Living Positively

Liamputtong, Pranee; Haritavorn, Niphattra; Kiatying-Angsulee, Niyada

doi:10.1177/1049732311421680

Cited by 39 publications

(7 citation statements)

References 37 publications

(73 reference statements)

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“…These two-parent families tended to discuss and agree on when and how to disclose. Furthermore, the participants were more willing to disclose when they had good relations with their children (Liamputtong, Haritavorn, & Kiatying-Angsulee, 2012). Harmonious families provided strong support to their members, and the more support HIV-infected parents received, the more willing they were to discuss their serostatus to their children (see Table 2; Zhou et al, 2013).…”

Section: Discussionmentioning

confidence: 99%

Disclosing Parental HIV Status to Children in China: Lessons Learned Through an Intervention Study

Zhang

Chen

Yang

et al. 2017

Journal of the Association of Nurses in AIDS Care

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For HIV-infected parents, deciding whether and how to disclose their illness to their children is a major stressor. In China, due to significant HIV stigma, disclosure distress is acute. Our objective was to understand HIV-infected parents' concerns regarding disclosure of their HIV status to their children. HIV-infected parents (N = 10) were recruited to attend a 3-session nursing intervention. In our post-hoc analysis, progress notes from each session were analyzed for themes to illuminate parental decision-making processes. By the end of the intervention, all parents had considered the importance of HIV disclosure and stated that they felt somewhat prepared to disclose. Primary themes included (a) severe stigma experienced by fathers who were sexually active with men, (b) need for both parents to agree on plans for disclosure, and (c) parents' fears about the consequences of disclosure. Parents living with HIV can benefit from nurse-delivered interventions during parental HIV disclosure decision-making.

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Section: Discussionmentioning

confidence: 99%

Disclosing Parental HIV Status to Children in China: Lessons Learned Through an Intervention Study

Zhang

Chen

Yang

et al. 2017

Journal of the Association of Nurses in AIDS Care

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“…The sample size was determined according to the saturation principle; that is, data collection stopped at the point when new data no longer brought additional insights into the research questions [ 21 ]. A total of 26 PLHIV who were on ART participated in this study.…”

Section: Methodsmentioning

confidence: 99%

Experiences and Impact of Stigma and Discrimination among People on Antiretroviral Therapy in Dar es Salaam: A Qualitative Perspective

Mhode

Nyamhanga

2016

AIDS Research and Treatment

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Background. The impact of stigma on adherence to antiretroviral therapy (ART) has been less studied in Tanzania. Recent studies indicate that people on ART still experience stigma. Qualitative information on the subject matter is especially insufficient. Objective. This paper reports on the dimensions of stigma and discrimination and their impact on adherence to ART as experienced by people living with HIV (PLHIV). Design. A phenomenological approach was used to gather information on the lived experiences of stigma and discrimination. The sample size was determined according to the saturation principle. Results. Respondents experienced different forms of HIV-related stigma such as verbal, social, and perceived stigma. Various forms of discrimination were experienced, including relational discrimination, mistreatment by health care workers, blame and rejection by spouses, and workplace discrimination. HIV-related stigma and discrimination compromised ART adherence by reinforcing concealment of HIV status and undermining social suppport. Conclusion. After nearly a decade of increasing the provision of ART in Tanzania, PLHIV still experience stigma and discrimination; these experiences still appear to have a negative impact on treatment adherence. Efforts to reduce stigma and discrimination remain relevant in the ART period and should be given more impetus in order to maximize positive treatment outcomes.

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“…A positive diagnosis of HIV/AIDS is often accompanied by a sense of loss, purpose, and hope [17]. The diagnosis influences a person's image of the future [18], and is followed by a set of reactions, such as shock and disbelief [7, 19, 20, 21], fear [19, 21], shame and anger [7], despair and desperation [21], and even suicidal thoughts [10, 20, 21].…”

Section: Introductionmentioning

confidence: 99%

Experiences of patients with primary HIV diagnosis in Kermanshah-Iran regarding the nature of HIV/AIDS: A qualitative study

Barkish

Jalali

2019

Heliyon

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Background A diagnosis of HIV (human immunodeficiency virus) infection causes a wide range of mental challenges regarding the meaning and understanding of such a diagnosis because of the specific nature of HIV and its social consequences. AIDS patients perceived their disease as multidimensional Stigma and rejection and even discrimination and insult in receiving health services. Therefore, a deep awareness and understanding of an individual's meaning and interpretation of a HIV-positive diagnosis and their relevant experiences are essential for providing better care. Objective This study aimed to examine the attitude, understanding, and interpretation of a positive diagnosis of HIV. Methods The present qualitative study was based on the descriptive phenomenological method. Participants included 13 HIV-positive patients who had been referred to the Kermanshah Counseling Center for Behavioral Diseases in Iran and diagnosed at most 6 months before being interviewed. The data were collected via semi-structured in-depth interviews. Results The continuous analyses of the data and the interview notes resulted in the identification of five main themes: contagious disease with two subthemes Illness and Harm to others, new self with a Crisis of identity subtheme, disappointment with the life ending and impending death subtheme, unmentionable disease with two subthemes secretive and horrifying diseases, and loss with Frustration subtheme. Conclusion Because the attitudes and behaviors of other people, such as relatives and people in society had a negative impact on the participants' mental status, as well as on their perceptions and understanding about the positive diagnosis, the focus of care for people with HIV/AIDS should shift from therapeutic issues to socio-cultural ones. These issues play a major role in forming an individual's understanding of HIV and can be a vital factor in improving their activities and adaptations to a positive diagnosis.

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Living Positively

Cited by 39 publications

References 37 publications

Disclosing Parental HIV Status to Children in China: Lessons Learned Through an Intervention Study

Disclosing Parental HIV Status to Children in China: Lessons Learned Through an Intervention Study

Experiences and Impact of Stigma and Discrimination among People on Antiretroviral Therapy in Dar es Salaam: A Qualitative Perspective

Experiences of patients with primary HIV diagnosis in Kermanshah-Iran regarding the nature of HIV/AIDS: A qualitative study

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