Measuring quality of life

Jenney, Meriel; Campbell, Stephen

doi:10.1136/adc.77.4.347

Cited by 229 publications

(93 citation statements)

References 19 publications

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“…293,294 Patient-based outcome measures can contribute to the evaluation of the quality of health care and the performance of health professionals 295 play a role in consumer involvement in the wider health services research agenda. 296 Generic instruments for measuring patient-based outcomes can be divided into those that are not preference-based (quality of life, health profiles or health status measures) and preference-based measures (including utilities).…”

Section: Patient-based Outcome Measures For Childrenmentioning

confidence: 99%

“…308,317 Emphasis is now being placed on the preferences of patients, their perception of their own health and the impact of treatment. 295 Shared decisions, usually made in the context of one individual child, may be made at times of medical emergency, after receiving a screening result or to decide the appropriate timing of elective surgery. There may be no clear discussion of the differences that might exist between parent and professional values at the time of decision-making.…”

Section: Shared Clinical Decision-makingmentioning

confidence: 99%

See 1 more Smart Citation

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis

Knowles¹,

Griebsch²,

Dezateux

et al. 2005

Health Technol Assess

214

143

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Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per monograph and for the rest of the world £3 per monograph.You can order HTA monographs from our Despatch Agents:-fax (with credit card or official purchase order) -post (with credit card or official purchase order or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you either to pay securely by credit card or to print out your order and then post or fax it. NHS libraries can subscribe free of charge. Public libraries can subscribe at a very reduced cost of £100 for each volume (normally comprising 30-40 titles). The commercial subscription rate is £300 per volume. Please see our website for details. Subscriptions can only be purchased for the current or forthcoming volume. Contact details are as follows: Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to Direct Mail Works Ltd and drawn on a bank with a UK address. Paying by credit cardThe following cards are accepted by phone, fax, post or via the website ordering pages: Delta, Eurocard, Mastercard, Solo, Switch and Visa. We advise against sending credit card details in a plain email. Paying by official purchase orderYou can post or fax these, but they must be from public bodies (i.e. NHS or universities) within the UK. We cannot at present accept purchase orders from commercial companies or from outside the UK. How do I get a copy of HTA on CD?Please use the form on the HTA website (www.hta.ac.uk/htacd.htm). Or contact Direct Mail Works (see contact details above) by email, post, fax or phone. HTA on CD is currently free of charge worldwide.The website also provides information about the HTA Programme and lists the membership of the various committees. HTANewborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis NHS R&D HTA ProgrammeT he research findings from the NHS R&D Health Technology Assessment (HTA) Programme directly influence key decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC) who rely on HTA outputs to help raise standards of care. HTA findings also help to improve the quality of the service in the NHS indirectly in that they form a key component of the 'National Knowledge Service' that is being developed to improve the evidence of clinical practice throughout the NHS.The HTA Programme was set up in 1993. Its role is to ensure that high-quality research information on the costs, effectiveness and broader impact of health technologies is produced in the most efficient way for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined to include all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care, rather than settings of care.The HTA Programme commissions research only on topics where it has identified key gaps in the evi...

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Section: Patient-based Outcome Measures For Childrenmentioning

confidence: 99%

Section: Shared Clinical Decision-makingmentioning

confidence: 99%

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis

Knowles¹,

Griebsch²,

Dezateux

et al. 2005

Health Technol Assess

214

143

View full text Add to dashboard Cite

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“…Otitis media (OM) is one of the most common disorders in childhood [1][2][3] and may have a considerable impact on health-related quality of life (HRQoL) [4][5][6] and functional health status (FHS) of children and their caregivers [7][8][9][10][11][12][13][14][15][16][17][18][19][20]. Whereas functional health status reflects the physical, psychological or emotional and social functioning of a child, health-related quality of life adds a valuation or affective response to this functioning.…”

Section: Introductionmentioning

confidence: 99%

Health-related quality of life in children with otitis media

Brouwer

Maillé

Rovers

et al. 2005

International Journal of Pediatric Otorhinolaryngology

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SummaryBackground: Growing interest in health-related quality of life (HRQoL) in children with otitis media has brought the need to study the currently available HRQoL instruments with respect to their results and their applicability in clinical practice and research of otitis media. Objective: To review existing literature on health-related quality of life research in children with otitis media with respect to: (1) the measured impact of otitis media on HRQoL; and (2) the applicability of HRQoL instruments used in research and clinical practice based on their characteristics and contents.

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“…A self-completed mailed questionnaire is also cost-effective but less reliable, and the response rates are lower than with other modes of administration. 142 Telephone interviews achieve a higher compliance than mailed questionnaires, but the validity is questionable in young children. Face-to-face interviews are the most costly, but compliance is greater and the data are more reliable.…”

Section: Practical Considerationsmentioning

confidence: 99%

Follow-up Care of High-Risk Infants

2004

Pediatrics

116

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There are currently no standardized guidelines for provision of follow-up services for high-risk infants in tertiary care centers despite the requirement for follow-up clinic experience in the 97 approved neonatal fellowship training programs in the United States and the increasing number of centers participating in multicenter networks. As the total number of survivors at risk for neurodevelopmental morbidities increases, many clinical research questions have surfaced that can only be answered by long-term follow-up studies. There is increasing awareness of the importance of long-term outcome in randomized, controlled trials, because perinatal interventions may dramatically alter later growth and development. There is also an increased recognition of the potential disconnect between perinatal outcomes and long-term outcomes. The administration of oxygen and postnatal steroids are prime examples of interventions that may have immediate positive effects but negative long-term effects. In addition, multicenter studies have identified significant center differences in the management and developmental outcome of high-risk infants. These findings led to the recognition of the need to improve standardization and comparability of methodology and data collection within and among centers and networks as a first step toward research to improve the long-term neurodevelopmental outcome of high-risk infants. The workshop participants met to define optimal methods to assess the outcome of high-risk infants, identify gaps in knowledge about the neurodevelopmental outcome of high-risk infants, and prioritize research efforts in response to these gaps.

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Measuring quality of life

Cited by 229 publications

References 19 publications

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis

Health-related quality of life in children with otitis media

Follow-up Care of High-Risk Infants

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