Meeting the Demands of Work and Responsibilities of Caring for a Child With Asthma: Consequences for Caregiver Well-Being

Gates, Lauren B.; Akabas, Sheila H.

doi:10.1080/01488376.2012.709481

Cited by 16 publications

(20 citation statements)

References 46 publications

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“…Only three studies specifically focused on well‐being as an outcome for working parents of children with chronic illness. Gates and Akabas () explored work–caregiving conflicts in single parents who had children with asthma and worked in a unionized hospital setting. QoL, depressive symptoms, caregiving's positive impact, caregiving burden, and work–caregiving conflict were measured.…”

Section: Resultsmentioning

confidence: 99%

“…Of the remaining 10, 8 were solely quantitative (e.g., survey/questionnaire based), whereas 2 used a mixed method approach. The studies included mothers and/or fathers of Australian, Dutch, American, or Swedish children, ranging in sample size from small (N = 9) to large (N = 1,431) and the type of illness-diabetes (Hatzmann, Peek, Heymans, Maurice-Stam, & Grootenhuis, 2014;Lange et al, 2004;Songer, LaPorte, Lave, Dorman, & Becker, 1997;Spencer, 2014), asthma (Baydar et al, 2007;Gates & Akabas, 2012;Gustafsson et al, 2002;Spencer, 2014;Timmermans & Freidin, 2007) or eczema (Spencer, 2014), as well as cerebral palsy, muscular dystrophy, and spina bifida (Hatzmann et al, 2014). The main focus of each of these studies varied.…”

Section: Search Strategymentioning

confidence: 99%

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Working and caring for a child with chronic illness: A review of current literature

Kish

Newcombe

Haslam

2018

Child

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This review summarizes what is currently known about work patterns, challenges, and consequences in parents of children with chronic conditions. Employment is clearly impacted for these parents. Although workplace challenges have been extensively researched, other challenges (eg, personal and family) and impacts on their well-being have not. This review discusses the present standing of this research. It outlines the strengths and limitations of the current literature, makes recommendations for future research, and suggests theoretical and practical implications of the further findings.

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Section: Resultsmentioning

confidence: 99%

Section: Search Strategymentioning

confidence: 99%

Working and caring for a child with chronic illness: A review of current literature

Kish

Newcombe

Haslam

2018

Child

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“…Hence, in attempts to control their child's symptoms, they engage in a variety of asthma management activities, including complying with medical treatments [7], monitoring their children's symptoms, and coordinating family routines to avoid environmental triggers [8]. This creates daily routines that may be complex and are burdensome [8][9][10].…”

Section: Introductionmentioning

confidence: 99%

When Control Exacerbates Distress: A Qualitative Study Exploring the Experiences of Hong Kong Chinese Parents in Caring for a Child with Asthma

Chong¹,

Leung²,

Mak³

2018

Preprint

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Many parents have difficulty managing childhood asthma. In Hong Kong (HK), while medication is the primary form of treatment, traditional Chinese medicine is another favored option. In addition, HK follows a dual-track healthcare system, which may pose unique experiences for Chinese parents in childhood asthma management. This qualitative descriptive study aimed to explore the experiences of HK Chinese parents in caring for their children with asthma. Methods: Fourteen HK Chinese mothers of children (aged 3-10) suffering from asthma were purposively sampled to participate in individual, semi-structured interviews. A realist approach following conventional content analysis was used to interpret the interviews. Results: The mothers expressed feelings of uncertainty, fear of asthma crises, and searching for ways to cope. These feelings triggered various strategies to control their child’s asthma. As long as the child’s asthma symptoms recurred, the mothers’ distress continued. Their distress was sometimes exacerbated by self-doubt and worries about whether they would receive adequate support from their family and healthcare professionals. Conclusion: Helping parents to understand their limits may help them be more open to varied aspects of their caregiving experiences, and thus to cope better. Psychological interventions together traditional educational training may help to alleviate parents’ psychological difficulties.

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“…In a recent study, the experience of uplifts tended to be more frequent in parents of children when compared to parents of adolescents in both groups of parents who had a child with a disability or a typically developing child, and caregiving uplifts were linked to the psychosocial QoL outcomes of parents of a child with a disability (Carona, Pereira, et al, 2013). The experience of caregiving uplifts has been also observed for parents of children with asthma, who tended to acknowledge positive gain from caregiving, such as personal growth from assuming a caregiver role (Gates & Akabas, 2012). Nevertheless, even with promising data on the beneficial effects of caregiving uplifts on parental adaptation, the mechanisms underlying these pathways have not been ascertained.…”

Section: Palavras-chave-mentioning

confidence: 78%

Parental Positive Meaning-Making When Caregiving for Children With Asthma

Silva

Carona

Crespo

et al. 2014

Psicologia, Saúde & Doenças

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-Providing informal care to children/adolescents with chronic conditions has been associated with high levels of caregiving burden and impaired quality of life (QoL); however, parents can also experience uplifts which, by facilitating the attribution of positive meanings to caregiving, may contribute to better adaptation outcomes. The present study aimed at examining the direct and indirect links, via positive reframing as a coping strategy, between caregiving uplifts and quality of life (QoL) of parents who have a child/adolescent with asthma, as well as the invariance of the mediation model across children's age groups and asthma severity levels. A total of 180 parents of children/adolescents aged 8-18 reported their experience of caregiving uplifts (Revised Burden Measure), the use of positive reframing coping (Brief Cope) and their QoL (WHOQOL-Bref). Structural equation modeling showed a good fit for the mediation model (χ 2 /df=1.74, CFI=.95, RMSEA=.06), which explained 14% of the variability of parents' QoL. The caregiving uplifts were positively associated with positive reframing coping (β=.19, p=.02), which in turn was positively associated with QoL (β=.36, p<.01). No direct effect of uplifts on parents' QoL was found, but the indirect effect via positive reframing coping was statistically significant (β=.07, BC95%CI=.01/.14). Multi-group analyses demonstrated the strong structural invariance of the model across age groups (Δχ 2 =.89, p=.35) and asthma severity levels (Δχ 2 =1.91, p=.17). These results suggest that psychological interventions focused on recognizing and valuing caregiving uplifts and on positive reappraisal of the stressful situation may support more adaptive coping processes and improve parents' QoL. Keywords-Caregiving uplifts, Coping, Parents/ family caregivers, Pediatric asthma, Positive reframing, Quality of life ______________________________________________________________________ SIGNIFICAÇÕES PARENTAIS POSITIVAS NA PRESTAÇÃO DE CUIDADOS A CRIANÇAS/ ADOLESCENTES COM ASMARESUMO -A prestação de cuidados a crianças/adolescentes com condições crónicas tem sido associada a níveis elevados de desgaste e menor qualidade de vida (QdV); no entanto, os pais podem também experienciar gratificações que, facilitando uma atribuição de

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Meeting the Demands of Work and Responsibilities of Caring for a Child With Asthma: Consequences for Caregiver Well-Being

Cited by 16 publications

References 46 publications

Working and caring for a child with chronic illness: A review of current literature

Working and caring for a child with chronic illness: A review of current literature

When Control Exacerbates Distress: A Qualitative Study Exploring the Experiences of Hong Kong Chinese Parents in Caring for a Child with Asthma

Parental Positive Meaning-Making When Caregiving for Children With Asthma

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