Living with <scp>c</scp>oeliac disease: a grounded theory study

Rose, Catharine S.; Howard, Ruth

doi:10.1111/jhn.12062

Cited by 50 publications

(72 citation statements)

References 25 publications

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“…We understand that the low number of participants in this research is a strong limitation, nonetheless these results support research done in Europe (21) , Australia (22) , India (23) and in the United States (24) , where studies show a need to care for the biopsychosocial sphere. This way this study hitherto fulfills an existing gap in the literature in Brazil, that thus far had not looked to psychosocial issues and its impacts on CD treatment.…”

Section: Discussionsupporting

confidence: 51%

The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease

Rocha

Gandolfi

Santos

2016

Rev. esc. enferm. USP

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Objective:To comprehend the psychosocial effects that Coeliac Disease diagnosis entails. Method: Qualitative study, achieved through semi-structured interviews, analyzed in accordance to the Association of ideas map Technique. A total 12 recently-diagnosed patients from the Centro de diagnóstico, tratamento e apoio ao paciente com doença celíaca (Coeliac Disease Prevention, Support and Treatment Diagnose Centre) from the Hospital Universitário de Brasília (University Hospital of Brasilia) were enrolled for the study, between the years of 2013 and 2014. Results: The interviewed patients presented negative impacts in three categories: psychoaffective, family and social relationships, indicating issues with social readaptation once the treatment had started, as well as difficulty coping with a gluten free diet. Conclusion: Coeliac Disease holds substantial impact on psychological functions, family and social relationships to diagnosed patients, requiring a clinical biopsychological assistance for better adherence to treatment and patients quality of life. DESCRIPTORS

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Section: Discussionsupporting

confidence: 51%

The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease

Rocha

Gandolfi

Santos

2016

Rev. esc. enferm. USP

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“…These themes, and associated subthemes, are presented in order to provide insights into psychosocial issues considered to be specific to older people. Themes like those reported by younger individuals also arose [33][34][35][36][37][38], but are not reported.…”

Section: Resultsmentioning

confidence: 85%

“…Using IPA, participants were invited to describe their lived experiences and an analysis of the data enabled us to draw themes specific to a diagnosis later in life and to issues experienced by older people specifically. Three superordinate themes emerged, each with associated subthemes and although the reported extracts only denote themes deemed relevant to a later life diagnosis, common themes to a CD diagnosis for adults in general were also identified [33][34][35][36][37][38]. Our interaction with the data suggests that the diagnosis and management of CD later in life is complicated, at least in part, by older adult specific considerations, including fears about being diagnosed with a "more serious or life threatening illness" more commonly seen in later life (e.g., cancer), delayed help seeking, poorer engagement with available support systems, and reduced confidence in maintaining adequate self-care if appropriate support were unavailable.…”

Section: Discussionmentioning

confidence: 99%

“…To promote best practice [48], the researcher's perspective relative to the subject, the participants and IPA, is presented to promote transparency and support the reader's interpretation of the analysis. This study was the first qualitative investigation of CD in older people completed by the researchers, though RH has conducted qualitative research in working aged adults with CD [38]. The exploratory nature of the study may have influenced the interpretative framework applied throughout.…”

Section: Reflexivitymentioning

confidence: 99%

“…An appropriate starting point, therefore, would be to employ qualitative methods. Until now, qualitative research in individuals with CD has focused on understanding the experiences of younger people [33][34][35][36][37][38]. Indeed, a broad literature search indicated that there are, to our knowledge, no published studies applying a qualitative method to better understand CD in older adults.…”

Section: Introductionmentioning

confidence: 99%

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Coeliac Disease in Later Life: An Interpretive Phenomenological Analysis

Price¹,

Howard²

2017

IJCD

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Coeliac Disease (CD) is a chronic autoimmune condition characterized by heightened immunological response to the digestion of gluten in genetically susceptible individuals. Previous research suggests that being diagnosed with a chronic health condition may present psychosocial challenges. We aimed to investigate the lived experience related to a diagnosis of CD later in life, and to better understand issues that may be specific to older individuals. Semi-structured interviews were carried out with five people diagnosed with CD after the age of 60 (mean age: 68 years; mean age at diagnosis: 66 years; 60% sample female; 40% male). Interviews were transcribed verbatim and then analyzed qualitatively using Interpretative Phenomenological Analysis (IPA). A psychosocial model was constructed from the findings, which encompasses shared experiences considered to be older adult specific. This model comprises several insights associated with the diagnostic process, perceived severity of, and perceived agency in controlling, the condition. Participants reflected upon issues that were considered to relate specifically to a diagnosis later in life, although issues comparable with younger individuals were also expressed. Tentative recommendations for clinical practice are made with a focus on improving the diagnostic experience, disease management and psychosocial wellbeing of older adults diagnosed with CD.

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The psychological characteristics of people consuming vegetarian, vegan, paleo, gluten free and weight loss dietary patterns

Norwood

Cruwys

Chachay

et al. 2019

Obesity Science & Practice

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Summary Objective Previous research has identified several psychological factors associated with dietary restriction but has focused almost exclusively on the subcategory of people following a weight loss diet. Little is known about the psychological factors associated with other kinds of restrictive dietary patterns. Furthermore, it remains unclear whether the identified psychological characteristics of dieters (e.g. elevated disordered eating behaviours, poor well‐being) are a cause of dieting, follow from calorie restriction or are the result of cognitive restraint. Methods This study conducted the first direct comparison of people ( N = 393) following five different restrictive dietary patterns (vegetarian, vegan, gluten free, paleo and weight loss) as well as a comparison group who were not following a specific dietary pattern. Results The weight loss group had more negative psychological characteristics than all other groups, reporting the highest levels of eating disorder symptoms ( M = 1.50), food cravings ( M = 69.39), emotional eating ( M = 2.97) and negative affect ( M = 19.72). By contrast, several of the other restrictive dietary groups showed a number of psychological strengths, relative to the comparison group. This was particularly apparent among the paleo group, who reported the lowest levels of eating disorder symptoms ( M = 0.74), food cravings ( M = 47.63), emotional eating ( M = 2.30) and negative affect ( M = 14.81). By contrast, people following vegetarian and gluten free diets were largely the same as the non‐restricted comparison group in their psychological characteristics. Conclusions People adhering to different dietary patterns showed stark differences in their psychological characteristics. Indeed, some restrictive dietary patterns (paleo and vegan) were associated with more positive psychological characteristics than seen in an unrestricted comparison group. This suggests that the psychological risk factors seen in weight loss dieters are not attributable to a restrictive dietary regimen per se .

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Living with coeliac disease: a grounded theory study

Cited by 50 publications

References 25 publications

The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease

The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease

Coeliac Disease in Later Life: An Interpretive Phenomenological Analysis

The psychological characteristics of people consuming vegetarian, vegan, paleo, gluten free and weight loss dietary patterns

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