Living with type 1 diabetes: perceptions of children and their parents

Marshall, Marie; Carter, Bernie; Rose, Karen; Brotherton, Ailsa

doi:10.1111/j.1365-2702.2008.02737.x

Cited by 85 publications

(132 citation statements)

References 23 publications

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“…Our findings confirmed that caregivers overwhelmed by higher levels of burden on the CB subscales perceived limited participation of the family in maintaining cultural-social contacts and free leisure. According to the study conducted by Marshall et al, parents indicate lack of freedom and liberty as losses resulting from diabetes in a child [30].…”

Section: Discussionmentioning

confidence: 99%

Diabetes, child care, and performance of family functions

Kobos¹,

Imiela²,

Leńczuk-Gruba³

2017

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Introduction: Parents caring for a child with diabetes may experience a burden on both a practical and an emotional level. Aim of the research: Analysis of the correlations between the care burden level and the perceived influence of type 1 diabetes in children on the performance of family functions. Material and methods:The study included 112 caregivers of children with diabetes. The following inclusion criteria were taken into account: full family, direct caregiver of the child, the child's age 3-16 years, disease duration of at least 6 months, and no chronic diseases in siblings. The study material was collected using an interview questionnaire and the Caregiver Burden Scale. Correlation analysis was performed using the Spearman correlation coefficient. The significance level was defined as p = 0.05. Results: A higher burden level of a caregiver in the individual subscales of the CB Scale was associated with a significant decrease in the intensity of performance of the cultural and social function as well as consumption function, the increased amount of time spent with a sick child, and an increase in parental disagreements. The overall burden level differentiated the performance of the religious function. An increase in the burden level on the overall effort subscale was accompanied by lower interest in sex and less frequent sexual intercourse. The higher level of caregiver burden occurs in families where permanent job income has fallen. The differences were shown in the performance of control-socialisation function due to the sense of burden on the environment subscale. Conclusions:The burden level of a caregiver is important in the perceived influence of the child's illness on the functioning of the family. Stimulating a caregiver in dealing with the problems that are the consequence of the disease, as well as activating and preparing other family members to participate in the care of a sick child, and financial support may reduce the caregiver burden and thus facilitate the functioning of the family.

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Section: Discussionmentioning

confidence: 99%

Diabetes, child care, and performance of family functions

Kobos¹,

Imiela²,

Leńczuk-Gruba³

2017

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“…This is clearly inappropriate, even in adolescence, and contrasts with a study in the UK where parents needed to reassure themselves by constant checking, to the extent that some children felt that their parents were too controlling. [1] With the modern spring-loaded lancet devices, fingerprick testing is quite easy. In five cases the children were helped with fingerpricks, in eight with measuring their blood glucose results, and in four with both checking and recording their results.…”

Section: Discussionmentioning

confidence: 99%

“…All suddenly face complex technical challenges. [1] Later, the constant repetition of testing and insulin administration, unremitting dietary vigilance and careful adjustment of every aspect of living with the disease potentially become wearisome. [1,2] Many children over the age of 10 years administer their own insulin injections, [3] although some authorities believe that the parents should take complete control up to the age of puberty, i.e.…”

mentioning

confidence: 99%

The poor children of the poor: Coping with diabetes control in a resource-poor setting

Villiers

2015

S Afr Med J

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“…Today, an estimated number of five million diabetics exist in Brazil, about 300 thousand of whom are younger than 15 years (2) . The consequences of having a child with diabetes in the family have been widely debated upon in the Brazilian and international contexts (3)(4) . Adequate disease management in this population has shown to be a challenge, mainly for the children themselves, due to the presence of inadequate behaviors skills and knowledge that collaborate towards non-adherence to treatment and to a significant increase in long-term complications (5) .…”

Section: Introductionmentioning

confidence: 99%

Diabetes mellitus tipo 1: evidências da literatura para seu manejo adequado, na perspectiva de crianças

Nascimento

Amaral

Sparapani

et al. 2011

Rev. esc. enferm. USP

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RESUMENEl estudio objetivó identificar las evidencias disponibles en la literatura que aborden, en la perspectiva infantil, los factores relevantes para el manejo adecuado de la diabetes mellitus tipo 1. Se realizó revisión integradora en bases de datos PubMed, CINAHL, LILACS, CUIDEN y PsycINFO, con los descriptores diabetes mellitus tipo 1, niño, prevención y control, factores desencadenantes, emergencias, autocuidado, aprendizaje y educación en salud, en período 1998 a 2008. Del total, se seleccionaron 19, su aná-lisis permitió identificar las categorías: viviendo con la diabetes; autocuidado y perfil glucémico; actuación de la familia, amigos y profesionales de saludo; y escuela. Las evidencias determinan que el niño aprecia el apoyo recibido por sus familiares, los cuales tienen relación directa con la preparación para el autocuidado. Otros miembros externos a su red también son valorizados. La escuela merece atención, así como la experiencia particular de cada niño y la educación en salud. DESCRIPTORESDiabetes mellitus tipo 1 Niño Enfermería pediátrica Autocuidado Educación en salud

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Living with type 1 diabetes: perceptions of children and their parents

Cited by 85 publications

References 23 publications

Diabetes, child care, and performance of family functions

Diabetes, child care, and performance of family functions

The poor children of the poor: Coping with diabetes control in a resource-poor setting

Diabetes mellitus tipo 1: evidências da literatura para seu manejo adequado, na perspectiva de crianças

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