Longitudinal Evaluation of a Pediatric Palliative Care Educational Workshop for Oncology Fellows

Gerhardt, Cynthia A.; Grollman, Jamie A.; Baughcum, Amy E.; Young‐Saleme, Tammi; Stefanik, Regina; Klopfenstein, Kathryn J.

doi:10.1089/jpm.2008.0285

Cited by 26 publications

(22 citation statements)

References 22 publications

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“…Recently, interventions and educational initiatives have aimed to improve medical communication, 34-36 but many healthcare providers still report they do not feel adequately prepared to give bad news, discuss end-of-life issues, or have conversations about sensitive topics with families. 8, 37 Hence, these areas of communication remain important topics for future research and clinical care.…”

Section: Discussionmentioning

confidence: 99%

Bereaved Parents and Siblings Offer Advice to Health Care Providers and Researchers

Steele

Kaal

Thompson

et al. 2013

Journal of Pediatric Hematology/Oncology

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116

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Objective To determine how to improve care for families by obtaining their advice to healthcare providers and researchers after a child’s death from cancer. Design Families with a surviving sibling (ages 8-17) were recruited from cancer registries at three hospitals in the United States and Canada 3-12 months (M = 10.4, SD = 3.5) after the child’s death. Setting Data were collected in the home. Participants Participants (N = 99) included 36 mothers, 24 fathers, and 39 siblings from 40 families. Outcome Measures Each participant completed a qualitative interview that was audio recorded, transcribed, and coded for thematic content. Findings Five major themes included the need for: (a) improved communication with the medical team, (b) more compassionate care, (c) increased access to resources, (d) ongoing research, as well as (e) offering praise. Interwoven within the five themes was a subtheme of continuity of care. Conclusions Many participants were pleased with the care the child with cancer received, but others noted areas in need of improvement, particularly medical communication and continuity of care. Additional research is needed to inform interventions to improve services for families of children with life-limiting conditions.

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Section: Discussionmentioning

confidence: 99%

Bereaved Parents and Siblings Offer Advice to Health Care Providers and Researchers

Steele

Kaal

Thompson

et al. 2013

Journal of Pediatric Hematology/Oncology

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116

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“…Our research has confirmed that oncologists are not well-trained to have these difficult EOL conversations, and ongoing education is needed to sustain knowledge of palliative care (Baughcum, Gerhardt, Young-Saleme, Stefanik, & Klopfenstein, 2007;Gerhardt et al, 2009). As a result, referrals to palliative care or hospice often occur late in the disease process or not at all.…”

Section: Mid-career: Pearl 5-network and Collaboratementioning

confidence: 58%

Commentary: Dennis D. Drotar Distinguished Research Award: Academic and Personal Reflections on Childhood Cancer Research Across the Illness Spectrum

Gerhardt

2016

J. Pediatr. Psychol.

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“…Of the total 97 articles on pediatric palliative care, there were 55 articles on clinicalpractice,[2022293335–404244–5052535557596063–6870747577808183–869295–100103106–110,112113] 8 articles on education,[30697376878890114] 7 articles on research,[2428435661104105] and 27 articles on administration. [212325–273132344151545862717278798289919394101102111115116] The relative reporting prevalence for the four categories is provided in Figure 5.…”

Section: Resultsmentioning

confidence: 99%

“…[2236384447495355678186929596109] There were six original articles[6973768790114] and two review articles[3088] among the eight articles on education, and two original articles,[56] and six review articles[24284361104105] among seven articles on research, respectively. Of the 27 articles on administration, there were 15 original articles[212358717278798294101102111115116] and 12 review articles.…”

Section: Resultsmentioning

confidence: 99%

“…There were 46 studies that used qualitative methods[212333373940424546485658–606364–66686971–73767879828388949799–103106107110111113–116] and 17 studies that used quantitative methods[202935525770747577808485879098108112] among the 63 original articles. Among the 34 review articles, 33 articles were narrative reviews[222425–2830–323436384143444749–5153–5561626781868991–939596104109] and 1 was a systematic review.…”

Section: Resultsmentioning

confidence: 99%

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Reporting of pediatric palliative care: A systematic review and quantitative analysis of research publications in palliative care journals

Kumar¹

2011

Indian J Palliat Care

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Context:Pediatric palliative care clinical practice depends upon an evidence-based decision-making process which in turn is based upon current research evidence.Aims:This study aimed to perform a quantitative analysis of research publications in palliative care journals for reporting characteristics of articles on pediatric palliative care.Settings and Design:This was a systematic review of palliative care journals.Materials and Methods:Twelve palliative care journals were searched for articles with “paediatric” or “children” in titles of the articles published from 2006 to 2010. The reporting rates of all journals were compared. The selected articles were categorized into practice, education, research, and administration, and subsequently grouped into original and review articles. The original articles were subgrouped into qualitative and quantitative studies, and the review articles were grouped into narrative and systematic reviews. Each subgroup of original articles’ category was further classified according to study designs.Statistical Analysis Used:Descriptive analysis using frequencies and percentiles was done using SPSS for Windows, version 11.5.Results:The overall reporting rate among all journals was 2.66% (97/3634), and Journal of Hospice and Palliative Nursing (JHPN) had the highest reporting rate of 12.5% (1/8), followed by Journal of Social Work in End-of-Life and Palliative Care (JSWELPC) with a rate of 7.5% (5/66), and Journal of Palliative Care (JPC) with a rate of 5.33% (11/206).Conclusions:The overall reporting rate for pediatric palliative care articles in palliative care journals was very low and there were no randomized clinical trials and systematic reviews found. The study findings indicate a lack of adequate evidence base for pediatric palliative care.

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Longitudinal Evaluation of a Pediatric Palliative Care Educational Workshop for Oncology Fellows

Cited by 26 publications

References 22 publications

Bereaved Parents and Siblings Offer Advice to Health Care Providers and Researchers

Bereaved Parents and Siblings Offer Advice to Health Care Providers and Researchers

Commentary: Dennis D. Drotar Distinguished Research Award: Academic and Personal Reflections on Childhood Cancer Research Across the Illness Spectrum

Reporting of pediatric palliative care: A systematic review and quantitative analysis of research publications in palliative care journals

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