Longitudinal Change in Common Impairments in Children With Cerebral Palsy From Age 1.5 to 11 Years

Jeffries, Lynn; Fiss, Alyssa LaForme; McCoy, Sarah Westcott; Avery, Lisa

doi:10.1097/pep.0000000000000663

Cited by 5 publications

(17 citation statements)

References 36 publications

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“…All components of the ICF were investigated, with most of the studies reporting longitudinal outcomes in more than one component (Figure 1). The activity component was the most investigated (67.9%, n = 38 studies), 16,17,31,32,34–36,38,39,41,46,47,49–51,53,54,56,58,60–66,68,70–72,76–83 followed by body functions and structures (42.9%, n = 24 studies) 32,34,37–39,41,43–45,47,48,51,52,55–59,66,69,73,74,82,84 . Participation (14.2%, n = 8 studies) 33,40,42,48,52,67,75,78 and environmental factors (3.6%, n = 2 studies) 33,42 were the least studied.…”

Section: Resultsmentioning

confidence: 99%

“…The outcomes most commonly investigated were muscle function, 32,43,58,69,82 weight maintenance function (i.e. body weight), 34,55,58,74 intellectual function, 37,39,41,47,48,51,52 and mobility of joints and bone function 32,38,43,57,59,69,82,84 . The 38 studies retrieved on the activity component showed differences between levels of the GMFCS.…”

Section: Discussionmentioning

confidence: 99%

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Development of children, adolescents, and young adults with cerebral palsy according to the ICF: A scoping review

Chagas

Magalhães

Sousa

et al. 2022

Develop Med Child Neuro

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Aim To identify and provide a descriptive overview of the development of children, adolescents, and young adults with cerebral palsy (CP) in longitudinal studies; and map areas of focus according to the components of the World Health Organization's International Classification of Functioning, Disability, and Health (ICF). Method Longitudinal studies of the development of children, adolescents, and/or young adults with CP were included in this scoping review. A search for eligible studies was conducted in the databases MEDLINE, PubMed, LILACS, EMBASE, Cochrane, CINAHL, and Scopus, and was restricted to the years 2002 to 2022. All outcome measures of the studies were classified into ICF components. Results In the 56 studies included, there were 19 438 participants, involving mainly children, followed by adolescents, and lastly young adults. All components of the ICF were investigated and many studies reported outcomes in more than one component. Activity was the most investigated (67.9%; n = 38 studies), followed by body functions and structures (42.9%; n = 24 studies). Participation (14.2%; n = 8 studies) and environmental factors (3.6%; n = 2 studies) were the least studied. None of the studies investigated personal factors as an outcome. Interpretation This scoping review provides an overview of studies on the development of children, adolescents, and young adults with CP, using the ICF framework, identifying current areas of focus and gaps in the research. Future studies should target participation, contextual factors, and the transition into adulthood. What this paper adds The International Classification of Functioning, Disability, and Health can be used to map a range of outcomes through developmental studies. The main outcomes investigated in children with cerebral palsy were activity, and body functions and structures. Little has been explored in participation and contextual factors outcomes over time. The main classification used to stratify the participants was the Gross Motor Function Classification System.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Development of children, adolescents, and young adults with cerebral palsy according to the ICF: A scoping review

Chagas

Magalhães

Sousa

et al. 2022

Develop Med Child Neuro

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“…O GMFCS foi usado para classificar e estratificar os participantes em 51 (91,1%) dos 56 estudos; 16,17,31,33–49,51–70,72–75,77–81,83,84 14 estudos (25%) utilizaram o MACS, 32,39,41,42,50,53,61,68,71,75,79,80,82,84 e 3 estudos (5,4%) utilizaram o CFCS 36,53,68 . Nenhum dos estudos agrupou participantes usando o Sistema de Classificação das Habilidades de Comer e Beber (EDACS) ou o Sistema de Classificação da Função Visual (VFCS); apenas um estudo não utilizou nenhum sistema de classificação para agrupar crianças 76 .…”

Section: Resultsunclassified

Desenvolvimento de crianças, adolescentes e jovens adultos com Paralisia Cerebral de acordo com a CIF? Uma revisão do escopo

Chagas

Magalhães

Sousa

et al. 2022

Develop Med Child Neuro

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Pais de crianças com paralisia cerebral (PC) frequentemente chegam à terapia com objetivos específicos de mobilidade, às vezes inatingíveis, especialmente quando seus filhos apresentam extensas limitações funcionais: 1 1 em cada 4 crianças com PC não falará, 1 em 10 terá deficiência visual grave, 1 em 15 não poderá se alimentar por via oral. 2 A questão então se desloca para um interesse mais amplo, ou seja, saber se uma criança com grandes desafios funcionais será capaz de ir à escola, brincar com seus amigos, trabalhar e se envolver em atividades sociais. [3][4][5] A melhor forma de adquirir conhecimento sobre o desenvolvimento de crianças com PC é por meio de estudos longitudinais. 6 Esse conhecimento ajuda terapeutas e profissionais de saúde a determinar e explicar aos pais as possibilidades de abordagens de tratamento e a discutir questões relacionadas ao prognóstico. Uma parceria nesse processo deve começar assim que a criança for encaminhada para terapia ou para um programa especial de acompanhamento, onde a linguagem clara e o compartilhamento de informações devem ser usados em conjunto com os pais. 2,7-9 Assim, uma equipe clínica deve utilizar instrumentos padronizados (ou seja, medidas válidas e confiáveis) para avaliar a funcionalidade da criança e, quando apropriado, fornecer informações à família quanto ao prognóstico do desenvolvimento futuro. 9,10 Uma medida padronizada que avalia a atividade motora grossa e foi validada para medir a mudança ao longo do tempo ou em resposta a uma intervenção é a Gross Motor Function Measure -Medida da Função Motora Grossa

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“…16,48 These orthopaedic surgeons support that the best possible functional outcome is achieved before severe fixed muscle contractures and skeletal deformities are established, which are responsible for plateau or even falling of gross motor function level. 15,16,49 They also emphasise that the results of an orthopaedic surgery will be less effective, if this window of opportunity is lost and a complex decompensated joint-skeletal pathology has developed. 16 The delay in initiating orthopaedic surgery is usually mainly due to the reluctance of other paediatric specialists including physiotherapists and the family permitting earlier an orthopaedic surgery and solely exploring nonsurgical options.…”

Section: Selection Of An Appropriate Time For Orthopaedic Surgerymentioning

confidence: 99%

The orthopaedic aspect of spastic cerebral palsy

Skoutelis

Kanellopoulos

Kontogeorgakos

et al. 2020

Journal of Orthopaedics

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Longitudinal Change in Common Impairments in Children With Cerebral Palsy From Age 1.5 to 11 Years

Cited by 5 publications

References 36 publications

Development of children, adolescents, and young adults with cerebral palsy according to the ICF: A scoping review

Development of children, adolescents, and young adults with cerebral palsy according to the ICF: A scoping review

Desenvolvimento de crianças, adolescentes e jovens adultos com Paralisia Cerebral de acordo com a CIF? Uma revisão do escopo

The orthopaedic aspect of spastic cerebral palsy

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