Locked-In Syndrome: A Team Approach

Mauss-Clum, Nancy; Cole, Marian; McCort, Tricia; Eifler, David

doi:10.1097/01376517-199110000-00002

Cited by 7 publications

(4 citation statements)

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“…Overall, the behavior of the Staging variable differs considerably from the standard assumption by Boyd et al, i.e., a progressive decrease in Staging score from segment one through five. As an example, we compared two abstracts from the Review corpus: the former is taken from the 1991 study 'Locked-in syndrome: a team approach' published in the Journal of Neuroscience Nursing by N. Mauss-Clum et al [30], which had a Staging score = 0 in segment five. The latter was taken from the 2022 study 'Sleep terrors-A parental nightmare' published in Pediatric Pulmonology by F. Gigliotti et al [31], which scored 100 in Staging for segment five.…”

Section: Resultsmentioning

confidence: 99%

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The Evolution of Narrativity in Abstracts of the Biomedical Literature between 1989 and 2022

et al. 2023

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Previous analysis has shown that the use of narrative devices in the biomedical literature has changed over time. The purpose of the present study was to measure the degree of narrativity in corpora of scientific abstracts obtained from Pubmed through the use of a proprietary software LIWC 2022, which, based on pre-set dictionaries, attributes scores for Staging, Plot Progression and Cognitive Tension to texts. Each text is automatically divided into a number of segments, so that the score change can be assessed throughout the different parts of a text, thus identifying its narrative arc. We systematically applied the scoring system to a corpus of 680,000 abstracts from manuscripts of any kind and genre published in the years 1989–2022 and indexed in MEDLINE, an independent corpus of 680,000 abstracts of Primary studies published in the same years, and finally a corpus of 680,000 abstracts of Review papers that appeared in the 1989–2022 interval. We were able to create plots of the pattern of how these three scores changed over time in each corpus and observed that the prototypical pattern observed in narrative texts, e.g., novels, is not seen in abstracts of the scientific literature, which, however, mostly possess a diverse but quite reproducible pattern. Overall, Reviews better conform to a higher degree of narrativity than Primary studies.

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Section: Resultsmentioning

confidence: 99%

“…Interestingly, the Staging score has progressively increased in segment five in Reviews, while it tended to be lower in works published in the 1980s and 1990s. This may once again be associated to a stronger accent on the conclusions section, where new ideas and well-defined take-home messages are clearly stated [30,31].…”

Section: Discussionmentioning

confidence: 99%

The Evolution of Narrativity in Abstracts of the Biomedical Literature between 1989 and 2022

et al. 2023

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“…161 A multidisciplinary approach including nursing interventions is also recommended. 162,163 Although very rare, LiS in children poses special challenges especially in the areas of communication, treatment and end-of-life decisions. 30 To avoid pulmonary complications, which are the main cause of death, chest physiotherapy like deep breathing exercises, frequent position changes, postural drainage and suctioning is recommended.…”

Section: Treatmentmentioning

confidence: 99%

Section: Treatmentmentioning

confidence: 99%

Locked-in syndrome revisited

Schnetzer

McCoy

Bergmann

et al. 2023

Ther Adv Neurol Disord

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The locked-in syndrome (LiS) is characterized by quadriplegia with preserved vertical eye and eyelid movements and retained cognitive abilities. Subcategorization, aetiologies and the anatomical foundation of LiS are discussed. The damage of different structures in the pons, mesencephalon and thalamus are attributed to symptoms of classical, complete and incomplete LiS and the locked-in plus syndrome, which is characterized by additional impairments of consciousness, making the clinical distinction to other chronic disorders of consciousness at times difficult. Other differential diagnoses are cognitive motor dissociation (CMD) and akinetic mutism. Treatment options are reviewed and an early, interdisciplinary and aggressive approach, including the provision of psychological support and coping strategies is favoured. The establishment of communication is a main goal of rehabilitation. Finally, the quality of life of LiS patients and ethical implications are considered. While patients with LiS report a high quality of life and well-being, medical professionals and caregivers have largely pessimistic perceptions. The negative view on life with LiS must be overthought and the autonomy and dignity of LiS patients prioritized. Knowledge has to be disseminated, diagnostics accelerated and technical support system development promoted. More well-designed research but also more awareness of the needs of LiS patients and their perception as individual persons is needed to enable a life with LiS that is worth living.

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Cognitive impairments in the locked-in syndrome: A case report

New

Thomas²

2005

Archives of Physical Medicine and Rehabilitation

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Locked-In Syndrome: A Team Approach

Cited by 7 publications

References 0 publications

The Evolution of Narrativity in Abstracts of the Biomedical Literature between 1989 and 2022

The Evolution of Narrativity in Abstracts of the Biomedical Literature between 1989 and 2022

Locked-in syndrome revisited

Cognitive impairments in the locked-in syndrome: A case report

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