“Not a whole woman”: an interpretative phenomenological analysis of the lived experience of women’s body image and sexuality following amputation

Khan, Yasmin; O’Keeffe, Fiadhnait; Nolan, Maeve; Stow, Jacqui; Davenport, John

doi:10.1080/09638288.2019.1622797

Cited by 44 publications

(37 citation statements)

References 58 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Many studies have explored body image disturbance (Senra et al, 2012;Norlyk et al, 2013;McDonald et al, 2014;Norlyk et al, 2016;Khan et al, 2019) and changed self-identify for patients who have undergone major amputations. In the present study, we found that body image and anxiety was a concern for the participants with both major and minor amputation.…”

Section: Social Awareness and Support To Regain Normalitymentioning

confidence: 99%

“…Effective wound care in primary care as part of continuity of care is therefore essential for patients' recovery physically and psycho-socially. Several recent qualitative studies explored issues related to patients' mobility and focussed on the perceptions of declined functionality and complicated prosthesis adjustment of people living with amputation (Norlyk et al, 2016;Anderson et al, 2019;Batten et al, 2019;Khan et al, 2019). These aspects emphasise the challenge and complexity of the rehabilitation phase of major DLEA after wound healing.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Struggling for normality: experiences of patients with diabetic lower extremity amputations and post-amputation wounds in primary care

Zhu

Goh

Chew

et al. 2020

Prim Health Care Res Dev

View full text Add to dashboard Cite

Aim: To explore the experiences of patients living with diabetic lower extremity amputation (DLEA) and its post-amputation wound in primary care. Background: DLEA, including both minor and major amputation, is a life-altering condition that brings numerous challenges to an individual’s life. Post-amputation physical wound healing is complicated and challenging because of wound dehiscence and prolonged healing times. Understanding patients’ experiences after DLEA with a post-amputation wound will enable healthcare professionals to develop interventions to assist patients in physical healing and psychosocial recovery. Methods: This study employs a qualitative design using interpretative phenomenological analysis (IPA). A purposive maximum variation sample of nine patients who had had lower extremity amputations and post-amputation wound attributed to diabetes in the previous 12 months was recruited from a primary care setting in Singapore. Semi-structured audio recorded one-to-one interviews with a duration of 45–60 min each were conducted between September 2018 and January 2019. The interviews were transcribed verbatim and analysed using IPA. Findings: The essential meaning of the phenomenon ‘the lived experiences for patients with DLEA and post-amputated wound’ can be interpreted as ‘struggling for “normality”’ which encompasses four domains of sense making: physical loss disrupted normality, emotional impact aggravated the disrupted normality, social challenges further provoked the disrupted normality, and attempt to regain normality. The study highlights the complex physical and psychosocial transition facing patients after DLEA before post-amputation wound closure. In primary care, an amputation, whether minor or major, is a life-altering experience that requires physical healing, emotional recovery, and social adaptation to regain normality. Patients living with DLEA and a post-amputation wound may benefit from an interdisciplinary team care model to assist them with physical and psychosocial adjustment and resume normality.

show abstract

Section: Social Awareness and Support To Regain Normalitymentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Struggling for normality: experiences of patients with diabetic lower extremity amputations and post-amputation wounds in primary care

Zhu

Goh

Chew

et al. 2020

Prim Health Care Res Dev

View full text Add to dashboard Cite

show abstract

“…Although most of the participants felt the need to go on leading their lives, they reported problems adapting to the loss of physical function. Participants in previous studies have also described their problems adapting to their new bodies after limb loss (Barg et al, 2017; Ward Khan et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

“…A semi-structured pilot-tested interview guide was used for conducting the interviews (Figure 1). The interview guide was based on previous studies (Sahu et al, 2016; Stutts et al, 2015; Verbrugge, 2020; Verbrugge & Jette, 1994; Ward Khan et al, 2021; Xiuqun & Yuru, 2019) and the previous experiences and observations of the researchers. Additionally, the DPM (Verbrugge & Jette, 1994) logically help us got the information about the process of disability due to the amputation among individuals.…”

Section: Methodsmentioning

confidence: 99%

“…According to the DPM, individuals with LLA face many challenges (e.g., depression, anxiety, and worry; Shahsavari et al, 2020; Verbrugge, 2020; Verbrugge & Jette, 1994). These challenges often involve undesirable experiences after amputation, such as phantom pain, altered body image, anxiety, self-blame, social discomfort, and negative future perceptions (Christensen et al, 2016; Ward Khan et al, 2021). Previous studies showed that despite it is possible to develop physical function improvements with rehabilitation, particularly psychological outcomes following LLA still continue to deteriorate individuals’ lifes (Butler, 2017; Mazzone et al, 2020; Xiuqun & Yuru, 2019).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

“I Wish I Could Have My Leg”: A Qualitative Study on the Experiences of Individuals With Lower Limb Amputation

Seyman

Özçetin

2021

Clin Nurs Res

View full text Add to dashboard Cite

Amputation is commonly regarded as a lifesaving procedure. However, the loss of a body part can lead to permanent disability that can impact patients physically, psychologically, and socially. The aim of this study was to describe and understand the perspectives of patients with lower limb amputation (LLA) about their condition. The study uses a descriptive phenomenological design. Data were collected from 12 patients. The researchers conducted interviews using semi-structured questions. MAXQDA was used for qualitative software support in managing the interview data. Data were transcribed. The participants were aged 61.3 ± 10.8 years. Three themes emerged from the qualitative data: (i) losing control over one’s own life, (ii) dreams versus the realities of life, and (iii) future perceptions. Most of the participants emphasized that they face undesirable experiences in their post-amputation lives. The findings of the present study provide novel insight into how individuals subjectively experience life after LLA.

show abstract

Experiences of middle‐aged individuals with lower extremity amputation caused by diabetic foot ulcer after disability in China: A qualitative study

Xu,

Cheng,

Wang

et al. 2024

Nursing Open

View full text Add to dashboard Cite

AimTo understand the experiences of individuals who undergo LEA due to DFU after disability.DesignA descriptive research design in qualitative research.MethodsSemi‐structured interviews were used in this qualitative descriptive study. Eleven middle‐aged patients (45–59 years) who underwent LEA due to DFU were purposively selected and interviewed. Qualitative data were thematically analysed.ResultsThree themes and 10 subthemes were identified. The themes were (1) role function confusion, (2) self‐concept stress and (3) unreasonable objective support. Subthemes included (1) weakened career role, (2) family role reversal, (3) social role restriction, (4) over‐focusing on appearance, (5) immersion in patient experience, (6) living with faith, (7) polarization of independent consciousness, (8) low perceived benefits of peer support, (9) existence of treatment disruption and (10) poor participation in medical decision‐making.

show abstract

“Not a whole woman”: an interpretative phenomenological analysis of the lived experience of women’s body image and sexuality following amputation

Cited by 44 publications

References 58 publications

Struggling for normality: experiences of patients with diabetic lower extremity amputations and post-amputation wounds in primary care

Struggling for normality: experiences of patients with diabetic lower extremity amputations and post-amputation wounds in primary care

“I Wish I Could Have My Leg”: A Qualitative Study on the Experiences of Individuals With Lower Limb Amputation

Experiences of middle‐aged individuals with lower extremity amputation caused by diabetic foot ulcer after disability in China: A qualitative study

Contact Info

Product

Resources

About