Listening to children and young people affected by parental HIV: Findings from a Scottish study

Cree, Viviene E.; Kay, Helen; Tisdall, E. Kay M.; Wallace, Jennifer

doi:10.1080/09540120500161793

Cited by 14 publications

(11 citation statements)

References 6 publications

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“…However, as others have pointed out, the family setting is usually not addressed in service provision (De Matteo et al, 2002;Rotherham-Borus et al, 2005). In most European countries, services tend not to be family-focused but rather concentrate on individual patients, and their children remain largely invisible and un-assessed for their needs (Cree et al, 2006). A large group among patients fulfilling caregiving roles in our sample stemmed from ethnic minorities.…”

Section: Discussion Of the Findingsmentioning

confidence: 97%

Children and adolescents living with HIV positive parents: Emotional and behavioural problems

Nöstlinger

Bartoli

Gordillo

et al. 2006

Vulnerable Children and Youth Studies

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This study explores the emotional and behavioural problems in children living with an HIV-positive parent, and identifies specific high-risk and protective factors for their psychological well-being. Data were collected on 718 parents living with HIV and on 1136 HIV-affected children in a European multicentre study (EUROSUPPORT IV) adopting a cross-sectional and retrospective study design. Sociodemographic characteristics, HIV-related stressors, variables relating to caregiving and outcome variables relating to family functioning and children's symptoms were assessed using a self-reported questionnaire. Results indicated a low level of parental HIV disclosure to children, and an elevated level of behavioural symptoms in HIV-affected children as reported by parents. Children had experienced a high degree of distressing life events. In multivariate analysis, perceived healthy family functioning emerged as protective for a low degree of behavioural symptoms in children and adolescents. The results call for a shift towards family-centred service delivery in HIV care and counselling. Service implications are discussed in the light of increasing numbers of women and couples living with HIV who become parents and need tailored support in facing the challenges of being a caregiver living with HIV.

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Section: Discussion Of the Findingsmentioning

confidence: 97%

Children and adolescents living with HIV positive parents: Emotional and behavioural problems

Nöstlinger

Bartoli

Gordillo

et al. 2006

Vulnerable Children and Youth Studies

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“…However, it is now known that stigma constitutes a potential risk factor both for physical diseases [ 16 , 17 ] and for mental health problems [18][19][20]. Possible mechanisms for the effects of stigma on health are likely to be both direct and indirect [ 15 ]: direct, because the stigmatized individuals may be exposed to less health-promoting environments and be less able to access high-quality health care; and indirect, because stigmatized persons may experience negative physiologic and psychological threat responses, which can lead to impaired health.…”

Section: Introductionmentioning

confidence: 99%

Epilepsy and stigma: An update and critical review

Jacoby

2008

Curr Neurol Neurosci Rep

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This article discusses the concept of illness-related stigma and its relevance to consideration of the psychosocial impact of epilepsy. It provides an overview of the recent literature on epilepsy-related stigma as it relates to the stigma experience of people with epilepsy themselves and to the beliefs and attitudes held by other key target groups. The limitations of these and previous studies are considered, and some advances in knowledge arising from them are highlighted. Finally, some suggestions are made about possible areas for further investigation.

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“…Although, the impact of stigma and discrimination among HIV-affected caregivers and/or their children has been documented (Cluver & Gardner, 2007; Cohen, 2005; Cree, Kay, Tisdall, & Wallace, 2006; Reyland, Higgins-D’Alessandro, & McMahon, 2002), we do not know of literature that directly examines factors associated with HIV-related stigma and discrimination as the primary outcome. By identifying factors associated with HIV-related stigma and discrimination among families affected by HIV, we can develop interventions to address and/or prevent HIV-related stigma, possibly curtailing the psychosocial impact on families affected by HIV, such as isolation (Cree et al, 2006) and depression (Dowshen et al, 2009; Wu et al, 2008).…”

Section: Introductionmentioning

confidence: 99%

“…By identifying factors associated with HIV-related stigma and discrimination among families affected by HIV, we can develop interventions to address and/or prevent HIV-related stigma, possibly curtailing the psychosocial impact on families affected by HIV, such as isolation (Cree et al, 2006) and depression (Dowshen et al, 2009; Wu et al, 2008). In addition to the distress caused by stigma and discrimination, the isolation and silence surrounding the illness can have a negative effect on HIV prevention efforts (Ehiri, Anyanwu, Donath, Kanu, & Jolly, 2005; Kaplan, Scheyett, & Golin, 2005).…”

Section: Introductionmentioning

confidence: 99%

Perceived discrimination and stigma toward children affected by HIV/AIDS and their HIV-positive caregivers in central Haiti

et al. 2010

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In many settings worldwide, HIV-positive individuals have experienced a significant level of stigma and discrimination. This discrimination may also impact other family members affected by the disease, including children. The aim of our study was to identify factors associated with stigma and/or discrimination among HIV-affected youth and their HIV-positive caregivers in central Haiti. Recruitment of HIV-positive patients with children aged 10–17 years was conducted in 2006–2007. Data on HIV-related stigma and/or discrimination were based on interviews with 451 youth and 292 caregivers. Thirty-two percent of caregivers reported that children were discriminated against because of HIV/AIDS. Commune of residence was associated with discrimination against children affected by HIV/AIDS and HIV-related stigma among HIV-positive caregivers, suggesting variability across communities. Multivariable regression models showed that lacking social support, being an orphan, and caregiver HIV-related stigma were associated with discrimination in HIV-affected children. Caregiver HIV-related stigma demonstrated a strong association with depressive symptoms. The results could inform strategies for potential interventions to reduce HIV-related stigma and discrimination. These may include increasing social and caregiver support of children affected by HIV, enhancing support of caregivers to reduce burden of depressive symptoms, and promoting reduction of HIV-related stigma and discrimination at the community-level.

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Listening to children and young people affected by parental HIV: Findings from a Scottish study

Cited by 14 publications

References 6 publications

Children and adolescents living with HIV positive parents: Emotional and behavioural problems

Children and adolescents living with HIV positive parents: Emotional and behavioural problems

Epilepsy and stigma: An update and critical review

Perceived discrimination and stigma toward children affected by HIV/AIDS and their HIV-positive caregivers in central Haiti

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