Life Support Decisions for Extremely Premature Infants: Report of a Pilot Study

Kavanaugh, Karen; Savage, Teresa A.; Kilpatrick, Sarah J.; Kimura, Rob; Hershberger, Patricia E.

doi:10.1016/j.pedn.2005.03.006

Cited by 78 publications

(84 citation statements)

References 44 publications

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“…Parents' perception of decisions, concerning the life support of their extremely preterm infant (< 25 GW), was that they could recall the information given before birth (Kavanaugh et al, 2005). This included information related to medical matters, such as morbidity and mortality, but also more practical questions like breast feeding.…”

Section: Discussion Of the Findingsmentioning

confidence: 99%

“…Both parents often want to take part in the decisions concerning the care of the mother and their infant (Jackcson et al, 2003;Danerek & Dykes, 2008). Fathers wanted honest and consistent information about what was going on, and both parents felt it important to minimise the number of professionals giving advice and information (Kavanaugh et al, 2005;Danerek & Dykes, 2008). If they were given adequate information they felt confident about the decision they made.…”

Section: Discussion Of the Findingsmentioning

confidence: 99%

“…Information, in cases of threatened preterm birth, should be given to the parents by the professionals so that the parents are able to make an informed choice (Sharp, 1998;Danerek et al, 2005;Danerek & Dykes, 2008;Kavanaugh et al, 2005;Chan et al, 2006). The obstetrician and the midwife have the obligation to inform the parents about the prognosis and treatment based on scientifically based information and proven experience.…”

Section: Introductionmentioning

confidence: 99%

“…However, several studies have investigated the attitudes of other professionals with the same focus (De Leeuw et al, 2000;Streiner et al, 2001;Kavanaugh et al, 2005;Chan et al, 2006;Peerzada et al, 2006). The aim of this study was to ascertain the attitudes of Swedish midwives towards management of very/extremely preterm labour and birth and to compare the attitudes of midwives working at university hospitals with those at general hospitals.…”

Section: Introductionmentioning

confidence: 99%

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Attitudes of Swedish midwives towards management of extremely preterm labour and birth

et al. 2012

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Section: Discussion Of the Findingsmentioning

confidence: 99%

Section: Discussion Of the Findingsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Attitudes of Swedish midwives towards management of extremely preterm labour and birth

et al. 2012

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“…and having a supportive environment were seen as being helpful in coping with their grief (Kavanaugh, Savage, Kilpatrick, Kimura, & Hershberger, 2005;Meert, Briller, MyersSchim, Thurston, & Kabel, 2009;Meyer, Ritholz, Burns, & Truog, 2006;Sharman et al, 2005;Wocial, 2000). Brosig, Pierucci, Kupst, and Leauther (2007) interviewed 19 bereaved parents.…”

Section: Significance Parent Nicu/picu Experiencesmentioning

confidence: 99%

The Influence of Spirituality, Race/Ethnicity and Religion on Parent Grief and Mental Health at one month and three months after their Infant's/Child's death in the Neonatal or Pediatric Intensive Care Unit

Hawthorne¹

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Enacting a theory of caring to recruit and retain vulnerable participants for sensitive research

et al. 2006

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The recruitment and retention of research participants always presents challenges to researchers. This process is made more complicated when the research being undertaken is socially sensitive and the populations of interest are considered vulnerable. The purpose of this article is to illustrate how Swanson's middle-range theory of caring can be used as a framework for recruitment and retention for studies on sensitive topics that involve vulnerable participants. We provide an overview of the theory as well as illustrations from three separate studies that involved in-depth interviews with vulnerable participants. These studies included parents who had either experienced the death of their infant or were involved in life support decisions because of potentially giving birth to an extremely premature infant (22-25 weeks gestation). Keywords neonatal care; recruiting vulnerable populations; Swanson's middle-range theoryRecruiting and retaining vulnerable populations for sensitive research presents ethical challenges for researchers. Three ethical principles should guide research: respect for persons, beneficence, and justice (Thomas, 2005). These principles are particularly salient to recruitment and retention processes with vulnerable participants because of the delicate balance between protecting potential participants from harm and allowing them to make autonomous decisions about participation in research. Efforts to enroll participants are enhanced by anticipating and planning ahead for potential problems (Burr, 1996) and allocating adequate resources towards recruitment (Hogue, Johnson-Leckrone, & Liddle, 1999). When conducting research it is of paramount importance that participants' well-being takes precedence at all

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Life Support Decisions for Extremely Premature Infants: Report of a Pilot Study

Cited by 78 publications

References 44 publications

Attitudes of Swedish midwives towards management of extremely preterm labour and birth

Attitudes of Swedish midwives towards management of extremely preterm labour and birth

The Influence of Spirituality, Race/Ethnicity and Religion on Parent Grief and Mental Health at one month and three months after their Infant's/Child's death in the Neonatal or Pediatric Intensive Care Unit

Enacting a theory of caring to recruit and retain vulnerable participants for sensitive research

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