Les répercussions psychiques du cancer chez l’adolescent et le jeune adulte – AJA – et la famille : revue de la littérature narrative

Kirakosyan, Voskan; Ducousso‐Lacaze, Alain

doi:10.1016/j.amp.2021.05.002

Cited by 5 publications

(1 citation statement)

References 49 publications

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“…It is now well established that a cancer diagnosis has many emotional consequences: shock, incredulity and distress at the news [1,2]. It brings out in patients a number of physical, psychological and social needs that can impact their quality of life [3,4] after the diagnosis and can persist beyond the end of treatment [5].…”

Section: Introductionmentioning

confidence: 99%

Construction and validation of a tool for measuring the needs of adolescents and young adults (AYAs) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs : QUEEC-AYAs

Justafré

Marino

Touzani

et al. 2023

Preprint

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Context: In France, 2300 adolescents and young adults (AYAs, 16-25 years old) are diagnosed with cancer each year. As soon as the disease is diagnosed, a number of physical, psychological and social needs may arise. The aim of this study is to develop a tool to measure unmet needs that will allow the specificities of AYAs to be understood while allowing health care staff to mobilise the necessary actors to resolve them. Methods: We developed the Questionnaire nEEd Cancer AYAs (QUEEC-AYAs questionnaire), from two existing questionnaires: the Cancer Needs Questionnaire Young People and the Needs Assessment & Service Bridge. A main sample of 103 AYAs then received and completed the questionnaire in order to conduct an exploratory factor analysis. Results: The final structure of the QUEEC-AYAs is composed of 7 dimensions and 48 items: information (8 items), cancer care team (6 items), Physical health (4 items), Emotional health (14 items), Sexual & reproductive health (6 items), Health behaviors & wellness (4 items), Daily life (6 items). The questionnaire has a good acceptability and all domains have a Cronbach's alphas value above 0.80. Conclusion: The QUEEC-AYAs is the first measure of the psychosocial needs of AYAs available in French. Its systematic use in health care services should improve the coordination of care required by AYAs during and after treatment. Trial registration: This study was approved by the ethics committee of the Paoli-Calmettes Institute (IRB # IPC 2021-041, 2021 May 20).

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Section: Introductionmentioning

confidence: 99%

Construction and validation of a tool for measuring the needs of adolescents and young adults (AYAs) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs : QUEEC-AYAs

Justafré

Marino

Touzani

et al. 2023

Preprint

View full text Add to dashboard Cite

show abstract

Le fonctionnement familial face à l’adolescent et au jeune adulte (AJA) atteint de cancer : une étude qualitative pour mieux comprendre les interactions entre le jeune et ses proches – parents et fratrie

Kirakosyan

2024

Pratiques Psychologiques

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Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs

Justafré,

Marino,

Touzani

et al. 2024

Health Qual Life Outcomes

View full text Add to dashboard Cite

Context In France, 2300 adolescents and young adults (AYAs, 15–25 years old) are diagnosed with cancer each year. As soon as the disease is diagnosed, a number of physical, psychological and social needs may arise. The aim of this study is to develop a tool to measure unmet needs that will allow the specificities of AYAs to be understood while allowing health care staff to mobilise the necessary actors to resolve them. Methods We developed the Questionnaire nEEd Cancer AYAs (QUEEC-AYAs questionnaire), from two existing questionnaires: the Cancer Needs Questionnaire Young People and the Needs Assessment & Service Bridge. A main sample of 103 AYAs then received and completed the questionnaire in order to conduct an exploratory factor analysis. Results The final structure of the QUEEC-AYAs is composed of 7 dimensions and 48 items: information (8 items), cancer care team (6 items), Physical health (4 items), Emotional health (14 items), Sexual & reproductive health (6 items), Health behaviors & wellness (4 items), Daily life (6 items). The questionnaire has a good acceptability and all domains have a Cronbach’s alphas value above 0.80. Conclusion The QUEEC-AYAs is the first measure of the psychosocial needs of AYAs available in French. Its systematic use in health care services should improve the coordination of care required by AYAs during and after treatment. Trial registration This study was approved by the ethics committee of the Paoli-Calmettes Institute (IRB # IPC 2021-041, 2021 May 20).

show abstract

Les répercussions psychiques du cancer chez l’adolescent et le jeune adulte – AJA – et la famille : revue de la littérature narrative

Cited by 5 publications

References 49 publications

Construction and validation of a tool for measuring the needs of adolescents and young adults (AYAs) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs : QUEEC-AYAs

Construction and validation of a tool for measuring the needs of adolescents and young adults (AYAs) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs : QUEEC-AYAs

Le fonctionnement familial face à l’adolescent et au jeune adulte (AJA) atteint de cancer : une étude qualitative pour mieux comprendre les interactions entre le jeune et ses proches – parents et fratrie

Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs

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