Medication Knowledge

Fishman, Laurie N.; Houtman, D.; Groningen, Julia van; Arnold, Janis; Ziniel, Sonja

doi:10.1097/mpg.0b013e3182285316

Cited by 28 publications

(18 citation statements)

References 19 publications

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“…The panel acknowledged that introducing knowledge of drug side effects may increase anxiety and reduce treatment adherence. 52,53 Steroid use is still an important therapeutic modality but this item skews results towards those prescribed them and, therefore, may be aware of side effects.…”

Section: Discussionmentioning

confidence: 99%

Response pattern analysis of IBD‐KID: A knowledge assessment tool for children with inflammatory bowel disease

Vernon‐Roberts

Otley

Frampton

et al. 2019

J Paediatrics Child Health

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Aim: Paediatric inflammatory bowel disease (IBD) is a chronic relapsing condition requiring adherence to complex treatment regimens to achieve best outcomes. Adherence is frequently low in this population but can be improved by increasing disease-and treatment-related knowledge. The IBD-knowledge inventory device (IBD-KID) is a knowledge assessment tool specifically developed and validated for children with IBD. To analyse IBD-KID participant response patterns in order to review the strength of the tool. Methods: A cohort of children with IBD completed IBD-KID, and their responses were used to assess the tool's validity and feasibility. Item response analysis assessed the item difficulty and the ability of items to discriminate between high/low scorers. The analysis considered item structure, readability and the effectiveness of multiple choice items. Results: A total of 105 completed IBD-KID assessments showed that 12 items (52%) had an acceptable difficulty level, and 17 (74%) were effective at discriminating between high/low scorers. Nine (61%) had good readability, but comprehension levels ranged from 5 to 18 years. Seven (30%) had elevated 'don't know' responses, highlighting the need for content and construction review. Of the 10 multiple choice items, 9 were complex and not functioning efficiently. Internal consistency was acceptable but could be improved by removing two items. Conclusions: The response analysis metrics were reviewed by an expert panel and provided a framework for IBD-KID improvements with the aim of increasing discrimination and reducing difficulty without adversely affecting reliability. The proposed revisions will address components that may have caused children to answer incorrectly due to confusion rather than lack of knowledge. Knowledge tool response pattern analysis A Vernon-Roberts et al.

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Section: Discussionmentioning

confidence: 99%

Response pattern analysis of IBD‐KID: A knowledge assessment tool for children with inflammatory bowel disease

Vernon‐Roberts

Otley

Frampton

et al. 2019

J Paediatrics Child Health

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“…This adolescent survey has been administered to over 400 youth with IBD ages 10–22 to evaluate medication knowledge and self-management skills in an outpatient setting [9,10]. The survey was minimally changed for adults in this study by substituting “my spouse, parent, significant other” for “my parent.”…”

Section: Methodsmentioning

confidence: 99%

Are Expectations Too High for Transitioning Adolescents With Inflammatory Bowel Disease? Examining Adult Medication Knowledge and Self‐Management Skills

Fishman

Mitchell

Lakin

et al. 2016

J. pediatr. gastroenterol. nutr.

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Objective Transition readiness assessment has focused attention on adolescent knowledge and skills, but data-driven benchmarks have not been established. Methods Patients with IBD, aged 25–55 years, attending an outpatient gastroenterology clinic, were recruited to complete a voluntary, confidential survey asking patients to recall medications and potential side effects, and to rate their degree of independence performing health maintenance tasks. Results The 141 respondents (48% response rate) had mean age of 36 years with median disease duration of 11 years. They were 60% female, 54% had Crohn’s disease, and 23% were diagnosed before age 18. Nearly all patients were fully independent answering doctor’s questions during the visit (93%) and scheduling office visits (92%). Excluding pharmacy pick up, full independence seen in only 57%, while 16% significantly delegated tasks. No differences by gender, disease type, medication class, age at disease onset, or disease duration were found across levels of self-management. Almost all (97%) respondents could recall medication name, while fewer were able to recall dose (63%) or frequency (65%). Side effect knowledge was poor; among 81 patients on a biologic or immunomodulator, only 17 (21%) cited cancer and 22 (27%) cited infection. Conclusions Adolescent IBD transition programs now have empiric data from this study about adult benchmarks for independence in self-management skills. Further research can establish which skills correlate with medication adherence and active collaboration with the medical team. This study also exposes important gaps in medication risk knowledge and may allow improved patient education for subgroups of adult IBD patients.

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“…AYP are successful at recalling IBD medications, but are less able to recall dosages and adverse effects of their medications, which does improve with age46 but not disease duration 47. Most AYP are able to name their disease and describe it to a friend 48.…”

Section: Monitoring Ibd-specific Knowledge and Self-management Skillsmentioning

confidence: 99%

Monitoring adolescents and young people with inflammatory bowel disease during transition to adult healthcare

Brooks

Smith

Lindsay

2017

Frontline Gastroenterol

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The transition of adolescents and young people (AYP) with inflammatory bowel disease (IBD) from paediatric to adult healthcare requires coordination between healthcare care providers to achieve optimum outcomes. Transition into adulthood is a time of major challenges physically, developmentally, emotionally and psychosocially for AYP living with IBD. Healthcare professionals must monitor the AYP progress proactively with attention to each of these parameters throughout the transition period to ensure that milestones are attained, and skills for self-management are formed. Thus, achieving the desired goals in both clinical and pastoral areas requires intensive monitoring from a multidisciplinary team across healthcare providers.

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Medication Knowledge

Cited by 28 publications

References 19 publications

Response pattern analysis of IBD‐KID: A knowledge assessment tool for children with inflammatory bowel disease

Response pattern analysis of IBD‐KID: A knowledge assessment tool for children with inflammatory bowel disease

Are Expectations Too High for Transitioning Adolescents With Inflammatory Bowel Disease? Examining Adult Medication Knowledge and Self‐Management Skills

Monitoring adolescents and young people with inflammatory bowel disease during transition to adult healthcare

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