Low Back Pain in Adult Female Caregivers of Children With Physical Disabilities

Tong, Henry C.; Haig, Andrew J.; Nelson, Virginia S.; Yamakawa, Karen; Kandala, Geeta; Shin, Ki Y.

doi:10.1001/archpedi.157.11.1128

Cited by 81 publications

(66 citation statements)

References 22 publications

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“…La percepción subjetiva sobre su estado de salud se ha centrado sobre todo en la existencia de limitaciones físicas por el peso del niño, así como por una mayor sensibilidad a enfermedades, lo que concuerda con estudios como el de Tong y col 24 donde se señalaba la mayor probabilidad de las madres de estos niños de padecer dolores a nivel dorsal.…”

Section: Discussionunclassified

Experiencias y cambios en los padres de niños con parálisis cerebral infantil: estudio cualitativo

Fernández‐Alcántara

García‐Caro

Berrocal-Castellano³

et al. 2013

Anales Sis San Navarra

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RESUMENFundamento. El diagnóstico de parálisis cerebral infantil (PCI) supone un evento de carácter traumático que puede provocar una multitud de efectos y cambios en el entorno familiar. Se pretende conocer cuáles son las principales dificultades que encuentran los padres en el proceso de parentalidad, especialmente en los primeros momentos tras el diagnóstico.Método. Se realizó un estudio fenomenológico de carácter cualitativo a través de entrevistas semi-estructuradas. Participaron 16 padres y madres cuyos hijos estaban diagnosticados de PCI. El análisis de los datos se llevó a cabo con el software Atlas.ti6.2 a través de una codificación abierta.Resultados. La recepción de la noticia es percibida como un acontecimiento inesperado que obliga a restructurar las expectativas con respecto a su hijo. La forma de relacionarse con el hijo con PCI es diferente a la que se establece con otros niños, centrándose sobre todo en las posibilidades de mejora y en la evolución de su hijo en el futuro. Se observan cambios en diferentes aspectos de la vida de estos padres como el tiempo, la situación económica y laboral, así como las relaciones de pareja. Conclusiones.En la atención a niños con PCI es necesario incorporar y tomar en cuenta la problemática de los padres, especialmente en los primeros momentos del diagnóstico. El proceso de crianza de un hijo con PCI conlleva un gran número de cambios en la dinámica familiar por lo que se necesita abordarlos mediante una perspectiva global. ABSTRACTBackground. The diagnosis of infant cerebral palsy (ICP) is a traumatic event that can provoke multiple effects and changes in the family. The aim of the study is to discover the difficulties that parents face in the process of parenting, especially in the initial period following diagnosis.

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Section: Discussionunclassified

Experiencias y cambios en los padres de niños con parálisis cerebral infantil: estudio cualitativo

Fernández‐Alcántara

García‐Caro

Berrocal-Castellano³

et al. 2013

Anales Sis San Navarra

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“…So far, many studies have mainly focused on psychological health of caregivers. Studies of the physical health effects are less conclusive but suggest increased physical vulnerability [54][55][56]. Thus, it is desirable to adhere to a broadly defined HRQoL measure, without eliminating any domains in advance.…”

Section: Discussionmentioning

confidence: 99%

A reverse engineering approach for automatic annotation of Web pages

Virgilio

Frăsincar

Hop

et al. 2011

Multimed Tools Appl

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Purpose Relatively few attempts to measure the effects on the health-related quality of life (HRQoL) of informal caregivers within the context of economic evaluations have been reported. This paper is an exploratory attempt to find suitable methods to assess caregivers' HRQoL, using a population of parents of children with major congenital anomalies. Methods A total of 306 parents of children born with either congenital anorectal malformations (ARM) or congenital diaphragmatic hernia were surveyed. They rated their current HRQoL on the EQ-VAS. After that, they rated their HRQoL again on the assumption that someone would take over their caregiving activities completely and free of charge. Finally, the parents classified their HRQoL on the EQ-5D. The caregivers' scores on the EQ-VAS and the EQ-5D were compared with scores elicited in the general population.

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“…37 For example, in 1 study, more than 70% of mothers of children with physical disabilities reported low back pain. 38 When the health of parents or caregivers is compromised, outcomes for their children with CP might suffer. Pediatricians should provide family-centered care for children with CP and their families, because such care reduces stress and enhances parental well-being.…”

Section: Family Supportmentioning

confidence: 99%

Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy

Liptak¹,

Murphy²

2011

Pediatrics

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All primary care providers will care for children with cerebral palsy in their practice. In addition to well-child and acute illness care, the role of the medical home in the management of these children includes diagnosis, planning for interventions, authorizing treatments, and follow-up. Optimizing health and well-being for children with cerebral palsy and their families entails family-centered care provided in the medical home; comanagement is the most common model. This report reviews the aspects of care specific to cerebral palsy that a medical home should provide beyond the routine health care needed by all children.

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Low Back Pain in Adult Female Caregivers of Children With Physical Disabilities

Cited by 81 publications

References 22 publications

Experiencias y cambios en los padres de niños con parálisis cerebral infantil: estudio cualitativo

Experiencias y cambios en los padres de niños con parálisis cerebral infantil: estudio cualitativo

A reverse engineering approach for automatic annotation of Web pages

Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy

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