mHealth Family Adaptation Intervention for Families of Young Children with Down Syndrome: A Feasibility Study

Choi, Hyunkyung; Riper, Márcia Van

doi:10.1016/j.pedn.2019.03.010

Cited by 11 publications

(60 citation statements)

References 36 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Only two studies were longitudinal in design [ 55 , 56 ]. Finally, one study employed a pre-/post-test quasi-experimental design [ 57 ].…”

Section: Resultsmentioning

confidence: 99%

“…Caregivers’ management of their child’s special healthcare needs with DS was assessed by using standardized tools such as the Family Experiences Survey (FES), Family Problem Solving and Communication (FPSC), Family Management Measure (FaMM), and Parenting Stress Index (PSI). Each of these measures was used in two studies included in the review [ 20 , 36 , 38 , 48 , 56 , 57 ]. Additionally, two studies used the Oral assessment in DS Questionnaire [ 37 , 44 ].…”

Section: Resultsmentioning

confidence: 99%

“…Additionally, two studies used the Oral assessment in DS Questionnaire [ 37 , 44 ]. The Emotionality, Activity, Sociability Survey, Family Adaptability and Cohesion Evaluation Scale, the brief Family Assessment Measure (FAM), Family Support Scale (FSS), Family Coping Index (FCI), Family Environment Scale, Family Index of Regeneratively and Adaptation (FIRA-G), Parent-caregiver Perception Questionnaire (P-CPQ), Perceived Social Support Scale (PSSS), Family Assessment Device (FAD), Beck Depression Inventory (BDI), Index of Social Competence (ISC) and Family APGAR were each used in one study [ 36 , 38 , 40 , 43 , 56 , 57 ]. Nine studies used measures generated by the investigators to assess caregiver needs [ 22 , 39 , 42 , 43 , 45 , 46 , 47 , 49 , 50 ].…”

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families

et al. 2021

Self Cite

View full text Add to dashboard Cite

Care coordination is a critical component of health management aimed at linking care providers and health-information-involved care management. Our intent in this scoping review was to identify care coordination needs of families of children with Down syndrome (DS) and the strategies they used to meet those needs, with the goal of contributing to the evidence base for developing interventions by using an mHealth application (mHealth apps) for these families. Using established guidelines for scoping reviews, we searched five databases, yielding 2149 articles. Following abstract and full-text review, we identified 38 articles meeting our inclusion criteria. Studies incorporated varied in regard to research designs, samples, measures, and analytic approaches, with only one testing an intervention by using mHealth apps. Across studies, data came from 4882 families. Common aspects of families’ care coordination needs included communication and information needs and utilization of healthcare resources. Additional themes were identified related to individual, family, and healthcare contextual factors. Authors also reported families’ recommendations for desirable characteristics of an mHealth apps that addressed the design of a personal health record, meeting age-specific information needs, and ensuring access to up-to-date information. These results will further the development of mHealth apps that are tailored to the needs of families with a child with DS.

show abstract

“…Only two studies were longitudinal in design [ 55 , 56 ]. Finally, one study employed a pre-/post-test quasi-experimental design [ 57 ].…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families

et al. 2021

Self Cite

View full text Add to dashboard Cite

show abstract

“…There are more than 325,000 mHealth apps available for Android and Apple smartphones [6]. Various mHealth apps have been clinically tested for their effect on compliance for many chronic diseases worldwide [7][8][9][10][11] and there are mounting indications that support the feasibility and applicability of mHealth interventions for better compliance in managing chronic diseases in pediatric patients as well. During the ongoing COVID-19 pandemic, mHealth has emerged as a silver bullet, not only for teleconsultations and telemonitoring of patients with chronic diseases, but also for increasing health care delivery in remote areas [12][13][14].…”

Section: Introductionmentioning

confidence: 99%

The Potential of mHealth as a Game Changer for the Management of Sickle Cell Disease in India

Kumar

Das

2021

JMIR Mhealth Uhealth

View full text Add to dashboard Cite

Sickle cell disease (SCD) is a chronic genetic disease that requires lifelong therapy and monitoring. Low drug adherence and poor monitoring may lead to an increase in morbidities and low quality of life. In the era of digital technology, various mobile health (mHealth) apps are being tested for their potential in increasing drug adherence in patients with SCD. We herewith discuss the applicability and feasibility of these mHealth apps for the management of SCD in India.

show abstract

“…Prompt awareness is expected to reinforce positive accommodation on parental and familial level with the child's unique condition [14]. The study conducted by [15] reported that parents living with a child with DS encounter various challenges and difficulties and significant improvement was observed in the family adaptation after inclusion in family supportive intervention.…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of Promoting Mothers’ Caring Practices Regarding Their Down Syndrome Children on the Family Coping

Hegazy¹,

Baraka²

2021

AJNR

View full text Add to dashboard Cite

Down Syndrome is a lifelong chromosomal disorder caused by an extra copy of chromosome number 21 inside each of the body's cells. This genetic disorder, causes mental retardation and developmental delays. Aim of this study was to determine the effect of promoting mothers' caring practices regarding their children with Down Syndrome on the family coping. Subjects and Method: A quasi-experimental research design used for sixty mothers and their children with Down Syndrome at Pediatric Outpatient Genetic Clinic of Tanta University Hospital. Three tools were used for data collection: Structured Interview Schedule to assess socio-demographic and mothers , knowledge about Down Syndrome, Mothers' Care Reporting Sheet and Family Crisis Oriented Personal Scales. Results: The total scores of knowledge for more than three quarters of mothers were low before educational program while, more than half of them had moderate level of knowledge and less than half of them had high level immediately after program. The total scores of most mothers , reported care were unsatisfactory before educational program while, the majority of them had satisfactory care immediately and one month after program. Family adaptation for nearly two thirds of caregivers was fair before program while, all of them had good adaptation immediately after program. Conclusion: There was a significant improvement of mothers , knowledge, reported care and family adaptation towards crises. Recommendations: Continuous health education program should be applied to mothers of children with Down Syndrome in health care facilities to improve their knowledge and practice that affect family adaptation.

show abstract

mHealth Family Adaptation Intervention for Families of Young Children with Down Syndrome: A Feasibility Study

Cited by 11 publications

References 36 publications

Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families

Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families

The Potential of mHealth as a Game Changer for the Management of Sickle Cell Disease in India

Effectiveness of Promoting Mothers’ Caring Practices Regarding Their Down Syndrome Children on the Family Coping

Contact Info

Product

Resources

About