‘Making the best of things’: relatives' experiences of decisions about care-home entry

Davies, Sue; Nolan, Mike

doi:10.1017/s0144686x03001259

Cited by 82 publications

(113 citation statements)

References 40 publications

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“…Indeed, several participants indicated that the research interview was the first time they had discussed their feelings. The participants in this study felt that they were under pressure, had inadequate information, felt that things were out of their control and that they were working in opposition to health and social care staff (Davies & Nolan, 2003).…”

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

“…These distinct stages were 'making the best of it' , 'making the move' and 'making it better' . Davies & Nolan (2003) found that in more than half of the cases (i.e. 19 cases or more) it was the primary carer who had to make the final decision in relation to placement.…”

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

“…Larkin's (2009) model focuses exclusively on post-caring after the care receiver has died. Conversely, the Davies & Nolan (2003; model outlines stages experienced by carers after their care receiver has been placed in a care facility. The present study incorporates both understandings of the postcaring/care transitions experience and examines life before post-caring/care transitions among carers largely for whom the care receiver has died.…”

Section: Background To the Studymentioning

confidence: 99%

“…These include two theoretical frameworks in relation to the post-caring/care transitions phase (Davies & Nolan, 2003;Larkin, 2009). …”

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

“…It could be postulated that this is an overly optimistic view of the experience of former carers. Davies & Nolan (2003; conducted 37 semi-structured interviews involving 48 people who had assisted a close relative to move onto a care home. Eleven of the interviews involved two members of the same family.…”

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

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Between worlds: the experiences and needs of former family carers

Cronin

Hynes

Breen

et al. 2014

Health Soc Care Community

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While the financial, physical and psycho‐social burden for caregivers is recorded, less is known about the post‐caring experience. The purpose of this qualitative descriptive study was to explore the experiences and needs of Irish former family carers in the post‐caring/care transitions period. Former family carers were defined as family members who provided physical and/or social care to a family member with an illness or disability in the home for at least 6 months prior to nursing home/hospice placement or death. A total of 40 family carers were recruited from members of or known to voluntary care groups/associations in Ireland. Fourteen participants took part in a focus group discussion and 26 participated in one‐to‐one, semi‐structured interviews, all of which were undertaken in 2010. The focus group discussion focused on gaining a broad understanding of the participants' post‐caring experiences and the emergent themes formed the basis for the development of a semi‐structured interview guide. Data from the focus group were analysed inductively using Creswell's qualitative analysis framework, while template analysis was the method of analysis for the 26 individual interviews. For the participants in this study, post‐caring was a transition that comprised three, interrelated, non‐linear, iterative themes that were represented as ‘loss of the caring world’, ‘living in loss’ and ‘moving on’ and symbolised as being ‘between worlds’. Transition was a complex interplay of emotions overlaid with economic and social concerns that had implications for their sense of health and well‐being. This exploratory study begins to address the dearth of data on post‐caring/care experiences, but further research is needed to inform support interventions to enable former family carers to ‘move on’.

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Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

Section: Background To the Studymentioning

confidence: 99%

“…These include two theoretical frameworks in relation to the post-caring/care transitions phase (Davies & Nolan, 2003;Larkin, 2009). …”

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

See 3 more Smart Citations

Between worlds: the experiences and needs of former family carers

Cronin

Hynes

Breen

et al. 2014

Health Soc Care Community

View full text Add to dashboard Cite

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Loss and grief: The experience of transition to residential aged care

Zizzo

Mackenzie

Irizarry

et al. 2020

Aust J Social Issues

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There is growing recognition of the experience of non‐death‐related loss and grief. One unexplored area of non‐death‐related loss and grief is associated with older people’s transition from home to residential aged care (RAC). This paper reports findings from a qualitative study that explored the experiences of people living in RAC, carer‐relatives of people living in RAC and RAC staff. Using theories of loss and grief, the paper identifies features of the transition to RAC that are associated with unresolved loss and maladaptation to changed circumstances, and the types of support that would mitigate these. Using a series of focus groups with both residents and carer‐relatives, as well as staff, the study found that residents and their families need more support to negotiate the multiple, often necessarily hasty decisions and bureaucratic requirements associated with transitioning to RAC, while simultaneously experiencing loss and grief. The types of support that families would welcome from service providers include facilitating shared decision making, valuing family and community carer expertise and providing practical information and assistance to fulfil administrative obligations.

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