Mixed‐methods content and sentiment analysis of adolescents’ voice diaries describing daily experiences with asthma and self‐management decision‐making

Mammen, Jennifer R.; Java, J.; Rhee, Hyekyun; Butz, Arlene; Halterman, Jill S.; Arcoleo, Kimberly

doi:10.1111/cea.13250

Cited by 16 publications

(19 citation statements)

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“…Symptom/response card sorting 34,35 was used to map each participant's usual symptom pattern and self‐management responses and to elicit detailed information about experiences along with rationale for behaviours. For this activity, participants first identified their personal symptoms and self‐management responses via a checklist developed in prior research 35,36 . They were then given printed cards of the selected items and asked to arrange their symptoms/responses in order of occurrence, modifying words and cards as needed to create a visual depiction of their usual symptom/response pathway (Figure 1).…”

Section: Methodsmentioning

confidence: 99%

“…For this activity, participants first identified their personal symptoms and self-management responses via a checklist developed in prior research. 35,36 They were then given printed cards of the selected items and asked to arrange their symptoms/responses in order of occurrence, modifying words and cards as needed to create a visual depiction of their usual symptom/response pathway ( Figure 1). Symptoms or responses that occurred more than once were quantitatively represented by additional cards.…”

Section: Symptom/response Card Sortingmentioning

confidence: 99%

“…This finding, similar to adolescent populations, suggests that coughing may be a particularly bothersome symptoms of asthma from patients' perspectives. 35,36 Clinicians may want to monitor for the presence of asthma-related coughing and educate patients how controller medication can reduce coughing to promote adherence. Lastly, it may be useful to consider word choices when assessing symptoms.…”

Section: Theme 4: Insufficient Education and Support For Adults Witmentioning

confidence: 99%

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A mixed‐methods analysis of younger adults' perceptions of asthma, self‐management, and preventive care: "This isn't helping me none"

Mammen

Turgeon

Philibert

et al. 2020

Clin Experimental Allergy

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Background: Young adults (ages 18-44) have increased emergency department use for asthma and poor adherence to medications. The objective of this mixed-methods study was to understand experiences with and approaches to managing asthma, of which little is known in this age group. Methods: Surveys (Asthma Control Questionnaire, Asthma Quality of Life Questionnaire) and 1:1 semi-structured interviews were used to explore experiences with asthma, symptoms, self-management behaviors, and relationship to asthma control and quality of life. Qualitative data were analyzed using content analysis techniques. Descriptive statistics and bivariate correlations were used to examine distributive characteristics and associations between variables. Results: Forty urban adults participated (mean age 32.7 ± 6.2, 1σ). Coughing was reported nearly 46% more often than wheezing, with 42.5% (17/40) coughing until the point of vomiting most days. Most participants delayed using medication for symptoms due to misperceptions about inhalers. Higher symptom frequency and worse asthma control were associated with greater use of non-pharmacologic symptom management strategies (r=0.645, p<0.001; r=0.360, p=0.022, respectively). Five themes were identified regarding young adults experiences with asthma: (1) having asthma means being limited and missing out on life; (2) healthcare for asthma is burdensome and other things are more important; (3) there is not enough personal benefit in medical interactions to make preventive care worthwhile; (4) there is insufficient support and education about asthma for adults; and (5) people normalize chronic symptoms over time and find ways of coping that fit with their lifestyle. PERCEPTIONS OF ASTHMA MANAGEMENT IN YOUNG ADULTS Conclusions & Clinical Relevance: Young adults may tolerate symptoms without using quick-relief medication or seeking preventive care. Increasing engagement with preventive services will require decreasing perceived burdens and increasing the personal benefits of care. Evaluating for non-pharmacologic approaches to managing symptoms and asthma-related coughing may identify uncontrolled asthma. Enhanced training for clinicians in patient-centric asthma care may be needed.

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Section: Methodsmentioning

confidence: 99%

Section: Symptom/response Card Sortingmentioning

confidence: 99%

Section: Theme 4: Insufficient Education and Support For Adults Witmentioning

confidence: 99%

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A mixed‐methods analysis of younger adults' perceptions of asthma, self‐management, and preventive care: "This isn't helping me none"

Mammen

Turgeon

Philibert

et al. 2020

Clin Experimental Allergy

Self Cite

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“…Further, displays of reviews were limited to downloads with a minimum threshold of 10 reviews. However, sentiment analysis has been increasingly applied across a variety of health outcomes [49][50][51][52]. Finally, this study did not include assessment of apps using a validated instrument (eg, Mobile Application Rating Scale).…”

Section: Limitationsmentioning

confidence: 99%

Evaluating Asthma Mobile Apps to Improve Asthma Self-Management: User Ratings and Sentiment Analysis of Publicly Available Apps (Preprint)

Camacho-Rivera¹,

Vo²,

Huang³

et al. 2019

Preprint

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BACKGROUND The development and use of mobile health (mHealth) apps for asthma management have risen dramatically over the past two decades. Asthma apps vary widely in their content and features; however, prior research has rarely examined preferences of users of publicly available apps. OBJECTIVE The goals of this study were to provide a descriptive overview of asthma mobile apps that are publicly available and to assess the usability of asthma apps currently available on the market to identify content and features of apps associated with positive and negative user ratings. METHODS Reviews were collected on June 23, 2020, and included publicly posted reviews until June 21, 2020. To characterize features associated with high or low app ratings, we first dichotomized the average user rating of the asthma app into 2 categories: a high average rating and a low average rating. Asthma apps with average ratings of 4 and above were categorized as having a high average rating. Asthma apps with average ratings of less than 4 were categorized as having a low average rating. For the sentiment analysis, we modeled both 2-word (bi-gram) and 3-word (tri-gram) phrases which commonly appeared across highly rated and lowly rated apps. RESULTS Of the 10 apps that met the inclusion criteria, a total of 373 reviews were examined across all apps. Among apps reviewed, 53.4% (199/373) received high ratings (average ratings of 4 or 5) and 47.2% (176/373) received low ratings (average ratings of 3 or less). The number of ratings across all apps ranged from 188 (AsthmaMD) to 10 (My Asthma App); 30% (3/10) of apps were available on both Android and iOS. From the sentiment analysis, key features of asthma management that were common among highly rated apps included the tracking of peak flow readings (n=48), asthma symptom monitoring (n=11), and action plans (n=10). Key features related to functionality that were common among highly rated apps included ease of use (n=5). Users most commonly reported loss of data (n=14) and crashing of app (n=12) as functionality issues among poorly rated asthma apps. CONCLUSIONS Our study results demonstrate that asthma app quality, maintenance, and updates vary widely across apps and platforms. These findings may call into question the long-term engagement with asthma apps, a crucial factor for determining their potential to improve asthma self-management and asthma clinical outcomes.

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“…In this issue of the Journal, Mammen et al examine adolescents’ experiences of asthma and self‐managing their disease. This is a population that often poorly adheres to therapy, so a better understand of adolescents might help us to improve their self‐management.…”

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confidence: 99%

Sibs, low‐level allergic sensitization and adolescents

Roberts

2019

Clin Experimental Allergy

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Mixed‐methods content and sentiment analysis of adolescents’ voice diaries describing daily experiences with asthma and self‐management decision‐making

Abstract: Teens may minimize symptoms and have greater symptom frequency and severity than is recognized by themselves or providers. Screening for specific symptoms including coughing, throat clearing, and respiratory illness may be needed to identify those experiencing burden from asthma.

Cited by 16 publications

References 34 publications

A mixed‐methods analysis of younger adults' perceptions of asthma, self‐management, and preventive care: "This isn't helping me none"

A mixed‐methods analysis of younger adults' perceptions of asthma, self‐management, and preventive care: "This isn't helping me none"

Evaluating Asthma Mobile Apps to Improve Asthma Self-Management: User Ratings and Sentiment Analysis of Publicly Available Apps (Preprint)

Sibs, low‐level allergic sensitization and adolescents

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