This article provides the results of a photovoice project conducted with older adults affected by diabetes living in three rural counties in the southern region of the United States. Photovoice is a community-based participatory action methodology that puts the tools of research in the hands of participants. This project was an initial community engagement activity that promoted trust-building and formed part of a larger comprehensive community needs assessment. The process revealed themes of personal and community resilience focused on the daily living with diabetes, formal and informal supports, barriers to taking care of their diabetes, accessibility to fruits and vegetables, changes to food preparation and consumption, and exercise supports and barriers. The impact of the photovoice project on the participants and the implications for practice are discussed.
A comprehensive and evaluative review of empirical research published between 2000 and 2010 specific to long distance caregiving is provided to identify what is known about this subgroup of caregivers and to identify gaps in knowledge. We searched peer-reviewed journals included in the following databases: Academic Search Premier (EBSCO), PROQuest Direct, Social Work Abstracts, CINAHL, MEDLINE, and PsychInfo. Searches were restricted to English language publications between 2000 and 2010. Search terms included: 'review + caregiving + dementia', 'meta-analyses + caregiving + dementia,' 'caregiving + dementia + not institutional,' 'informal + caregiving,' 'family + caregiving', 'caregiving + technology'. Any searches including the term 'dementia' were repeated without that term. These same searches were repeated with the term 'distance' added to each. Empirical research specific to long distance caregiving is reviewed in detail. A brief review is provided of other closely related research. Long distance caregivers report being heavily involved in the care of their family member, regardless of distance and surprisingly, are often the only or primary caregiver. The specific needs for future research to inform best practice that goes beyond description of this important subgroup of caregivers is discussed.While a great deal has been written on many aspects of caregiving for older persons, very little empirical research has been published specific to informal care provided by families to its elderly relatives who are living at a great geographic distance from
A growing number of Americans are managing and monitoring long-distance caregiving for an elderly parent. The authors offer a first-hand experience of caregiving involving an African-American family, which will be useful to both caregivers and practitioners. The challenges that result from long-distance caregiving are discussed. A detailed case study and assessment is followed by suggested strategies for lessening caregiver stress.
This article introduces the authors' experiences and observations as grief/bereavement counselors participating in urban and rural funerals. A vignette illustrates the use of rituals and spirituality of one African American family, living in a rural area of Kentucky, and their efforts to cope with their own grief and loss of a loved one. The article describes why it is important for professional practitioners to have awareness about a range of diverse funeral events and traditions that can take place in the African American community. Funeral practices and customs are discussed as well as suggestions for culturally competent practice in working with those who have experienced loss and grief.
African-Americans have, without their knowledge and consent, been used as human guinea pigs in scientific and medical experiments by private and governmental organizations. As a result many African-Americans approach the health care industry with caution and apprehension. African-Americans are admonished to remember the atrocities they once experienced and to approach participation in clinical studies with skepticism. This paper presents an historical overview of conspiracy theories, discusses various health issues that affect African-Americans, identifies for whom participation in clinical trials could prove beneficial, and recommends methods that can be used to attract African-American clients as active participants in clinical studies.
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