Modelo de seguimiento, organización y gestión de la infección por VIH

Berenguer, Juan; Dodero, Javier; Azcoaga, Amaya

doi:10.1016/s0213-005x(18)30247-7

Cited by 7 publications

(3 citation statements)

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“…The impact of the CCM on a variety of chronic diseases has been reported, including asthma, diabetes, and depression (Improving Chronic Illness Care [ICIC], 2018). Only seven studies, however, have been retrieved on the application of the CCM to HIV/AIDS (Goetz et al, 2008; Drabo et al, 2010; Tu et al, 2013; Clarke et al, 2015; Mahomed and Asmall, 2015; Massoud et al, 2015; Berenguer et al, 2018). These studies reported improved access and adherence to antiretroviral therapy, implementation of pertinent interventions, and increased involvement of PLWHA with their own care, resulting in clinical, immunological, and virological gains.…”

Section: Introductionmentioning

confidence: 99%

The Use of Assessment of Chronic Illness Care Technology to Evaluate the Institutional Capacity for HIV/AIDS Management

et al. 2019

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The effectiveness of antiretroviral therapy has rendered HIV infection a manageable chronic condition. Currently, the health systems face the challenge of adopting organizational healthcare models capable of ensuring the delivery of comprehensive care. The Chronic Care Model has been reported for its effectiveness, particularly in terms of delivery system design. In this study, the Assessment of Chronic Illness Care (ACIC) questionnaire, a soft technology widely used for other chronic conditions, was employed on a teaching hospital to evaluate healthcare provided to people living with HIV/AIDS. The ACIC technology is a self-explanatory instrument which diagnoses, among the six components of the Chronic Care Model Framework, areas for quality improvements, indicating at the same time, intervention strategies and achievements. These components are healthcare network organization, delivery system design, self-management support, decision support, clinical information systems , and community. From May to October 2014, the tool was applied to the multidisciplinary teamwork at the points of care identified, as well as to the hospital management board. Respondents broadly rated care as basic. A pronounced contrast was observed from evaluation by management board and health professional staff in some components like organization of healthcare and clinical information system. The self-management support and delivery system design were the components best evaluated by the multidisciplinary team. Combined with the array of services offered, the entry points available at the hospital can ensure healthcare comprehensiveness. However, some gaps were detected, precluding the delivery of an effective care. The ACIC was considered an adequate technology to provide knowledge of the gaps, to promote productive discussions and reflections within teams and to indicate actions to achieve improvements on healthcare for people living with HIV/AIDS.

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Section: Introductionmentioning

confidence: 99%

The Use of Assessment of Chronic Illness Care Technology to Evaluate the Institutional Capacity for HIV/AIDS Management

et al. 2019

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“…Desde un punto de vista clínico, el cuidado de las personas con VIH puede beneficiarse de los modelos propuestos para el control de enfermedades crónicas [82]. Distintos modelos han sido propuestos siendo el más influyente y mejor conocido el modelo de cuidado de crónicos desarrollado por Edward Wagner et al en el seno del MacColl Center for Healthcare Innovation en Seattle [83].…”

Section: Justificación De La Investigaciónunclassified

“…Así, según la opinión de médicos especialistas en VIH, para avanzar hacia un mejor modelo de atención de la infección por VIH se deberían desarrollar programas que promuevan de forma coordinada la aplicación de un modelo validado de gestión clínica de enfermos crónicos adaptados a la infección por VIH. El modelo debería promover la integración de servicios basados en el trabajo de equipos multidisciplinarios, potenciar la participación del paciente en su auto cuidado y contemplar la implicación de las organizaciones sociales y la comunidad [82].…”

Section: Figura 26 Modelo Para El Cuidado De Pacientes Con Enfermedad...unclassified

Definición y validación de una plataforma mHealth para la mejora de la asistencia sanitaria y el empoderamiento de pacientes con VIH en situación estable

Barreiro¹

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En primer lugar, quiero dar las gracias a mi director Enrique Gómez, por darme la oportunidad de pertenecer al Grupo de Bioingeniería y Telemedicina y confiar en mí para la realización de esta tesis.The proposed mHealth platform has been evaluated through a large prospective cohort study carried out within the framework of the European EmERGE project in which 2251 patients and 20 clinicians from 5 European centres have participated for 30 months. Likewise, the use of the platform by clinical staff and patients during the 18 months after the end of the study has been evaluated. The results of the evaluation have ix made it possible to verify that the platform meets the criteria of functionality, performance, interoperability, usability, maintainability and security, giving technical feasibility to interventions based on mHealth and making its use in clinical routine feasible. The platform use data reflects that its use has remained stable during the period in which the interaction of users with the platform has been analysed. The usability and acceptability results of the clinical study and the opinions received by the clinical staff and the community of the centres during the periodic follow-up meetings show the great satisfaction perceived with the use of the platform by patients and clinical professionals.x Índice de contenidosResumen __________________________________________________________ vi Capítulo 1. Antecedentes _____________________________ 4.2.6. Módulo de recogida de datos _______________________________________ 4.2.6.1. Almacenamiento de datos ______________________________________________ 4.3. Procedimiento de implantación de un nuevo centro __________________ 4.4. Procedimientos para el soporte y mantenimiento ___________________ 4.5. Evaluación de la plataforma _____________________________________ 4.5.1. Evaluación técnica plataforma ______________________________________ 4.5.1.1. Interoperabilidad _____________________________________________________ 4.5.1.2. Seguridad ___________________________________________________________ 4.5.1.3. Funcionalidad y rendimiento ____________________________________________ xiii 4.5.1.4. Fiabilidad y Mantenibilidad _____________________________________________ 4.5.2. Evaluación del uso de la plataforma _________________________________ 4.5.2.1. Uso de la AWC _______________________________________________________ 4.5.2.2. Uso de la AMP _______________________________________________________ 4.5.2.3. Uso del eCRF ________________________________________________________ 4.5.3. Impacto en la usabilidad y aceptabilidad _____________________________ 4.5.4. Resultados del estudio clínico ______________________________________ 4.5.4.1. Impacto en el empoderamiento _________________________________________ 4.5.4.2. Impacto en la calidad de vida ___________________________________________ 4.6. Discusión ____________________________________________________ Capítulo 5. Conclusiones y Trabajos Futuros ___________ 5.1. Discusión de las hipótesis de investigación. _________...

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The Influence of Patient Experience with Healthcare on the Health-Related Quality of Life of People Living with HIV: An Observational Cross-Sectional Survey

Fuster‐RuizdeApodaca¹,

Sánchez-Vega

Galindo³

et al. 2019

Infect Dis Ther

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Introduction Patient experience is central to the quality of healthcare delivery, showing positive associations with several outcome measures. The main objectives of this study are to analyze the influence of patient experience on the health-related quality of life in people living with HIV and the role played by treatment complexity and clinical care. Methods We conducted a cross-sectional survey with 467 patients with HIV. We used the Instrument for Evaluation of the Experience of Chronic Patients and the Health-related Quality of Life Questionnaire (EQ-5D-5L). We analyzed a predictive model through the partial least squares (PLS) method. Results The patient self-management scores showed the highest positive relationship with the patient’s health-related quality of life ( β = 0.24, β = 0.32, p < 0.0001). Patients’ treatment complexity had a negative influence on health-related quality of life ( β = − 0.21, β = − 0.28, p < 0.0001). The complexity of clinical care had negative effects on health-related quality of life, both directly ( β = − 0.37, β = − 0.19, p < 0.0001) and through its negative influence on the productive interactions with healthcare professionals ( β = − 0.21, p < 0.0001) and patient self-management factors ( β = − 0.21, p < 0.0001). The effects of patient experience dimensions on their health-related quality of life were higher in people living with HIV > 50 years old ( p < 0.05). Conclusions Patient experience mainly influenced the health-related quality of life of older people living with HIV. The treatment and clinical care complexity played an important role in degrading the patients' experience and their quality of life. More integrated care would benefit the health-related quality of life of people living with HIV. Funding This project was funded by Merck Sharp & Dohme, Spain. Electronic supplementary material The online version of this article (10.1007/s40121-019-0252-3) contains supplementary material, which is available to authorized users.

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Modelo de seguimiento, organización y gestión de la infección por VIH

Cited by 7 publications

References 36 publications

The Use of Assessment of Chronic Illness Care Technology to Evaluate the Institutional Capacity for HIV/AIDS Management

The Use of Assessment of Chronic Illness Care Technology to Evaluate the Institutional Capacity for HIV/AIDS Management

Definición y validación de una plataforma mHealth para la mejora de la asistencia sanitaria y el empoderamiento de pacientes con VIH en situación estable

The Influence of Patient Experience with Healthcare on the Health-Related Quality of Life of People Living with HIV: An Observational Cross-Sectional Survey

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