One Familyʼs Experience With Head Injury: A Phenomenological Study

Johnson, Brenda P.

doi:10.1097/01376517-199504000-00010

Cited by 16 publications

(23 citation statements)

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“…Social welfare, for example, health and social insurance and social services, are also examples of formal care. Earlier studies from an international point of view confirm the great importance of informal support as meaningful for life satisfaction and outcomes after TBI (Freeman, 1997;Johnson, 1995). No earlier Swedish studies have been found explicitly focusing on support from relatives or next of kin in the context of TBI.…”

Section: Meaningful Supportmentioning

confidence: 91%

“…The ambition in this research is to describe the brain injured and their experiences of their own everyday life as injured persons. Some studies have described and illuminated the support provided by the family (Johnson, 1995) and (Hodgkinson et al, 2000). Similarly, the current project will investigate the brain-injured experiences of support, but within a Swedish context.…”

Section: Literature Reviewmentioning

confidence: 95%

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Adults with Acquired Traumatic Brain Injury: Experiences of a Changeover Process and Consequences in Everyday Life

Strandberg

2009

Social Work in Health Care

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The purpose of this study is to illuminate the changeover process, support, and consequences experienced by adults who acquired traumatic brain injury (TBI). Fifteen persons were in-depth interviewed using a semi-structured interview guide. Data were analyzed by latent-content analysis and structured into six themes. Consequences were negative as well as positive. Significant others were important as a driving force for training and life-situation. The informants were initially satisfied with social supports but in the longer term became more critical regarding accessibility to such supports. The majority had difficulties in returning to working life after injury. The outcomes seemed to be a prolonged process, probably never-ending, which gradually became integrated as a part of life.

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Section: Meaningful Supportmentioning

confidence: 91%

Section: Literature Reviewmentioning

confidence: 95%

Adults with Acquired Traumatic Brain Injury: Experiences of a Changeover Process and Consequences in Everyday Life

Strandberg

2009

Social Work in Health Care

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“…With a few notable exceptions (Carson, 1993; Chwalisz & Stark-Wroblewski, 1996; Gill, Sander, Robins, Mazzei, & Struchen, 2011; Godwin, Chappell, & Kreutzer, 2014; Hammond, Davis, Whiteside, Philbrick, & Hirsch, 2011; Johnson, 1995; Lefebvre, Cloutier, & Josee Levert, 2008; Rotondi, Sinkule, Balzer, Harris, & Moldovan, 2007), research on caregivers of individuals with TBI has relied on quantitative methods where the outcomes of interest are narrowly defined variables, such as depression or stress. This approach is restricted by a lack of quantitative measures that are specifically designed to assess health related quality of life (HRQOL) in caregivers of individuals with TBI (Thompson, 2009).…”

Section: Introductionmentioning

confidence: 99%

“…Whereas quantitative approaches provide the average or “group” perspective in the form of numerical output, a qualitative approach allows researchers to capture the individual’s point-of-view in the form of rich, personal descriptions, or narratives (Denzin & Lincoln, 2000, 2003). Previous qualitative research on TBI caregivers has focused on either parents (Carson, 1993) or partners (Chwalisz & Stark-Wroblewski, 1996), health care and service needs (Rotondi et al, 2007), couples issues such as intimacy and marital adjustment (Gill et al, 2011; Godwin et al, 2014; Hammond et al, 2011), or other well-defined topics such as a single family’s response to TBI (Johnson, 1995) or social reintegration (Lefebvre et al, 2008). To date, no qualitative study has provided a broad examination of both negative and positive impacts of providing care on the lives of caregivers or provided direct comparisons between the caregiver experiences of parents and partners.…”

Section: Introductionmentioning

confidence: 99%

Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life

Kratz

Sander

Brickell

et al. 2015

Neuropsychological Rehabilitation

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The objective of this qualitative study was to examine how family caregivers of individuals with traumatic brain injury (TBI) describe their quality of life in the context of their caregiving role. Fifty-two caregivers of adults with moderate or severe TBI (n = 31 parents, n= 21 partners/spouses (77% female, Mean age = 57.96 year, range = 34-78 years) were recruited from three data collection sites to participate in focus groups. Thematic content analysis was used to identify two main meta-themes: Caregiver Role Demands and Changes in Person with TBI. Prominent subthemes indicated that caregivers are (a) overburdened with responsibilities, (b) lack personal time and time for self-care, (c) feel that their life is interrupted or lost, (d) grieve the loss of the person with TBI, and (e) endorse anger, guilt, anxiety, and sadness. Caregivers identified a number of service needs. A number of subthemes were perceived differently by partner versus parent caregivers. The day-to-day responsibilities of being a caregiver as well as the changes in the person with the TBI present a variety of challenges and sources of distress for caregivers. Although services that address instrumental as well as emotional needs of caregivers may benefit caregivers in general, the service needs of parent and partner caregivers may differ.

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“…Questionnaire studies and phenomenological studies have shown that caregivers often report a need for more accurate information from health professionals (Kreutzer et al, 1994;Johnson, 1995). This information is required soon after the patient is discharged from hospital and often irrespective of the severity of injury or level of functional deficit .…”

Section: Information Provisionmentioning

confidence: 99%

Caregiver stress in traumatic brain injury

Blake

2008

International Journal of Therapy and Rehabilitation

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Aims: Many patients experience physical, behavioural, cognitive and emotional problems following traumatic brain injury (TBI). They may require continuing care for many years, most of which is provided by informal caregivers, such as spouses, parents, or other family members. The caregiving role is associated with a range of adverse effects including anxiety, depression, poor physical health and lowered quality of life. This article explores issues around caregiver stress; highlighting interventions for this group and areas for further research. Methods:Literature exploring the impact of caregiving, its influencing and alleviating factors and interventions for caregivers of people with TBI is discussed, with brief critical analysis of key studies. Findings:Research suggests that caregiver characteristics, coping strategies, their appraisal of the situation and social networks may be associated with the amount of distress experienced. Many caregivers have unmet needs such as respite care and information provision on TBI. Providing information may help to alleviate strain.Community-based family therapies providing education, support and counselling can help to decrease distress and improve aspects of family functioning, although evidence for these is lacking. Conclusions:There is a need for more well-designed, controlled studies evaluating the impact of interventions to alleviate caregiver strain.

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One Familyʼs Experience With Head Injury: A Phenomenological Study

Cited by 16 publications

References 0 publications

Adults with Acquired Traumatic Brain Injury: Experiences of a Changeover Process and Consequences in Everyday Life

Adults with Acquired Traumatic Brain Injury: Experiences of a Changeover Process and Consequences in Everyday Life

Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life

Caregiver stress in traumatic brain injury

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