Motivations for cancer history disclosure among young adult cancer survivors

Easley, Julie

doi:10.1007/s11764-019-00766-w

Cited by 11 publications

(8 citation statements)

References 49 publications

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“…Tais dados são convergentes com os padrões analisados em estudo brasileiro recente, que afirma que as características sociodemográficas, que coincidem com as deste estudo, são verdadeiros marcadores de vulnerabilidade social 29 . Esse mesmo estudo afirma que baixo grau de escolaridade, baixa renda e núcleos familiares são por si só determinantes negativos, pois refletem no acesso aos serviços, no diagnóstico tardio e nas condições inferiores de recuperação (suporte familiar e social) durante o tratamento da doença 29 , o que demonstra a necessidade de estratégias para superar ou, ao menos, minimizar tais efeitos 30 .…”

Section: Discussionunclassified

Esperança, Medo e Qualidade de vida Relacionada à Saúde na Percepção de Mulheres com Câncer de Mama

Ribeiro

Araújo

Mendonça

2021

Rev. Bras. Cancerol.

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Introdução: O período de diagnóstico e tratamento do câncer de mama é difícil, permeado de incertezas e associado a uma alta taxa de morbimortalidade. Objetivo: Conhecer o significado que as mulheres com câncer de mama em tratamento em um hospital universitário atribuíram à sua experiência de medo mascarado pelo sentimento de esperança, bem como investigar a percepção da qualidade de vida no enfrentamento da doença. Método: Estudo quanti-qualitativo com 78 mulheres. Para a avaliação quantitativa, avaliaram-se os escores do Medical Outcomes Study 36 – Item Short – Form Health Survey (SF-36) e da Escala de Esperança de Herth. Para a análise qualitativa, conduziram-se narrativas com dez dessas mulheres que foram analisadas por meio de métodos fenomenológicos de investigação. Resultados: Foram detectados escores reduzidos nos domínios capacidade funcional e saúde mental do SF-36 que implicam em impacto negativo na qualidade de vida e alto índice nos escores de esperança, o que é um fator positivo. Três classes centrais emergiram de 243 segmentos das narrativas por meio de declarações significativas e unidades de significado correspondentes. Conclusão: A experiência do período de diagnóstico e tratamento inclui enfrentamento, conhecimento da doença, assistência clínica (médicos, equipes), exaltação ao desespero e o paradoxo entre o medo e a esperança. Foi discutida a essência da experiência vivenciada e compartilhada pelas participantes à luz da teoria da doença, como uma ruptura da narrativa biográfica. O estudo destaca implicações para a equipe de médicos, coordenadores do Sistema Unificado de Saúde e outros profissionais da saúde.

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Section: Discussionunclassified

Esperança, Medo e Qualidade de vida Relacionada à Saúde na Percepção de Mulheres com Câncer de Mama

Ribeiro

Araújo

Mendonça

2021

Rev. Bras. Cancerol.

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“…10 Factors such as time, setting, anticipated reactions, previous experiences, and the strength of friendship all play influential roles in whether and how children disclose their illness. [11][12][13] Some of the reasons why youth choose to disclose their illness are associated with wanting understanding, acceptance, and support from those who have similar experiences. 11 On the other hand, the decision to withhold illness information includes fear of rejection and stigmatization.…”

Section: Introductionmentioning

confidence: 99%

Illness conversations: Self-disclosure among children and youth with chronic illnesses

2022

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Objective Illness disclosure refers to when individuals with chronic illnesses make decisions to tell others about their disease. There is a lack of research on the complexity of disclosure among children and youth with chronic illnesses. We conducted a review of the literature to understand the process of disclosure among children and youth with chronic illnesses in the context of peer-based relationships. Methods A narrative review was completed using three databases. The search yielded 11 articles that utilized various research designs. Results Most of the literature was qualitative in nature. Most children and youth engaged in non-disclosure and concealment which is born out of fears of discrimination. Fewer children and youth engaged in unplanned disclosure, passive disclosure, partial disclosure, and open disclosure. Children and youth carefully consider who they are disclosing to and perceptions about other peoples’ responses strongly impact disclosure. Children and youth disclose verbally, behaviorally, and in written form. Disclosure is associated with both positive and negative effects, such as confidence, self-advocacy, and distress. Discussion Health providers and researchers should critically support disclosure and empower children and youth with the resources they need to be agents in their own disclosure decisions.

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“…Carter et al (2020) described self-disclosure as a complex, dynamic, and continuous process in which individuals carefully select who, what and how they tell others about their illness. Factors such as time, setting, anticipated reactions, previous experiences, and the strength of friendship all play influential roles in whether and how children disclose their illness (Easley, 2019;Barnett et al, 2014;Barned et al, 2016). Some of the reasons why youth choose to disclose their illness are associated with wanting understanding, acceptance, and support from those who have similar experiences (Easley, 2019).…”

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confidence: 99%

“…Factors such as time, setting, anticipated reactions, previous experiences, and the strength of friendship all play influential roles in whether and how children disclose their illness (Easley, 2019;Barnett et al, 2014;Barned et al, 2016). Some of the reasons why youth choose to disclose their illness are associated with wanting understanding, acceptance, and support from those who have similar experiences (Easley, 2019). On the other hand, the decision to withhold illness information includes fear of rejection and stigmatization (Easley, 2019;Barnett et al, 2014;Kaushansky et al, 2017;Barned et al, 2016).…”

mentioning

confidence: 99%

“…Some of the reasons why youth choose to disclose their illness are associated with wanting understanding, acceptance, and support from those who have similar experiences (Easley, 2019). On the other hand, the decision to withhold illness information includes fear of rejection and stigmatization (Easley, 2019;Barnett et al, 2014;Kaushansky et al, 2017;Barned et al, 2016). The literature favours self-disclosure because it can result in psychosocial benefits which consist of sharing new identities, strengthening relationships, and maintaining self-esteem (Easley, 2019;Barnett et al, 2014;Barned et al, 2016).…”

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confidence: 99%

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Cancer Conversations Among Children With Cancer

Pathmalingam¹

2023

Preprint

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<p> Self-disclosure is a psychosocial process in which children carefully decide who, what, and how they tell others about their illness. Unfortunately, there is very little known about how children disclose their cancer diagnosis to their peers. For this reason, this study utilized a qualitative secondary analysis approach to investigate whether and how children disclose their illness to peers at camp. A thematic analysis was undertaken to analyze 21 interviews completed by children who experienced cancer and were from two summer residential camps in Ontario. This resulted in four themes including talking about cancer, thinking about cancer, attitude towards illness, and social environment and relationships. The findings affirm that illness disclosure is extremely complex and has several contributing factors. Further research in the area of disclosure among children with cancer is encouraged, as it can assist in the development of support and interventions for children engaging in numerous types of disclosure. </p>

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Motivations for cancer history disclosure among young adult cancer survivors

Cited by 11 publications

References 49 publications

Esperança, Medo e Qualidade de vida Relacionada à Saúde na Percepção de Mulheres com Câncer de Mama

Esperança, Medo e Qualidade de vida Relacionada à Saúde na Percepção de Mulheres com Câncer de Mama

Illness conversations: Self-disclosure among children and youth with chronic illnesses

Cancer Conversations Among Children With Cancer

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