Maternal factors related to parenting young children with congenital heart disease

Informational needs in families after their child's mild head injury

“…In attempt to ameliorate these types of feelings, the informational needs of parents whose children are hospitalized have been explored by several investigators [1,[3][4][5][6]. As early as 1982, Brewster [6] concluded that access to information is one of the most valuable factors in helping parents to cope with such a situation [7,8]. In addition, Taanila [9] reported that feelings of insecurity and helplessness are five times more common among parents who receive little information and practical advice on how to care for a sick child at home than among those who are provided with appropriate instructions and advice.…”

Effect of cardiac surgery in young children with congenital heart disease on parenting stress in central South Africa: Initial outcomes

“…(7,15,17,38,39) The PSI-SF has been used in several studies to determine parenting stress in children with CHD, and has been found to be a valid and reliable measure. (19,20,21,23,34,41) The PSI-SF has also been shown to have good test-retest reliability with Pearson correlations of .84 for total stress scores, and .68 -.85 for the subscale scores. (40) Sociodemographic information including maternal age, parental educational attainment and occupational status was collected using a self-developed questionnaire.…”

“…(25) Accessing and complying with cardiac care is challenged in employed parents who may stand to lose income due to the frequent and sometimes extended periods of time needed off work in order to meet their child's care needs. (25,41,(46)(47)(48) A family's ability to come to terms with their child's cardiac diagnosis, and to then make the necessary lifestyle adjustments it demands, plays an important role in the outcome of the child with CHD, (1,7,15,38,39) currently driving interest into the impact of a child's CHD on parents' psychological health and parenting experiences. (2,5,12,26) The aim of this study was to determine stress in parents of children with CHD who had undergone cardiac surgery in central South Africa.…”

Transição para a parentalidade no contexto de cardiopatia congênita do bebê

“…Os estudos internacionais também têm como foco a adaptação dos genitores ao nascimento da criança com deficiência, incluindo a malformação cardíaca (Pelchalt et al, 1999), a qualidade de vida (Goldbeck & Melches, 2005;Wray & Maynard, 2004), a percepção e entendimento dos genitores sobre a malformação (Cheuk, Wong, Choi, Chau, & Cheung, 2006;Lok & Menahem, 2004), práticas maternas (Carey, Nicholson, & Fox, 2002), estresse (Uzark & Jones, 2003), o papel do enfermeiro, enquanto provedor de apoio a famílias com crianças com cardiopatia (Griffin, 2002). O crescente número de pesquisas sobre relações familiares no contexto de cardiopatia congênita demonstra que esta é uma temática que tem despertado o interesse de profissionais de diversas áreas.…”