Modifying Health Outcome Measures for People With Aphasia

Tucker, Frances M.; Edwards, Dorothy Farrar; Mathews, Leslie Kirchner; Baum, Carolyn; Connor, Lisa Tabor

doi:10.5014/ajot.2012.001255

Cited by 48 publications

(49 citation statements)

References 25 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Research Design. This study used a correlational, cross-sectional design [18] to characterize the nature of the relationship between different environmental factors and social participation for individuals post-stroke, as measured by the Activity Card Sort [19] [19,20] and has been shown to be adaptable for individuals with aphasia [21]. For this study, percentage retained of prestroke activities in the social realm was the measure of interest, with higher scores indicating that a person has retained more of his or her prestroke activities.…”

Section: Methodsmentioning

confidence: 99%

“…The standardized procedure of the ACS only includes one sort; however, the process was split into three separate sorts to minimize confusion among response options for individuals with aphasia [21]. All paper-and-pencil measures in our assessment battery were given in modified presentation format and administration, but not in wording, to be accessible for participants with aphasia [21]. For consistency, participants without aphasia were also administered the modified versions of those tests.…”

Section: Measures Of Communication For Participants With Aphasia Thmentioning

confidence: 99%

“…In addition, a hierarchy of support outlined by Tucker et al [21] was used as a guideline for administering assessments to individuals with aphasia. For all participants, the examiner read the printed question aloud and verified the selected response by pointing to the number and stating the corresponding meaning.…”

Section: Measures Of Communication For Participants With Aphasia Thmentioning

confidence: 99%

See 2 more Smart Citations

Influence of Environmental Factors on Social Participation Poststroke

Foley

Connor

Nicholas

et al. 2019

The American Journal of Occupational Therapy

View full text Add to dashboard Cite

Objectives. For rehabilitation professionals to adequately address meaningful participation in social activities with their patients after a stroke, there must be a better understanding of neurobehavior, that is, how neurological impairment and its sequelae and environmental factors support or limit social participation. The current study examines how stroke severity (NIH Stroke Scale), its impact on perceived mobility (Stroke Impact Scale mobility domain), and the environment (MOS Social Support-Positive Social Interactions scale and Measure of Stroke Environment receptivity and built environment domains) influence social participation (Activity Card Sort: ACS). Methods. A correlational, cross-sectional design examined the relationships among neurological impairment, perceived limitations in activity, environmental factors, and social participation. Participants included 48 individuals who were at least 6 months post-stroke both with aphasia (N = 22) and without aphasia (N = 26) living in the community for whom all measures were available for analysis. Results. No differences in social participation were found between those with and without aphasia, though both groups reported a large (25-30%) decline in participating in their prestroke social activities. For the ACS Social Domain activities and ACS Partner to Do With activities (percent retained), 37% and 35% of the variance, respectively, was accounted for by the predictor variables, with only MOS Social Support making an independent contribution to social participation. In this sample, neurological impairment was not a significant correlate of social participation. Additionally, perceived mobility and the built environment were not found to independently predict participation in social activities. Conclusions. Perceived social support was found to predict social participation in individuals living in the community 6 months or greater post-stroke. Focusing on social support during post-stroke rehabilitation may provide an avenue for increased social participation and more successful community reintegration.

show abstract

Section: Methodsmentioning

confidence: 99%

Section: Measures Of Communication For Participants With Aphasia Thmentioning

confidence: 99%

Section: Measures Of Communication For Participants With Aphasia Thmentioning

confidence: 99%

See 1 more Smart Citation

Influence of Environmental Factors on Social Participation Poststroke

Foley

Connor

Nicholas

et al. 2019

The American Journal of Occupational Therapy

View full text Add to dashboard Cite

show abstract

“…To reduce potential confusion, Tucker et al . (2012) report on an aphasia‐adapted version of the ACS that has been used in several research studies (e.g., Connor et al . 2013, Foley et al .…”

Section: Discussionmentioning

confidence: 99%

Do caregiver proxy reports and congruence of client–proxy activity participation goals relate to quality of life in people with aphasia?

Nicholas

Jennelle

Connor

et al. 2020

Intl J Lang & Comm Disor

Self Cite

View full text Add to dashboard Cite

Background: Achieving activity participation goals is a key factor in quality of life (QOL) for people with aphasia (PWA), but expressing participation goals can be difficult for many of them. Proxy reports by caregivers may not accurately reflect the interests and participation goals of PWA, and discrepancies in these goals between PWA and their caregivers may affect QOL, based on the assumption that caregivers' awareness of their loved ones' unique participation goals may be important to increasing PWA activity participation. Aims: To examine everyday activities valued by PWA using the Life Interests and Values (LIV) Cards; to measure congruence between PWA and their caregivers on life participation goals; and to measure how congruence of PWA-caregiver participation goals related to QOL. Methods & Procedures:A convenience sample of 25 PWA completed the LIV Card assessment and the Stroke Aphasia Quality of Life Scale-39 to assess participation goals and QOL. Participation goals were also evaluated with respect to age, time post-onset and aphasia severity. A total of 12 caregivers were administered the LIV Cards to calculate agreement between PWA-proxy activity reports and the relationship between agreement and QOL. Outcomes & Results: PWA endorsed wanting to participate more in a wide range of activities, with common interests in walking/running, going to the beach and eating out, among others. PWA-caregiver activity agreement was fair to moderate with point-to-point agreement averaging 70%. However, no relationship between degree of congruence in PWA-proxy pairs and QOL was found. Conclusions & Implications: PWA have a variety of activity participation goals that can be integrated into intervention plans. Dependence on proxy respondents should be reduced as much as possible to support self-determination for PWA. What this paper adds to existing knowledger This study adds additional as well as confirmatory information to the existing literature about life participation goals of community-dwelling individuals with chronic aphasia. Top activities endorsed by a group of 25 PWA are reported within four activity domains (home and community activities, creative and relaxing activities, physical activities, and social activities). Results indicated that agreement between PWA and their caregiver proxies on PWA's most desired activities was < 50%. However, the level of agreement between caregivers and proxies on participation goals was not significantly related to QOL in this sample.What are the potential or actual clinical implications of this work? r PWA have a variety of participation goals that can be integrated into intervention plans to be carried out with clinicians, caregivers and family members. The use of proxy respondents when determining participation goals should be reduced as much as possible to support self-determination for PWA. Use of the LIV Cards, a picture-based sorting-task assessment, reduces the need for proxy responders and guesswork about the specific participation goals of PWA.

show abstract

“…If students and OT practitioners are not educated in the proper ways to communicate successfully with PWA, they cannot provide them equitable care (Kagan, 1995;Simmons-Mackie et al, 2007). All aspects of the OT process are affected, including obtaining an occupational profile, administering assessments, and completing interventions (Tucker, Edwards, Mathews, Baum, & Connor, 2012). Student clinicians who completed this SCA training reported increased comfort, skill, and ability to use SCA techniques as well as demonstrated competency using the skills with a simulated PWA as the result of receiving the training.…”

Section: Discussionmentioning

confidence: 99%

Development of a Training Program to Increase Student Clinician Competency when Communicating with People with Aphasia

Doherty

Lay

2019

JOTE

View full text Add to dashboard Cite

The Washington University in St. Louis Stroke Clinic is a student-run free clinic (SRSC) designed to enhance student learning and provide the community with no-cost evidence-based occupational therapy services. Aphasia is a common communication impairment after stroke that affects the ability to access services and give and get information, and impacts life participation and satisfaction. Conversation partner training is an evidence-based treatment approach to improve communication with people with aphasia (PWA). The purpose of this project was to develop and evaluate the effectiveness of student clinician training about communicating with PWA using conversation partner training in the SRSC. This study was a single-group prospective pre-post cohort study with two phases. In Phase 1, eight students completed a series of formal and informal feedback measures to evaluate student perception of the current training. In Phase 2, six students completed a conversation partner education protocol with a flipped classroom model and includes selfevaluation and evaluation of competency with a skills check-out. Student clinicians reported increased knowledge, skills, and confidence in their ability to communicate with PWA. Students demonstrated increased skill in acknowledging and revealing the competence, building rapport, as well as giving and receiving valuable information. This was the first study looking solely at the value of student occupational therapy education on communicating with PWA. Through this experience, these students were better prepared to interact with future clients with aphasia.

show abstract

Modifying Health Outcome Measures for People With Aphasia

Cited by 48 publications

References 25 publications

Influence of Environmental Factors on Social Participation Poststroke

Influence of Environmental Factors on Social Participation Poststroke

Do caregiver proxy reports and congruence of client–proxy activity participation goals relate to quality of life in people with aphasia?

Development of a Training Program to Increase Student Clinician Competency when Communicating with People with Aphasia

Contact Info

Product

Resources

About