Long-distance caregiving: A case study of an African-American family

Collins, Wanda Lott; Holt, Tangerine; Moore, Samuel K.; Bledsoe, Linda K.

doi:10.1177/153331750301800503

Cited by 20 publications

(24 citation statements)

References 25 publications

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“…Collins and co-authors (2003) provided a first-hand account of the trials and travails of being a long distance caregiver within an African American family. This personal reflection highlighted a desire to keep the care recipient at home; the limited availability of services; and avoidance of formal care resulting in heavy initial reliance on informal support systems (i.e., a network of friends, neighbors and family).…”

Section: Resultsmentioning

confidence: 99%

“…Despite the distances associated with LDCs, adult children who move away are, generally, still expected to maintain contact with their frail or ailing parent(s) (e.g., Collins et al, 2003); however, the nature, frequency, consequences and burden of maintaining contact are qualitatively different. Although LDCs make fewer face-to-face contacts with their care recipients as compared to proximate caregivers (Joseph & Hallman, 1998), and the primary forms of contact are by telephone or e-mail (Roff et al, 2003), contacts are frequent, with the vast majority of participants writing or calling their parents almost weekly (Parker et al).…”

Section: Discussionmentioning

confidence: 99%

“…Notably, three fourths of LDCs helped with IADLs such as managing finances, assisting with medications, arranging transportation, and preparing meals (Koerin & Harrigan). To do these tasks, LDCs often rely on local support from nearby friends, family, or hired services (Collins, Holt, Moore, & Bledsoe, 2003). Orchestrating local services, however, can be difficult (Harrigan & Koerin; Heath, 1995), and to ensure that adequate care is being provided, LDCs not only coordinate care, but provide follow-up as well.…”

Section: Discussionmentioning

confidence: 99%

“…Collins et al (2003) caution against underestimating negative effects, such as stress and depression, on LDCs. Approximately one third of LDCs report their role is either stressful or very stressful (Wagner, 1997c).…”

Section: Discussionmentioning

confidence: 99%

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Long-Distance Caregiving: A Systematic Review of the Literature

Cagle

Munn

2012

Journal of Gerontological Social Work

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There are an estimated 5–7 million long distance caregivers in the United States, but relatively little is known about this growing subpopulation of caregivers. This study systematically reviewed the existing empirical literature on long distance caregiving and critically examined 15 identified studies: 8 quantitative, 2 mixed-method, and 5 qualitative. Although studies defined long distance caregiving very differently, a composite description of who long distance caregivers are and what they do is presented. Long distance caregivers make substantial contributions to care in terms of physical, financial, and social support. Distance complicates the exchange of information about the care recipient’s health and care needs, as well as the types of care that can be provided. Related to this, geographic separation can exacerbate care-related stressors. Implications for future research are also identified.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Long-Distance Caregiving: A Systematic Review of the Literature

Cagle

Munn

2012

Journal of Gerontological Social Work

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“…As with caregiving in general, there are numerous examples of publications that attempt to provide support and strategies for the long distance caregiver (e.g., Harvard Women's Health Watch, April 2004; American Association of Retired Persons 1986;Heath 1993;Kalter 1997;Collins et al 2003). Plowfield et al (2000) do not provide any empirical data, but they do include distance as a factor when discussing the elements of a comprehensive, accurate geriatric assessment.…”

Section: Guidance For Long Distance Caregiversmentioning

confidence: 97%

Long Distance Caregiving: An Evaluative Review of the Literature

2010

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A comprehensive and evaluative review of empirical research published between 2000 and 2010 specific to long distance caregiving is provided to identify what is known about this subgroup of caregivers and to identify gaps in knowledge. We searched peer-reviewed journals included in the following databases: Academic Search Premier (EBSCO), PROQuest Direct, Social Work Abstracts, CINAHL, MEDLINE, and PsychInfo. Searches were restricted to English language publications between 2000 and 2010. Search terms included: 'review + caregiving + dementia', 'meta-analyses + caregiving + dementia,' 'caregiving + dementia + not institutional,' 'informal + caregiving,' 'family + caregiving', 'caregiving + technology'. Any searches including the term 'dementia' were repeated without that term. These same searches were repeated with the term 'distance' added to each. Empirical research specific to long distance caregiving is reviewed in detail. A brief review is provided of other closely related research. Long distance caregivers report being heavily involved in the care of their family member, regardless of distance and surprisingly, are often the only or primary caregiver. The specific needs for future research to inform best practice that goes beyond description of this important subgroup of caregivers is discussed.While a great deal has been written on many aspects of caregiving for older persons, very little empirical research has been published specific to informal care provided by families to its elderly relatives who are living at a great geographic distance from

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Closer: A videoconference intervention for distance caregivers of cancer patients

Blackstone

Lipson

Douglas

2019

Research in Nursing & Health

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Distance caregivers (DCGs) represent a growing demographic. The emotional burden of caregiving for a family member with cancer is amplified by the logistical challenges of providing support from afar. DCGs feel higher levels of distress, anxiety, and depression compared with local caregivers. Videoconference technology may alleviate both the emotional and practical burdens faced by DCGs. This is an ongoing randomized controlled trial in 32 outpatient ambulatory clinics at a large, urban, comprehensive cancer center. To date, 332 patient‐DCG dyads have been enrolled. DCGs must have internet access and have been identified by the patient as a source of support. The intervention period is 4 months. DCGs are randomized to one of three arms: DCGs in Arm 1 receive four coaching sessions with an advanced practice nurse or social worker and four videoconference appointments during the oncologist‐patient office visit. DCGs in Arm 2 participate in four videoconference appointments with the oncologist and patient, and Arm 3 is the control group, which receives access to information through a website. Primary outcome variables are DCG distress, anxiety, depression, burden, self‐efficacy, and emotional support. These data are collected electronically at baseline, 4 months, and 6 months. Patient distress, anxiety, and depression are also assessed at these same intervals using brief in‐person interviews. The change in each of the DCG outcomes over time will be examined by a repeated measures analysis of covariance.

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Long-distance caregiving: A case study of an African-American family

Cited by 20 publications

References 25 publications

Long-Distance Caregiving: A Systematic Review of the Literature

Long-Distance Caregiving: A Systematic Review of the Literature

Long Distance Caregiving: An Evaluative Review of the Literature

Closer: A videoconference intervention for distance caregivers of cancer patients

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