Measuring quality of life in children with asthma

Juniper, Elizabeth F.; Guyatt, Gordon; Feeny, David; Ferrie, Penelope J.; Griffith, Lauren; Townsend, Marie

doi:10.1007/bf00435967

Cited by 985 publications

(799 citation statements)

References 16 publications

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“…Low self-esteem also co-occurred with poor QoL in studies with adults [8] and presence of a chronic physical disease has been associated with poor QoL in children [49]. Intelligence was not correlated with poor QoL.…”

Section: Child Characteristicsmentioning

confidence: 87%

Determinants of quality of life in children with psychiatric disorders

2005

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Objective: To assess factors that, in addition to childhood psychopathology, are associated with Quality of Life (QoL) in children with psychiatric problems. Methods: In a referred sample of 252 8 to 18-year-olds, information concerning QoL, psychopathology and a broad range of child, parent, and family/ social network factors was obtained from children, parents, teachers and clinicians. Results: Poor child, parent, and clinician reported QoL was associated with child psychopathology, but given the presence of psychopathology, also with child factors, such as low self-esteem, and poor social skills, and family/social network factors, such as poor family functioning, and poor social support. In multiple linear regression analyses the importance of parent factors, such as parenting stress, was almost negligible. Conclusion: To increase QoL of children with psychiatric problems, treatment of symptoms is important, but outcome might improve if treatment is also focussed on other factors that may affect QoL. Results are discussed in relation to current treatment programs.

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Section: Child Characteristicsmentioning

confidence: 87%

Determinants of quality of life in children with psychiatric disorders

2005

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“…11 Children were asked to recall impairments they experienced the last week; for instance, ''How much did wheezing bother you during the past week?'' Scores range from 1 to 7, with 7 indicative of maximal quality of life.…”

Section: Quality Of Lifementioning

confidence: 99%

Excessive body weight is associated with additional loss of quality of life in children with asthma

Gent

Ent

Rovers

et al. 2007

Journal of Allergy and Clinical Immunology

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Excessive body weight is associated with additional loss of quality of life in children with asthma van Gent, R.; van der Ent, C.K.; Rovers, M.M.; Kimpen, J.L.L.; Essen-Zandvliet, L.E.M.; de Meer, G. Take-down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim.Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum. Background: Asthma and excessive body weight frequently coexist, whereas the exact relationship between the 2 diseases is unknown. Objective: To study whether asthma combined with excessive body weight has a greater effect on quality of life in children than the separate effects of asthma or excessive body weight alone. Methods: In a cross-sectional design, 1758 school children (age 7-10 years) participated: 4 study groups were composed of children with asthma and with/without excessive body weight, and healthy controls with/without excessive body weight. Diagnosis of asthma was defined by either a doctor's diagnosis or by core questions of the International Study of Asthma and Allergies in Childhood questionnaire in combination with either reversible airway obstruction or bronchial hyperresponsiveness. Excessive body weight was defined by using international cutoff points for body mass index. Quality of life was evaluated by the Pediatric Asthma Quality of Life Questionnaire. Results: For all domains of quality of life, children with both asthma and excessive body weight had lower scores than children with either asthma alone or excessive body weight alone. Compared with healthy controls, the score was 25% lower in children with asthma and excessive body weight, 14% lower in children with asthma and normal weight, and only 1% lower in overweight controls. Conclusion: Excessive body weight is associated with an additional decrease in quality of life in children with asthma. Clinical implications: Clinicians should be aware of the interaction between asthma and excessive body weight and the effect on quality of life and should give extra attention to children with both conditions. (J Allergy Clin Immunol 2007;119:591-6.)

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“…The PAQLQ, developed by Juniper and colleagues (Juniper et al, 1996;Juniper, Guyatt, Feeny, Griffith, & Ferrie, 1997;Juniper, O'Byrne, Guyatt, Ferrie, & King, 1999) is a disease-specific HRQOL instrument for children with asthma that has been widely used in clinical trials. The PedsQL ™ Core and Asthma Modules developed by Dr. James W. Varni are generic and disease-specific health status instruments, respectively that measure HRQOL in children with documented reliability and validity (Chan, Mangione-Smith, Burwinkle, Rosen, & Varni, 2005;Varni, Burwinkle, Rapoff, Kamps, & Olson, 2004;Varni, Seid, Knight, Uzark, & Szer, 2002;Varni, Seid, & Kurtin, 2001).…”

Section: Data Collectionmentioning

confidence: 99%

A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma

Ungar

Mirabelli

Cousins

et al. 2006

Social Science & Medicine

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The measurement of health-related quality of life (HRQOL) in children often relies on parents as proxy respondents. Yet, several studies have shown poor to moderate correlations between parent and child responses, questioning the validity of the parent as proxy. This qualitative study examined a dyad approach, where parent and child were interviewed together. The objective was to observe and describe the interaction in a dyad interview, wherein both parent and child perspectives are used and where the parent may expand the child's cognitive abilities to create a more meaningful description of the child's HRQOL. Children aged 8-15 years with a clinical diagnosis of asthma and their primary caregivers were recruited from The Hospital for Sick Children, Toronto, Canada. The dyads were administered the Health Utilities Index Mark II/III, the Pediatric Asthma Quality of Life Questionnaire and the PedsQL ™ Pediatric Quality of Life Inventory. Interviews were audio-taped and a second researcher recorded observations. Consistent with Grounded Theory methodology, observations were indexed according to categories and subcategories related to the response process. Data were analysed using open, axial and selective coding and constant comparison. Saturation was achieved at 16 dyad interviews. A cultural review and reflexive role taking were included to minimize interviewer bias and enhance rigour. Findings were grouped in the following 11 themes: recall difficulty, respondent bias, interviewer bias, frustration, coercion/parental influence, inter-relational conflict, psychic discomfort for health states, emotional sensitivity, parent as advocate, parent as enabler and comprehension. The specification of these categories facilitated the creation of an interview guide to accompany the administration of standardized HRQOL questionnaires to parent-child dyads. Such a guide would facilitate discussion between parent and child and enhance the consistency of the interview process.

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Measuring quality of life in children with asthma

Cited by 985 publications

References 16 publications

Determinants of quality of life in children with psychiatric disorders

Determinants of quality of life in children with psychiatric disorders

Excessive body weight is associated with additional loss of quality of life in children with asthma

A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma

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