Mealtime interactions in families of a child with cystic fibrosis: A meta-analysis

Abstract

Findings suggest that future interventions should focus on the broader family context as well as behaviors specific to feeding.

The natural history and predictors of persistent problem behaviours in cystic fibrosis: a multicentre, prospective study

“…In healthy populations, parenting and behavioural interventions have been shown to effectively reduce specific behaviour problems including sleep,28 29 and externalising and internalising behaviours 30. Educational and behavioural interventions for caregivers and children with CF have also shown benefits in decreasing child problematic eating and increasing caloric intake and weight status 6 31. Given the prevalence and persistence of the problem behaviours in children with CF, there is an urgent need to assess and offer such interventions to families.…”

“…There is a growing interest in the relationships between behaviour problems, clinical management and child health outcomes in children with chronic illness, including CF 6 7. Common behavioural problems in children with CF include eating/mealtime behaviours and treatment adherence difficulties, particularly with regular airway clearance 8–14…”

Malnutrition in Cystic Fibrosis

“…Patients with CF also lose energy by not taking advantage of meal and snack times. Some studies imply the constant focus on caloric intake make meal and snack times stressful, which actually results in decreased intake 32 . It has been observed that parents of children with CF describe meal times as a battleground and diet has been cited as one of the least adhered to pieces of CF treatment, particularly for young children 33 , 34 .…”

The Caregiving Experiences of Fathers and Mothers of Children With Rare Diseases in Italy: Challenges and Social Support Perceptions

“…Nonetheless, these diseases have a considerable impact on the quality of life of not only patients but also their main caregivers, who can perceive a very deleterious impact on their social, professional and family life (Michalík, 2014; Tejada-Ortigosa et al, 2019). As is the case with most childhood chronic conditions, rare diseases impact the whole family, especially with respect to normal family routines that serve an important scaffolding function for the well-being of children (Emiliani et al, 2010; Hammons and Fiese, 2010; Migliorini et al, 2011, 2016; Potì et al, 2018) as well as with respect to increases in the family’s financial burden (Dogba et al, 2013). For these reasons, the need to adopt a family centered approach to children’s chronic conditions has been repeatedly emphasized (American Academy of Pediatrics [AAP], 2003; Migliorini and Rania, 2016).…”