Not a nurse but more than a mother: the everyday geographies of mothering children with complex heath care needs

Wilkinson, Catherine; Bray, Lucy; Carter, Bernie; Keating, Paula

doi:10.1080/14733285.2020.1755420

Cited by 5 publications

(8 citation statements)

References 66 publications

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“…Parenting has become an intensified task over the last decade in several ways, whether through parents' classes and workshops, "how-to" manuals, or expert advice. It has been the object of moralisation throughout history and has spawned conflicting discourses around the ideal approach to childrearing (Faircloth et al, 2013;Wilkinson et al, 2021). In the context of children's chronic disease, where we position our contribution, the extra efforts that parents of children with complex care needs have to make has been theorised as "intense parenting" (Woodgate et al, 2015).…”

Section: Readiness Parentingmentioning

confidence: 99%

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Readiness parenting: practices of care by parents of children with chronic kidney disease in Portugal

Sousa

Goes

Wickström

2023

Families, Relationships and Societies

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Parents of a child with chronic kidney disease (CKD) must safely perform advanced care and treatment while at the same time allowing the child some freedom and maintaining everyday parenting and family tasks. Drawing on interviews with primary caregivers of children with CKD in Portugal, we examine the context of raising a child with CKD and how the parents practise their parenthood. The study takes inspiration from parenting studies and child studies and explores how good parenthood is constructed. Based on thematic analysis, three core themes emerged: protecting the child, involving the child in their treatment, and transferring responsibility. The transformation of life-limiting circumstances into a life that worked well for both parents and their child represents what we call ‘readiness parenting’. Assessing risks, supporting the child’s autonomy, and relating to social norms required constant vigilance and readjustments as well as negotiations about parental responsibility.

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Section: Readiness Parentingmentioning

confidence: 99%

“…In line with the literature, our findings also suggest that the parenting approach evolves according to the emergent needs of the child (cf. Lee et al, 2014;Trnka, 2017;Wilkinson, et al, 2021), which, in the case of chronic disease, requires parents to be fully prepared for whatever emerges, and always ready to act.…”

Section: Readiness Parentingmentioning

confidence: 99%

Readiness parenting: practices of care by parents of children with chronic kidney disease in Portugal

Sousa

Goes

Wickström

2023

Families, Relationships and Societies

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“…Caregivers face multiple challenges in bringing up a child with a CHC, with caregiver resilience dependent, in many ways, on access to resources (Lin et al, 2013; McConnell et al, 2014). Participants displayed resilience in overcoming adversity, including social and geographical isolation through online social connections; developing knowledge of the CHC and health system; and positively reframing their caregiving and the child's CHC (Wilkinson et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

“…Children with a CHC require significantly more complex caregiving than other children (Lamar et al, 2019; Swallow et al, 2012). Mothers are compelled to balance numerous roles simultaneously; motherhood, caregiving, work and home duties, requiring resourcing for this intense labour (Wilkinson et al, 2021). Our study showed that participants acknowledged the challenges they experienced in their dual roles of caregiving and mothering (S. M. Bristow et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

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Understanding maternal resilience; Lesson learnt from rural mothers caring for a child with a chronic health condition

Bristow

Usher

Power

et al. 2021

Journal of Clinical Nursing

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Aim: This study aimed to understand the lived experience of rural mothers caring for a child with a chronic health condition and to understand their perspectives on the support, services and resources they identify as necessary to effectively manage caregiving.Background: Maternal caregivers in rural areas experience difficulty accessing specialist health care for their child and can also experience geographical and social isolation. Understanding the factors that enable these maternal caregivers to overcome the challenges and adversities faced is crucial to help nurses identify and facilitate avenues for support and resources.Design: This study employed a phenomenological design. The study is reported in line with Consolidated criteria for reporting qualitative research guidelines (COREQ).Methods: Semi-structured interviews were conducted with 17 maternal caregivers in rural New South Wales, Australia, who had at least one child with a chronic health condition aged between 2-18 years. Data were collected from March to June 2018. Thematic analysis was used to develop a thematic framework. This paper reports on one of the major themes identified in this research, specifically maternal resilience.Results: Participants demonstrated maternal resilience by creating meaningful social connections, cultivating networks, developing problem-solving skills, enhancing their self-efficacy and finding a sense of purpose through hope and optimism. These strategies provide nurses insight into how some rural women overcome adversities associated with their maternal labour required in caring for a child with a chronic health condition. Conclusion:This study found that participants overcame the challenges related to their caregiving work, emerging as resilient caregivers. Understanding maternal resilience assists nurses to provide the services rural mothers in Australia need to care for their child with a CHC.

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Exploration of the advanced preparation nurse‐mother role in care of children with chronic disease: A narrative inquiry

Metersky,

Tan,

Al‐Hamad

et al. 2023

Journal of Clinical Nursing

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AimTo explore the lived experience of advanced preparation nurses (APNs) who are mothers (APN‐mothers) as they seek care in the Emergency Department for a child with a chronic disease.DesignQualitative, Narrative Inquiry.MethodsNarrative Inquiry was used to examine critical self‐reflections of four (n = 4) APN‐mothers. Directed by a question guide, participants engaged in the Narrative Reflective Process through metaphoric and artistic means.ResultsParticipants identified salient challenges associated with their experiences. Narrative threads that emerged include feelings around being discovered, unfair expectations by healthcare providers, feelings of guilt and the tension from competing roles: APN and mother.ConclusionAPN‐mothers represent a unique population with enhanced knowledge, skills and judgement; however, they indicate that there is insufficient communication and interprofessional collaboration between parents and Emergency Department staff. Further research is needed to foster and improve therapeutic relationships between APN‐mothers and healthcare providers.Implications for the Profession and/or Patient CareFindings can inform the development of family centred care guidelines for healthcare professional parents and their children.ImpactThis study explores the experiences of an understudied population. This research will impact APN‐mothers, healthcare professionals in the Emergency Department as well as nursing students and researchers.Reporting MethodEQUATOR guidelines and SRQR reporting method used.Patient or Public ContributionAPN‐mothers, caregivers and support persons of children with chronic disease enacted investigator‐participant roles and were involved in each step of the study process. In addition, some patients (participants' children with chronic diseases) were included in data collected.

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Not a nurse but more than a mother: the everyday geographies of mothering children with complex heath care needs

Cited by 5 publications

References 66 publications

Readiness parenting: practices of care by parents of children with chronic kidney disease in Portugal

Readiness parenting: practices of care by parents of children with chronic kidney disease in Portugal

Understanding maternal resilience; Lesson learnt from rural mothers caring for a child with a chronic health condition

Exploration of the advanced preparation nurse‐mother role in care of children with chronic disease: A narrative inquiry

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