There is very little research that specifically looks at how autism spectrum disorders are perceived in various communities. This qualitative research was conducted with parents who had children on the autistic spectrum belonging to four different ethnic communities (White British, Somali, West African and South Asian-63 in total) and living in the UK. The study found that the importance that the parents give to various social skills varied on the basis of their cultural background and the gender of the parent. This is an important aspect to consider while providing support and services to individuals on the autism spectrum and their family members if the services have to be appropriate for their needs. This consideration would also enable the individuals on the autism spectrum to develop appropriate social skills required within their cultural groups. This is a preliminary study and further research on the topic is required.Keywords: autism, social skills, parental perceptions, culture, ethnicity
IntroductionAccording to some prevalent studies, autism spectrum disorders (ASD) are understood to affect people from all ethnic backgrounds equally (Fombonne et al., 2001). Although diagnostic criteria until recently were underpinned by a 'triad of impairments' (Wing, 1988), the disorder was in practice most typically characterised by difficulties in social interactions (Charman & Stone, 2006). Teaching the 'hidden curriculum' of social skills is considered to be an essential aspect of working with individuals on the autism spectrum.It is argued that social understanding and social development are most affected by cultural factors and that accepted social norms are subject to considerable cultural variation (Dyches et al., 2005). It is possible therefore that there are differences in how 3 a disability is perceived on the basis of the social and cultural milieu of which it is a part (Shakespeare and Watson, 2001;Fletcher & Navarrete, 2003). In fact there have been academics who have argued that disabilities such as learning difficulties, behaviour, emotional and social difficulties are socially constructed (Gabel, 2004;Hatton, 2004;Lindsay, Pather and Strand, 2006) for precisely the same reasons. It has also been suggested that the system of special education is also culturally bound and that parents from minority ethnic communities can feel disenfranchised when they encounter and access such systems (Zionts et al., 2003;Kalyanpur and Harry, 2004). However, such discussions are still relatively new when it comes to autism; and there is very little research on how parents from different cultural backgrounds interpret the defining social behaviours used to identify autism.In this exploratory project, parents of children on the autism spectrum from four different cultural backgrounds in the UK were interviewed to discover how they interpreted the same set of social behaviours, all linked to an autism spectrum diagnosis.It was envisaged that such study could contribute to the emerging discussions about the social construc...