Orthopaedic Care Coordination for the Intellectually and Developmentally Disabled Adult in the Residential Care Setting

Kurre, Paula A.

doi:10.1097/nor.0000000000000080

Cited by 3 publications

(4 citation statements)

References 2 publications

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“…Many individuals with IDD experience some difficulty both with expressive and receptive communication skills. Several studies reported both expressive and receptive communication challenges experienced by adults with IDD as a barrier to accessing health care (Greenwood, Dreyfus, & Wilkinson, 2014; Kurre, 2014; Nicolaidis et al, 2015; Warfield, Crossman, Delahave, Deer Weerd, & Kuhlthau, 2015; Zerbo, Massolo, Qian, & Croen, 2015). Adults with IDD either had difficulty understanding the information from their provider or were not able to effectively communicate their thoughts, wants, or needs regarding their health or need for health services.…”

Section: Resultsmentioning

confidence: 99%

“…Carroll (2015) found that adults with cerebral palsy (CP) had difficulty with insurance companies approving needed services like physical therapy to maintain function. Kurre (2014) noted the complexities of providers staying up to date with Medicaid and Medicare regulations which affected care access. Adults with ASD identified employment challenges which resulted in poverty and/or difficulty maintaining insurance coverage (Nicolaidis et al, 2015).…”

Section: Resultsmentioning

confidence: 99%

“…Decreased health provider knowledge or education on treating adults with IDD. Many health care institutions are not always equipped or trained to work with the IDD population (Alexander, Bullock, & Maring, 2008;Bruder et al, 2012;Kurre, 2014;Levy et al, 2006;Ward, Nichols, & Freedman, 2010;Warfield et al, 2015). One survey of 1,500 physicians reported that approximately 10% of physicians felt uncomfortable treating individuals with Down Syndrome due to lack of knowledge, while 14.3% stated that they felt neutral (Pace, Shin, & Rasmussen, 2011).…”

Section: Environmentmentioning

confidence: 99%

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Health Care Access for Adults With Intellectual and Developmental Disabilities: A Scoping Review

Williamson

Contreras

Rodriguez

et al. 2017

OTJR: Occupational Therapy Journal of Research

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Adults with intellectual and/or developmental disabilities (IDD) often experience health disparities. To address disparities, Healthy People 2020 includes specific disability and health goals focused on improving health care access. The study's purpose was to review the literature exploring health care access for adults with IDD to identify opportunities for occupational therapy research and practice. A scoping review was completed of articles discussing health care access among adults with IDD in the United States. Thirty-seven articles met the inclusion criteria. Results are framed using the ecology of human performance theory identifying person and environmental issues affecting health care access of adults with IDD. Opportunities exist for occupational therapy to improve participation and health of adults with IDD through engaging in research and practice efforts addressing health care access. Occupational therapy could develop interventions to establish skills and abilities and recommend changes to the health care environment.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Environmentmentioning

confidence: 99%

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Health Care Access for Adults With Intellectual and Developmental Disabilities: A Scoping Review

Williamson

Contreras

Rodriguez

et al. 2017

OTJR: Occupational Therapy Journal of Research

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“…13 Bununla birlikte fiziksel engeli olan bireylerin yaşadığı ortopedik zorluklar da göz önünde bulundurulduğunda, fiziksel olarak engelli bireyler hemşirelik bakım gereksinimi açısından özellikli hasta grubu olarak düşünülmelidir. 14 Araştırma fiziksel engeli olan hastaların hemşirelik bakım davranışı algıları ve bu algıyı etkileyen faktörlerin belirlenmesi amacıyla tanımlayıcı ve kesitsel olarak yapılmıştır.…”

Section: Hemşirelerunclassified

Fiziksel engelli olan hastaların hemşirelik bakım davranışı algısı ve etkileyen faktörlerin belirlenmesi

Molla,

Aslan

2023

SYBD

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Amaç: Araştırma fiziksel engeli olan hastaların hemşirelik bakım davranışı algıları ve bu algıyı etkileyen faktörlerin belirlenmesi amacıyla tanımlayıcı ve kesitsel olarak yapılmıştır. Yöntem: Araştırma, 17 devlet hastanesinde, fiziksel engeli bulunan 510 hastanın katılımı ile Mart-Mayıs 2018 tarihleri arasında gerçekleştirilmiştir. Veriler, ‘Tanıtıcı Özellikler Formu’, ‘Barthel Günlük Yaşam Aktiviteleri İndeksi’ ve ‘Bakım Davranışları Ölçeği-24’ kullanılarak toplanmıştır. Bulgular: Hastaların Bakım Davranışları Ölçeği toplam puan ortalamalarının cinsiyet, yaş, evde tek başına yaşam şekli, eğitim durumu, çalışma durumu, kronik hastalığa sahip olma, daha önce hastane deneyimi, hastaneden devamlı hizmet alma durumu ve hastane yatış gün sayısına göre istatistiksel olarak anlamlı bir farklılık gösterdiği belirlenmiştir. Hastaların; Barthel Günlük Yaşam Aktiviteleri İndeksi puanları, tanıtıcı özellikleri ve memnuniyet düzeyi arasında anlamlı ilişki saptanmıştır. Hastaların bakım davranışları üzerinde en etkili olan değişkenlerin sırasıyla; genel memnuniyet durumu, Barthel Günlük Yaşam Aktiviteleri İndeksi, hastanede ortalama yatış süresi, yaş grubu, cinsiyet ve hastaneden hizmet alma durumu gibi değişkenler olduğu bulunmuştur. Sonuç: Fiziksel engeli olan hastaların bağımlılık düzeyi, hemşirelik bakım davranışları algısı ve genel memnuniyet durumu yüksek bulunmuştur. Bu sonuçlar doğrultusunda hemşirelik bakımına daha fazla ihtiyacı olan hastaların memnuniyet durumunun arttırılması için hemşirelik bakım davranışı algısını arttıracak girişimler yapılabilir.

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Development of nursing quality care process metrics and indicators for intellectual disability services: a literature review and modified Delphi consensus study

Doody

Murphy

Lyons

et al. 2019

BMC Health Serv Res

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BackgroundNursing process quality care metrics and indicators are quantifiable measures of the nursing care delivered to clients. They can be used to identify and support nurses’ contribution to high quality, safe, client care and are lacking in specialist intellectual disability nursing. In a national Nursing Quality Care-Metrics project for Irish intellectual disability services, a set of nursing quality care process metrics and associated indicators were established for intellectual disability services.MethodsA two-stage design approach was undertaken; a broad scoping review of the literature and a modified Delphi consensus process. The Delphi included a four round e-Delphi survey and a consensus meeting. Four hundred one intellectual disability nurses working in Ireland were recruited for the surveys and 20 stakeholders attended the consensus meeting.ResultsFrom the review, 20 existing and 16 potential intellectual disability nursing metrics were identified for nurses to prioritise in the e-surveys. After the four survey rounds, 12 intellectual disability nursing metrics and 84 associated indicators were identified. Following the consensus meeting, these were reduced to 12 metrics and 79 indicators.ConclusionsThis first set of intellectual disability nursing process metrics and associated indicators has been identified for implementation in practice. These metrics while developed in Ireland have international relevance and their application and appropriateness in practice needs to be evaluated.

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Orthopaedic Care Coordination for the Intellectually and Developmentally Disabled Adult in the Residential Care Setting

Cited by 3 publications

References 2 publications

Health Care Access for Adults With Intellectual and Developmental Disabilities: A Scoping Review

Health Care Access for Adults With Intellectual and Developmental Disabilities: A Scoping Review

Fiziksel engelli olan hastaların hemşirelik bakım davranışı algısı ve etkileyen faktörlerin belirlenmesi

Development of nursing quality care process metrics and indicators for intellectual disability services: a literature review and modified Delphi consensus study

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