O viver com a doença falciforme: percepção de adolescentes

Marques, Larissa Nascimento; Cavalcanti, Alessandra; Pereira, Andrea Ruzzi

doi:10.11606/issn.2238-6149.v26i1p109-117

Cited by 16 publications

(15 citation statements)

References 6 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Thus, families are more inclined to work with informal and uncertain services, without the security of a monthly income. 47 This aspect is also reflected in the schooling of children with SCA from families with low socioeconomic status, who have lower school performance, with little possibility of access to reinforcement activities or other type of support that contributes to performance improvement. 16 …”

Section: Discussionmentioning

confidence: 99%

Características Socioeconômicas E Nutricionais De Crianças E Adolescentes Com Anemia Falciforme: Uma Revisão Sistemática

Jesus

Konstantyner

Lôbo

et al. 2018

Rev. paul. pediatr.

View full text Add to dashboard Cite

Objective: To describe the socioeconomic and nutritional characteristics of children and adolescents with sickle cell anemia.Data sources: The present study is a systematic literature review based on published scientific articles. The searches were carried out using the electronic database of the National Library of Medicine, National Institutes of Health- PubMed. Two searches of articles published in the last 20years and without limitation of language were carried out. Thefirst one started from the Medical Subject Headings term “Anemia, Sickle Cell” associated with “Socioeconomic Factors”; and the second started from the term “Anemia, Sickle Cell” associated with “Anthropometry”. Thesearches were directed to research conducted on humans in the age group from 0 to 18years.Data synthesis: The final selection was composed by 11 articles on socioeconomic characteristics and 21articles on nutritional characteristics. Allstudies included children and adolescents with sickle cells disease (age range 0-18years), both genders, and most of them of black ethnicity. Families of children and adolescents with sickle cell anemia were of predominantly low socioeconomic status. Parents had lower educational levels when compared to parents of healthy children and adolescents. Body measurements (weight and height) and anthropometric indicators of children with sickle cell anemia were often lower when compared to healthy groups or reference populations.Conclusions: Children and adolescents with sickle cell anemia have socioeconomic limitations and worse nutritional conditions, when compared to reference populations. These limitations may lead to worse growth and greater occurrence of possible complications that can impair their quality of life.

show abstract

Section: Discussionmentioning

confidence: 99%

Características Socioeconômicas E Nutricionais De Crianças E Adolescentes Com Anemia Falciforme: Uma Revisão Sistemática

Jesus

Konstantyner

Lôbo

et al. 2018

Rev. paul. pediatr.

View full text Add to dashboard Cite

show abstract

“…Pain was considered a limiting factor for activities of daily living and for leisure activities, confirming the hypothesis that pain associated with SCD may cause physical and emotional imbalance (Schneider & Medeiros, 2012;Freire et al, 2015;Marques et al, 2015).…”

Section: Discussionmentioning

confidence: 56%

Relationship between painful manifestations and the use of hydroxyurea in children and adolescents with sickle cell disease

Lira

Lopes

Veras

et al. 2020

RSD

View full text Add to dashboard Cite

To analyze the profile of pain, its triggering factors, and the relationship with the use of hydroxyurea in children and adolescents with sickle cell disease. This was an analytical cross-sectional study of 80 patients with sickle cell disease, both male and female, aged 6 to 18 years, seen at the Center for Hematology and Hemotherapy of Pernambuco, Brazil. To assess the pain profile, forms with the adapted visual scale from the “Fear of Dental Pain Questionnaire – Short Form” were used. Fisher's exact test was used to evaluate the association between pain manifestations and the use of hydroxyurea. Pain was reported by 68.7% of the patients and 52.7% of them reported severe pain, which eventually affected their daily routines. Physical triggers presented the highest rate (78.2%). The most frequent sites of pain were the trunk (80%) and lower extremities (54.5%), and constricting (40%) and deep (40%) pain were the most frequent types. Thirty percent of the patients reported being treated with hydroxyurea for prevention of painful events. It is concluded that the patients with sickle cell disease showed a high rate of painful events and physical factors, such as cold temperature, trauma and physical effort, were considered to be the most prevalent. There was no association between the use of hydroxyurea and pain improvement.

show abstract

“…Pessoa com DF necessita utilizar medicamentos, vitaminas e vacinas com frequência, para retardar complicações. Estas medidas, contudo, impõem uma rígida rotina de cuidados, visitas aos serviços e gestão do corpo que lhe recorda constantemente o status de ser adoecido (19) . O medo de morrer, relatado pelos participantes, também é destaque em alguns estudos realizados com pacientes crônicos (16) .…”

Section: Discussionunclassified

Estudo Da Não Adesão Ao Tratamento Da Doença Falciforme: O Caso De Uma Família

et al. 2020

View full text Add to dashboard Cite

Objetivo: compreender os aspectos que influenciam a não adesão ao tratamento da doençafalciforme em uma família com vários membros adoecidos.Método: estudo de caso único realizado com quatro irmãos com doença falciforme acompanhadosem um Centro de Referência no estado da Bahia, Brasil. Os dados foram colhidos por questionário,entrevista aberta e desenho-estória com tema.Resultados: os temas emergidos foram: Preconceito e discriminação promovem o autoisolamento;Dificuldade para deslocamento impede as idas ao serviço; A unidade de saúde é um espaço queamplia dúvidas e incertezas; Desesperança leva à desistência do tratamento.Conclusão: amparo social, suporte emocional, instrumental e educacional são essenciais parareduzir a vulnerabilidade da família que vivencia a doença falciforme. Conteúdos abordados nasunidades de saúde necessitam incluir perspectivas de experiências positivas, fomentando esperançae construção de sentidos para a vida no processo de adoecimento crônico, a fim de aumentar aadesão ao tratamento.

show abstract

O viver com a doença falciforme: percepção de adolescentes

Cited by 16 publications

References 6 publications

Características Socioeconômicas E Nutricionais De Crianças E Adolescentes Com Anemia Falciforme: Uma Revisão Sistemática

Características Socioeconômicas E Nutricionais De Crianças E Adolescentes Com Anemia Falciforme: Uma Revisão Sistemática

Relationship between painful manifestations and the use of hydroxyurea in children and adolescents with sickle cell disease

Estudo Da Não Adesão Ao Tratamento Da Doença Falciforme: O Caso De Uma Família

Contact Info

Product

Resources

About