not been controlled in this study.…”

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confidence: 99%

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Ambivalence and guilt feelings: Two relevant variables for understanding caregivers' depressive symptomatology

Losada

Márquez‐González

Vara‐García

et al. 2017

Clin Psychology and Psychoth

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Providing care for a relative with dementia is considered to be a chronic stressor that has been linked to negative mental health consequences for caregivers. A theoretical model was developed and tested to assess the degree to which ambivalence and guilt feelings contribute to caregivers' depressive symptomatology. Participants included 212 dementia family caregivers. In addition to ambivalence and guilt feelings, sociodemographic characteristics, behavioural and psychological symptoms of dementia, and depressive symptomatology were assessed. Hypotheses derived from the stress and coping model were tested using path analysis. The analysed model showed an excellent fit to the data. In total, 35% of the variance in depressive symptomatology was explained by the assessed variables. Although significant correlations were obtained between frequency and appraisal of behavioural and psychological symptoms of dementia and depression, the obtained model suggests that this effect was mediated through ambivalence. In addition, ambivalence had an indirect effect on depression. The association of ambivalence with depression was explained through feelings of guilt; that is, respondents who reported ambivalent feelings were more likely to experience guilt, leading in turn to greater depressive symptomatology. The findings suggest that dementia caregivers' ambivalence and guilt feelings are relevant for understanding their depressive symptomatology. These factors should be addressed in psychological interventions with caregivers.

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Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

Ambivalence and guilt feelings: Two relevant variables for understanding caregivers' depressive symptomatology

Losada

Márquez‐González

Vara‐García

et al. 2017

Clin Psychology and Psychoth

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“…As well as supporting the person with dementia, access to respite care, ranging from a few hours in-home help, attending a day-centre, or temporary residential care enables the caregiver to maintain their identity outside that of the caregiver role, and engage in other activities (World Health Organisation and Alzheimer's Disease International, 2012). As women caregivers are the most exposed to social isolation and the burden of care, they may benefit most from respite from caring, in maintaining their identity in relation to others (de la Cuesta-Benjumea, 2011;Romero-Moreno et al, 2014). As with other forms of formal services, the availability and cost of respite care differs widely in different areas and there may be cultural reasons for not welcoming respite care services in some countries.…”

Section: Support For Caregiversmentioning

confidence: 99%

The impact of dementia on women internationally: An integrative review

Erol

Brooker

Peel

2016

Health Care for Women International

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Women are disproportionately affected by dementia, both in terms of developing dementia and becoming caregivers. We conducted an integrative review of English language literature of the issues affecting women in relation to dementia from an international perspective. The majority of relevant studies were conducted in high income countries, and none were from low-income countries. The effects of caregiving on health, wellbeing and finances are greater for women; issues facing women, particularly in low and middle-income countries need to be better understood.Research should focus on building resilience to help people adjust and cope long term.Dementia is a global public health issue that disproportionately affects women, either through developing the condition themselves, or as a carer for someone with dementia. The effects on women of living with or caring for someone with dementia from an international perspective needs to be more fully understood. In our review of the published literature, we explore the impact of dementia on changing roles, identity, wellbeing and finances for women in both high-income and low-and middle income countries. An improved understanding of these factors can support research, and policy developments, that address the issues specifically relevant to women.As age is the greatest risk factor for dementia, and women have a greater life expectancy worldwide than men, a larger number of people with dementia are women (Alzheimer's Association, 2014).There are also clinical differences between genders in disease risk and severity, especially in relation to dementia and cognition (Carter et al., 2012). There is a significant association between age, gender, and dementia in many areas of the world, with women showing a higher prevalence rate for dementia than men (Bamford, 2011;Takeda et al., 2011; Alzheimer's Disease International, 2015) expectation that women will assume caregiving roles (Godfrey & Warshaw, 2009;Lantz, 2009;Gibbons et al., 2014). In many studies of dementia caregivers, all or most participants are women, reflecting the disproportionate extent to which women are relied upon as carers, although few reports focus on gender specifically (Robinson et al., 2014). Therefore the assumption that women provide informal care to people with dementia is embedded (often implicitly) in much of the existing research.The financial impact of providing dementia care on family caregivers is substantial; caregivers in the United States reported that they were reluctant to take time off work to provide care, or took on additional work to cover caregiving costs, which had increased because of the recent economic downturn (Evercare, 2009). Women may also have the responsibility of caring for young children alongside caring for a parent with dementia -referred to as the 'sandwich generation' (Solberg et 3 al., 2014). Despite this (often dual) caring responsibility, families often prefer , for a variety of cultural, obligational and practical reasons to continue to provide care at ho...

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“…Često je ta uloga njegovatelja nametnuta zbog kulturoloških razloga i tradicije. Na primjer, na Cipru se smatra prirodnom ulogom žene, a sličnog su stava u obiteljima Latinoamerikanaca u SAD-u i domicilnoj Špa-njolskoj (68)(69)(70). Zatim, uloga njegovatelja je kulturološka i tradicijska u multigeneracijskim kućanstvima (Sri Lanka, azijske zemlje).…”

Section: Alzheimer's Disease In Womenunclassified

“…Very often the role of the caregiver is enforced by culture and tradition. For example, caregiving is considered the natural role for women on Cyprus, and a similar attitude is shared among Latino-American families in the US and in their domicile, Spain (68)(69)(70). The role of the caregiver is also part of culture and tradition in multigenerational households (Sri Lanka, Asian countries).…”

Section: Alzheimer's Disease In Womenmentioning

confidence: 99%

Dementia is More Frequent in Women

et al. 2018

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Demencija je sindrom globalnog i progresivnog oštećenja stečenih kognitivnih sposobnosti pri očuvanoj svijesti prouzročen organskom bolešću središnjeg živčanog sustava u kojem su posebno oštećene sposobnosti pamćenja, učenja, apstraktnog mišljenja, orijentacije te poimanja vidno-prostornih odnosa. Prevalencija i incidencija Alzheimerove bolesti (AB), najčešćeg uzroka demencije, znatno je veća kod žena nego kod muškaraca, a ta se razlika s dobi povećava. Dvostruko veća učestalost AB kod žena u odnosu na muškarce djelomično se može objasniti time što žene imaju očekivano dulji životni vijek. Žene imaju lošiju kognitivnu izvedbu na mnogim neuropsihologijskim testovima u odnosu na muškarce u istom stadiju bolesti, odnosno višestruke kognitivne funkcije kod žena teže su i šire zahvaćene nego kod muškaraca. Mogući razlozi za ovakvu nepovoljnost naspram žena su redukcija estrogena u postmenopauzi, veće kognitivne rezerve muškaraca te utjecaj apolipoproteina E. Određeni biološki čimbenici također bi mogli objasniti različite kliničke manifestacije AB s obzirom na spol. Osim što prema prezentiranim podatcima žene češće obolijevaju od AB, žene su također te koje u bitno većoj mjeri pružaju neformalnu njegu ljudima s demencijom, te su oko dvije trećine neformalnih njegovatelja žene. Zaključno, u daljnjem istraživačkom i kliničkom radu s AB svakako bi trebalo obratiti pozornost na spoznaje o spolnim razlikama u razvoju i progresiji ove bolesti. / Dementia is a syndrome of global and progressive impairment of acquired cognitive abilities with

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Leisure, Gender, and Kinship in Dementia Caregiving: Psychological Vulnerability of Caregiving Daughters With Feelings of Guilt

Abstract: Feelings of guilt may have different consequences on caregivers' distress depending on caregivers' gender and kinship. Daughters with higher levels of guilt who do not engage in leisure activities may be especially vulnerable to suffering psychological distress.

Cited by 59 publications

References 31 publications

Ambivalence and guilt feelings: Two relevant variables for understanding caregivers' depressive symptomatology

Ambivalence and guilt feelings: Two relevant variables for understanding caregivers' depressive symptomatology

The impact of dementia on women internationally: An integrative review

Dementia is More Frequent in Women

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