Long-Term Health-Related Quality of Life in Major Pediatric Trauma: A Pilot Study

Janssens, Loes; Gorter, Jan Willem; Kramer, W. L. M.; Holtslag, Herman R.

doi:10.1007/s00068-009-8217-y

Cited by 8 publications

(28 citation statements)

References 34 publications

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“…Arguably, sub-group analyses across PROGRESS dimensions can introduce risks of multiple comparisons that could be considered statistical malpractice [ 35 ]. In pursuit of health equity and ‘leaving no one behind’, a solution needs to be found to enable consideration of differential outcomes across relevant PROGRESS dimensions.…”

Section: Discussionmentioning

confidence: 99%

“…In pursuit of health equity and ‘leaving no one behind’, a solution needs to be found to enable consideration of differential outcomes across relevant PROGRESS dimensions. Approaches to consider include equivalents to the guidelines for sub-group analysis in randomized controlled trials and meta-analyses [ 35 , 49 ] and mediation analysis, where the focus is on identifying the contribution of a range of factors that influence differential health outcomes across population sub-groups (e.g., ethnic groups, geographic locations, different health-financing systems, or stages of illness) [ 60 ].…”

Section: Discussionmentioning

confidence: 99%

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Disparities in Non-Fatal Health Outcomes in Pediatric General Trauma Studies

Ameratunga

Ramke

Jackson³

et al. 2017

IJERPH

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When prevention efforts fail, injured children require high-quality health services to support their recovery. Disparities in non-fatal injury outcomes, an indicator of health-care quality, have received minimal attention. We evaluated the extent to which general trauma follow-up studies published in the peer-reviewed scientific literature provide evidence of socially patterned inequities in health, functional or disability outcomes ≥4 weeks after childhood injuries. Using a systematic search, we identified 27 eligible cohort studies from 13 high-income countries. We examined the extent to which the reported health outcomes varied across the PROGRESS criteria: place of residence, race/ethnicity, occupation, gender/sex, religion, socio-economic status, and social capital. The available evidence on differential outcomes is limited as many studies were compromised by selection or retention biases that reduced the participation of children from demographic groups at increased risk of adverse outcomes, or the analyses mainly focused on variations in outcomes by sex. Given the limited research evidence, we recommend greater attention to systematic collection and reporting of non-fatal injury outcomes disaggregated by socio-demographic indicators in order to identify disparities where these exist and inform equity-focused interventions promoting the recovery of injured children.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Disparities in Non-Fatal Health Outcomes in Pediatric General Trauma Studies

Ameratunga

Ramke

Jackson³

et al. 2017

IJERPH

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“…Six of the seven trauma-specific outcome tools were patient reported; five of the six generic tools were patient reported, and the others were clinician reported. The most common trauma-specific adult tool used was the Glasgow Outcome Scale in six studies 3,17,26,31–33 . the most commonly used generic adult tool was the Short Form 12 (SF-12) or Short Form 36 (SF-36) in five studies 20,28–30,33 …”

Section: Resultsmentioning

confidence: 99%

“…The unique challenge of managing trauma in children is that the physical effects of injury may manifest over time through altered or restricted growth and delay in physical, motor, and cognitive development. Residual impairments and disability may therefore not become apparent until years later when they are at a different stage in their maturation 3 . There is a scarcity of research describing these long-term outcomes, 4 which may be due to a lack of outcome tools to asses change over time in this growing and developing population 5 .…”

mentioning

confidence: 99%

“…Residual impairments and disability may therefore not become apparent until years later when they are at a different stage in their maturation. 3 There is a scarcity of research describing these long-term outcomes, 4 which may be due to a lack of outcome tools to asses change over time in this growing and developing population. 5 A lack of tools or agreement in which tools to use makes assessing and understanding the functional and health-related quality of life (HQoL) outcomes of trauma more difficult in children and adolescents.…”

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confidence: 99%

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Health-related quality of life and functional outcome measures for pediatric multiple injury: A systematic review and narrative synthesis

Collins

Burdall

Kassam

et al. 2021

J Trauma Acute Care Surg

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BACKGROUND:Pediatric multiple injury is a major cause of mortality and morbidity worldwide, with varied long-term sequelae. To improve care, a better understanding of the outcome tools used following multiple injury is needed. OBJECTIVES:This study aimed to (1) identify the outcome tools used to assess functional and health-related quality of life outcomes in pediatric multiple injury and to (2) describe the tool domains and validity. METHODS:Eligible studies were those that included pediatric participants aged 0 to 17 years who experienced multiple injury or severe trauma based on Injury Severity Score/Abbreviated Injury Scale score and a functional outcome tool was used to assess outcomes (e.g., physical, psychological, quality of life). Excluded study designs were editorials, narrative, and systematic reviews. RESULTS:Twenty-two papers were included encompassing 16,905 participants and 34 different outcome tools. Ten tools were validated in children of which 4 were multiple injury specific; 18 were validated in adults of which 8 were trauma specific, and 6 were previously unvalidated. The tools were a mixture of patient reported (7 of 10 validated in children and 13 of 18 validated in adults) and clinician reported (3 of 10 validated in children and 2 of 13 validated in adults). Pediatric tool domains assessed were function, mobility, activities of daily living, pain, school, cognition, emotional domains, mental health, behavior, and high-risk behaviors.Using adult-validated tools to assess children may not capture the children's true function and health-related quality of life. CONCLUSION:There was a lack of consistency in the outcome tools used following multiple injury in children. Adult-validated measures may not accurately capture pediatric outcomes after multiple injury. To fully understand the impact of pediatric multiple injury and make comparisons between studies, development of a core outcome set is required.

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