Les pratiques de soins palliatifs à domicile: lieu d’exclusion sociale des personnes âgées en fin de vie?

Abstract

The understanding of palliative care practices at home (PCH) is limited by the lack of available scientific knowledge. This is explained by the fact that its practices are relatively recent and they question our relationship with death and dying individuals. This study aims to contribute to the advancement of knowledge about PCH with the elderly. More specifically, with a perspective of social exclusion, it aims to understand how practices either do or do not produce social exclusion with seniors receiving palliative care. Nineteen participants from two local community services centers were interviewed and six multidisciplinary meetings were attended for observation. This study suggests that positive representations concerning the elderly in palliative care and recognition of their autonomy can avoid social exclusion, including its symbolic and identificatory dimensions. However, standardization of practices seems to contribute to institutional exclusion and foster nonrecognition.

Qualitative Research in theCJA/RCV:An 18-Year Analysis (1995–2012)

“…2 Of those that did, thematic or content analysis was mentioned most often (30%). Two examples of these were Quirouette and Pushkar’s (1999) mixed method study of middle-aged, university-educated women’s views of aging, and Hébert et al’s (2011) exploration of how palliative care practices influenced social exclusion.…”

Réflexions sur l’exclusion et l’inclusion sociale en lien avec le vieillissement. L’importance des enjeux de reconnaissance et de redistribution

“…On peut vieillir avec le VIH ou le contracter à un âge avancé (Wallach et Brotman, 2012). On peut être en train de vivre nos derniers moments et avoir besoin de soins palliatifs (durivage et al, 2012 ;Hébert et al, 2011). On peut être l'aidante d'un proche ou avoir besoin d'aide (Guberman et Lavoie, 2012.…”