Linguistic validation of the Spanish version of the Good Death Inventory / Validación lingüística de la versión española del Good Death Inventory

Abstract

This article outlines the linguistic validation of the Good Death Inventory (GDI) translation into Spanish, used to assess the quality of care at the end of a patient’s life. A standardized procedure was followed to do this that included a blind back translation process and an exploration of the conceptual adaptation of the scale into Spanish through six cognitive interviews with relatives of deceased patients. The translation of the scale (54 items) showed indicators of low difficulty. Six items required syntactic changes, 12 required semantic changes and only one item required syntactic and semantic changes. All items were considered applicable to the Spanish context. The degree of difficulty was higher for the back translation than for the translation itself. The cognitive interviews highlighted the difficulty of choosing between seven answers, especially those that were formulated as negative. Five items were difficult to understand. The Spanish version of the GDI has been adapted well to the Spanish context.

Grief, loss and end of life processes / Duelo, pérdida y procesos de final de vida

“…En la sección de Informes Breves de Investigación Boelen (2017) identifica, a través de un estudio longitudinal, los sentimientos de irrealidad, asociados a la dificultad para aceptar e integrar la pérdida en la memoria autobiográfica, como un predictor significativo de los síntomas de duelo prolongado, estrés post-traumático y depresión. Posteriormente, Cabañero-Martínez, Congost-Maestre, Fernández-de-Maya, Jiménez-García, y Richart-Martínez (2017) presentan la validación lingüística del Good Death Inventory , un instrumento compuesto por 54 ítems que tiene una gran utilidad para evaluar los cuidados que recibe el paciente que se encuentra en proceso de final de vida desde la perspectiva de los familiares. En este estudio se señala de manera pormenorizada el proceso inicial de adaptación y se presenta la versión en castellano del instrumento.…”

“…In the Brief Research Papers section, Boelen (2017) identifies through a longitudinal study feelings of unreality — associated with the difficulty of accepting and integrating loss in the autobiographical memory — as a significant predictor of symptoms of prolonged grief, post-traumatic stress and depression. Following this, Cabañero-Martínez, Congost-Maestre, Fernández-de-Maya, Jiménez-García, and Richart-Martínez (2017) present the linguistic validation of the Good Death Inventory, an instrument composed of 54 items that is very useful for evaluating the care received by patients who are experiencing an end of life process, from their relatives’ perspective. This study details the initial process of adaptation and presents the Spanish version of the instrument.…”

Translation and Psychometric Evaluation of the Persian Version of “Good Death Inventory- Short Form” from the perspective of family- members of cancer patients

“…The sum of scores ranges from 18 to 126, with higher scores indicating greater probability of achieving a good death (12). So far, the reliability and validity of this questionnaire have been examined in Korean (21), Chinese (5), and Spanish (22).…”