Opinion statement on the minimal acceptable standards of healthcare in cerebral palsy

Abstract

Twenty-two recommendations were made. These were considered the minimum standards of care in a district general hospital. The emphasis was on the organisation and delivery of healthcare for children with CP. The statement is intended to stimulate debate especially in relation to the equity of service provision throughout the country and may be used to inform purchasers of healthcare. Similarly, it may also be useful to providers of healthcare as an audit tool.

Parents’ Experiences of Health Care for Their Children With Cerebral Palsy

“…Despite the theoretical change toward a family-centered health care service delivery approach, parents of children with CP continue to experience dissatisfaction with their child’s care (Darrah, Magill-Evans, & Adkins, 2002; Irochu-Omare, 2004; McKay & Hensey, 1990; Reid et al, 2011). In addition, the guidelines and standards of care for this population have been developed without the input of children and their parents (Bakheit et al, 2001; Berker & Yalçin, 2010; Koops, Burdo-Hartman, & Dodge, 2008; Nickel & Desch, 2000; Ohio Department of Health, 1995; Seattle Children’s Hospital, 2011; Wilson & Cooley, 2000). This is at variance with the principles of family-centered care.…”

Perfil Epidemiológico De Pacientes Com Paralisia Cerebral Assistidos Pelo Serviço De Ortopedia Da Oficina Ortopédica Fixa/Ceriii/Ueafto/CCBS/Uepa

“…O estudo realizado por Bakheit et al (2001) estabeleceu vinte e duas recomendações acerca do padrão mínimo de cuidados que deve ser realizado pela equipe multiprofissional em pacientes com Paralisia Cerebral, enfatizando a importância desta equipe na reabilitação.…”