Needs and Psychosocial Outcomes of Caregivers of Individuals with Multiple Sclerosis in Guadalajara, Mexico

Arango‐Lasprilla, Juan Carlos; Premuda, Paola; Aguayo, Adriana; Francis, Kathryn; Macias, Miguel; Villaseñor, Teresita

doi:10.7224/1537-2073-12.2.71

Cited by 7 publications

(3 citation statements)

References 85 publications

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“…Multiple sclerosis (MS) is a chronic, progressive, disabling disease which affects an estimated 2.3 million people worldwide [ 1 ]. In Latin America in particular, the focus of the current study, the number of individuals diagnosed with MS has been increasing over the past two decades [ 2 , 3 ]. MS is characterized by autoimmune damage to the myelin sheaths around nerve cells [ 4 ].…”

Section: Introductionmentioning

confidence: 99%

A Disproportionate Burden of Care: Gender Differences in Mental Health, Health-Related Quality of Life, and Social Support in Mexican Multiple Sclerosis Caregivers

Perrin

Panyavin

Paredes

et al. 2015

Behavioural Neurology

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Background. Multiple sclerosis (MS) rates in Latin America are increasing, and caregivers there experience reduced mental and physical health. Based on rigid gender roles in Latin America, women more often assume caregiving duties, yet the differential impact on women of these duties is unknown. Methods. This study examined gender differences in mental health (Patient Health Questionnaire-9, Satisfaction with Life Scale, Rosenberg Self-Esteem Scale, State-Trait Anxiety Inventory, and Zarit Burden Inventory), health-related quality of life (HRQOL; Short Form-36), and social support (Interpersonal Support Evaluation List-12) in 81 (66.7% women) Mexican MS caregivers. Results. As compared to men caregivers, women had lower mental health (p = 0.006), HRQOL (p < 0.001), and social support (p < 0.001). This was partially explained by women caregivers providing care for nearly twice as many hours/week as men (79.28 versus 48.48, p = 0.018) and for nearly three times as many months (66.31 versus 24.30, p = 0.002). Conclusions. Because gender roles in Latin America influence women to assume more substantial caregiving duties, MS caregiver interventions in Latin America—particularly for women caregivers—should address the influence of gender-role conformity on care and psychosocial functioning.

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Section: Introductionmentioning

confidence: 99%

A Disproportionate Burden of Care: Gender Differences in Mental Health, Health-Related Quality of Life, and Social Support in Mexican Multiple Sclerosis Caregivers

Perrin

Panyavin

Paredes

et al. 2015

Behavioural Neurology

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“…When compared to other racial/ethnic groups, Latino caregivers often report limited use of formal support services [ 10 , 11 ], larger informal social networks [ 8 ], increased role strain [ 12 ], lower rates of institutionalization [ 10 ], and higher rates of depression [ 13 ]. However, very few studies have examined MS caregiving in Latin America [ 14 , 15 ], and associations in this region among MS impairments, needs of family members providing care, and caregiver mental health remain largely unknown. Because of this major gap in the research literature, there is a great need for research addressing the process of MS caregiving in Latin America, as well as the impact of MS impairments on family needs and caregiver mental health in this region.…”

Section: Introductionmentioning

confidence: 99%

“…Within the framework of Pearlin et al's model [ 28 ], family needs (i.e., household needs, informational needs, financial needs, health needs, and social support) are an extension of the background/context and secondary stressor domains. Findings from a previous study demonstrate that unmet family needs are also are a central determinant of caregiver adjustment, as they have been associated with increased burden and depression among MS caregivers [ 14 ].…”

Section: Introductionmentioning

confidence: 99%

Mediational Model of Multiple Sclerosis Impairments, Family Needs, and Caregiver Mental Health in Guadalajara, Mexico

Mickens

Perrin

Aguayo

et al. 2018

Behavioural Neurology

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Individuals with multiple sclerosis (MS), especially those living in Latin America, often require assistance from family caregivers throughout the duration of the disease. Previous research suggests that family caregivers may experience positive and negative outcomes from providing care to individuals with MS, but few studies have examined the unmet needs of individuals providing care to family members with MS and how these unmet needs may mediate the relationship between MS symptoms and caregiver mental health. The current study examined the relationships among MS impairments (functional, neurological, cognitive, behavioral, and emotional), unmet family needs (household, informational, financial, social support, and health), and caregiver mental health (satisfaction with life, anxiety, burden, and depression) in a sample of 81 MS caregivers from Guadalajara, Mexico. A structural equation model demonstrated the mediational effect of unmet family needs on the relationship between MS impairments and caregiver mental health. These findings suggest that intervention research on MS caregivers in Latin America may consider focusing on caregiver mental health problems by addressing unmet family needs and teaching caregivers ways to manage the impairments of the individual with MS.

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Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge

Rajachandrakumar

Finlayson

2021

Health Social Care Comm

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Multiple sclerosis (MS) is a chronic, progressive neurological disease that often leads to limitations in a person's ability to fully engage in a wide range of daily activities, for example employment, home maintenance, childcare and self-care. Limitations may be a function of physical symptoms of the disease (e.g. fatigue, loss of balance, mobility, spasticity) or cognitive and emotional symptoms (e.g. cognitive impairment, depression), or a combination of factors (Cameron et al., 2013). Although some of the limitations experienced by people with MS are addressed through personal support or home-care services, the vast majority of assistance with daily activities is provided by family and friends (Zhang & Sun, 2020). These informal caregivers support people with MS to remain at home and

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Needs and Psychosocial Outcomes of Caregivers of Individuals with Multiple Sclerosis in Guadalajara, Mexico

Abstract: Multiple sclerosis (MS) is a chronic, disabling disease that has a major impact

Cited by 7 publications

References 85 publications

A Disproportionate Burden of Care: Gender Differences in Mental Health, Health-Related Quality of Life, and Social Support in Mexican Multiple Sclerosis Caregivers

A Disproportionate Burden of Care: Gender Differences in Mental Health, Health-Related Quality of Life, and Social Support in Mexican Multiple Sclerosis Caregivers

Mediational Model of Multiple Sclerosis Impairments, Family Needs, and Caregiver Mental Health in Guadalajara, Mexico

Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge

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