‘No‐one has listened to anything I’ve got to say before’: Co‐design with people who are sleeping rough

Mullins, Robyn; Kelly, Bridget E; Chiappalone, Patrick; Lewis, Virginia

doi:10.1111/hex.13235

Cited by 10 publications

(43 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A key project output was to develop a patient-based product for each of the service pathways. Mullins et al (2021) [6] articulate the premise upon which Co-design is built rests with perceiving 'lived experience' as a form of expertise. This was evident in this project, as the process demanded the teams listened and understood the patient experience, as presented by each of the patient representatives.…”

Section: Discussionmentioning

confidence: 99%

“…Co-production aims to challenge this tacit imbalance of power held within groups of individuals, who make important decisions about other's lives, livelihoods and bodies, particularly at the point of illness and vulnerability. Moreover, Co-design is based on long-standing practices such as community engagement and public participation [6]. Co-design therefore seeks to change this imbalance of power, through methodologically building new relationships, capability and capacity for clinicians and patient representatives through the process of co-created solutions [7].…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Co-Designing Health Care Solutions with Patient Representatives and Clinicians in a Large Acute Hospital Setting: Process and Engagement

2023

Int J Nurs Health Care Res

View full text Add to dashboard Cite

The benefits of involving patients and wider members of the public as partners in care are being increasingly recognised internationally. Co-design is one of the methods reported to promote patient-based health service improvements and offers a participatory approach to engage patients and citizens in solving health care challenges. However, current limitations are levelled at this corpus of work, indicating a lack of sustainability and substantive evidence of any known associated processes that can yield sustainable longer-term patient benefit. This service improvement project was underpinned by a Human Centred Design (HCD) methodology incorporating the Design Council's process Discover, Define, Develop and Deliver [1]. This assisted in providing a participatory framework of co-produced work over a twelve-month period with three clinical pathway teams, Stroke, Children and Young People (CYP) and Learning and Developmental Disabilities (LD.) Meeting specific project objectives, patient-based projects were developed using a toolkit and Collaborative Action Plans that steered involvement throughout. Evaluative results elicited three themes, generating a product idea together, acknowledging the contribution of all, barriers and challenges. Within this, the clinicians and patient representatives reported the value of having a safe space to carry out experienced based work with their respective patient representatives. Additionally, they reported the chosen HCD framework guided the process of engagement determining co-produced health care solutions to patient derived challenges. Conclusions are drawn that suggest further work and research is required to testbed the 'how to' processes associated with successful co-design in health and social care. This could provide an empirical basis for the value and process associated with sustainable human centred design required at both a micro and macro level of healthcare.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Co-Designing Health Care Solutions with Patient Representatives and Clinicians in a Large Acute Hospital Setting: Process and Engagement

2023

Int J Nurs Health Care Res

View full text Add to dashboard Cite

show abstract

“…Making sure the research team includes all those who can make a contribution, involving diverse stakeholders and being accessible and inclusive. 5,27,33 Empowerment and choice Sharing power…”

Section: Collaborationmentioning

confidence: 99%

“…Using the knowledge of all those working together on the research, building on people's assets and the experiences they bring—everyone is of equal importance. Making sure the research team includes all those who can make a contribution, involving diverse stakeholders and being accessible and inclusive 5,27,33 …”

Section: Introductionmentioning

confidence: 99%

Trauma‐informed co‐production: Collaborating and combining expertise to improve access to primary care with women with complex needs

McGeown

Potter

Stone

et al. 2023

Health Expectations

View full text Add to dashboard Cite

IntroductionHealth, social care, charitable and justice sectors are increasingly recognising the need for trauma‐informed services that seek to recognise signs of trauma, provide appropriate paths to recovery and ensure that services enable people rather than retraumatise. Foundational to the development of trauma‐informed services is collaboration with people with lived experience of trauma. Co‐production principles may provide a useful framework for this collaboration, due to their emphasis on lived experience, and intent to address power imbalances and promote equity. This article aims to examine trauma‐informed and co‐production principles to consider the extent to which they overlap and explore how to tailor co‐production approaches to support people who have experienced trauma.MethodsBridging Gaps is a collaboration between women who have experienced complex trauma, a charity that supports them, primary care clinicians and health researchers to improve access to trauma‐informed primary care. Using co‐production principles, we aimed to ensure that women who have experienced trauma were key decision‐makers throughout the project. Through reflective notes (n = 19), observations of meetings (n = 3), interviews with people involved in the project (n = 9) and reflective group discussions on our experiences, we share learning, successes and failures. Data analysis followed a framework approach, using trauma‐informed principles.ResultsCo‐production processes can require adaptation when working with people who have experienced trauma. We emphasise the need for close partnership working, flexibility and transparency around power dynamics, paying particular attention to aspects of power that are less readily visible. Sharing experiences can retrigger trauma. People conducting co‐production work need to understand trauma and how this may impact upon an individual's sense of psychological safety. Long‐term funding is vital to enable projects to have enough time for the establishment of trust and delivery of tangible results.ConclusionsCo‐production principles are highly suitable when developing trauma‐informed services. Greater consideration needs to be given as to whether and how people share lived experiences, the need for safe spaces, honesty and humility, difficult dynamics between empowerment and safety and whether and when blurring boundaries may be helpful. Our findings have applicability to policy‐making, funding and service provision to enable co‐production processes to become more trauma‐informed.Public ContributionBridging Gaps was started by a group of women who have experienced complex trauma, including addiction, homelessness, mental health problems, sexual exploitation, domestic and sexual violence and poverty, with a general practitioner (GP) who provides healthcare to this population, alongside a support worker from the charity One25, a charity that supports some of the most marginalised women in Bristol to heal and thrive. More GPs and healthcare researchers joined the group and they have been meeting fortnightly for a period of 4 years with the aim of improving access to trauma‐informed primary care. The group uses co‐production principles to work together, and we aim to ensure that women who have experienced trauma are key decision‐makers throughout our work together. This article is a summary of our learning, informed by discussion, observations and interviews with members of the group.

show abstract

“…Using the knowledge of all those working together on the research, building on people's assets and the experiences they bring -everyone is of equal importance. Making sure the research team includes all those who can make a contribution, involving diverse stakeholders and being accessible and inclusive 5,27,33 Empowerment and Choice Groups recognise the resilience and strength of those who have survived trauma. They seek to support people who have survived trauma to develop their own plans and goals, recognising their resilience and ability to heal and promote recovery from trauma.…”

Section: Development Of the Co-production Groupmentioning

confidence: 99%

Trauma informed co-production: Collaborating and combining expertise to improve access to primary care with women with complex needs

McGeown

Potter

Stone

et al. 2023

Preprint

View full text Add to dashboard Cite

Introduction: Health, social care, charitable and justice sectors are increasingly recognising the need for trauma-informed services that seek to recognise signs of trauma, provide appropriate paths to recovery, and ensure that services enable people rather than re-traumatise. Foundational to the development of trauma-informed services is collaboration with people with lived experience of trauma. Co-production principles may provide a useful framework for this collaboration, due to their emphasis on lived experience, and intent to address power imbalances and promote equity. This article aims to examine trauma-informed and co-production principles to consider the extent to which they overlap and explore how to tailor co-production approaches to support people who have experienced trauma. Methods: Bridging Gaps is a collaboration between women who have experienced complex trauma, a charity that supports them, primary care clinicians and health researchers to improve access to trauma-informed primary care. Using co-production principles, we aimed to ensure that women who have experienced trauma were key decision-makers throughout the project. Through reflective notes (n=19), observations of meetings (n=3), interviews with people involved in the project (n=9) and reflective group discussions on our experiences, we share learning, successes and failures. Data analysis followed a framework approach, using trauma-informed principles. Results: Co-production processes can require adaptation when working with people who have experienced trauma. We emphasise the need for close partnership working, flexibility, and transparency around power dynamics, paying particular attention to aspects of power that are less readily visible. Sharing experiences can re-trigger trauma. People conducting co-production work need to understand trauma and how this may impact upon an individual's sense of psychological safety. Long-term funding is vital to enable projects to have enough time for establishment of trust and delivery of tangible results. Conclusions: Co-production principles are highly suitable when developing trauma-informed services. Greater consideration needs to be given as to whether and how people share lived experiences, the need for safe spaces, honesty and humility, difficult dynamics between empowerment and safety, and whether and when blurring boundaries may be helpful. Our findings have applicability to policy-making, funding and service provision to enable co-production processes to become more trauma-informed.

show abstract

‘No‐one has listened to anything I’ve got to say before’: Co‐design with people who are sleeping rough

Cited by 10 publications

References 20 publications

Co-Designing Health Care Solutions with Patient Representatives and Clinicians in a Large Acute Hospital Setting: Process and Engagement

Co-Designing Health Care Solutions with Patient Representatives and Clinicians in a Large Acute Hospital Setting: Process and Engagement

Trauma‐informed co‐production: Collaborating and combining expertise to improve access to primary care with women with complex needs

Trauma informed co-production: Collaborating and combining expertise to improve access to primary care with women with complex needs

Contact Info

Product

Resources

About