Outcomes and reflections on a consensus-building workshop for developing a spinal cord injury-related chronic pain research agenda

Hitzig, Sander L.; Hunter, Judith; Ballantyne, Elena C.; Katz, Joel; Rapson, Linda; Craven, B. Catharine; Boschen, Kathryn A.

doi:10.1080/10790268.2015.1136115

Cited by 11 publications

(3 citation statements)

References 72 publications

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“…Other efforts have been undertaken to develop strategies to improve SCI knowledge translation, 30 neuropathic pain management, 31 and to develop SCI-related research priorities. 32,33 As a result of the summit and subsequent call-toaction event, the following points were identified as key to understanding the care received by people with SCI: 1. Impacts of the current system of care for persons with SCI, namely the disparity in care between people with SCI and able-bodied peers resulting in a lower level of care for those with an SCI and increased likelihood of experiencing SCI-related complications (e.g.…”

Section: Discussionmentioning

confidence: 99%

Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit

Milligan

Lee

Smith

et al. 2018

The Journal of Spinal Cord Medicine

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Section: Discussionmentioning

confidence: 99%

Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit

Milligan

Lee

Smith

et al. 2018

The Journal of Spinal Cord Medicine

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“…Educational workshops prove instrumental in enhancing quality of care but can also help determine the next steps and identify areas for change. A Canadian initiative that engaged participants in workshops to establish research priorities in chronic pain emphasized the importance of knowledge transfer in project planning to improve the quality of life for those living with SCI [15].…”

Section: Introductionmentioning

confidence: 99%

Implementing Lived Experience Workshops in Regional Areas of British Columbia to Enhance Clinicians’ Confidence in Spinal Cord Injury Care: An Evaluation

Prins,

Donia,

Rockall

et al. 2024

Healthcare

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In British Columbia (BC), there are challenges accessing specialized spinal cord injury care and resources. This paper evaluated the impact of spinal cord injury health educational workshops delivered in regional communities that were informed by persons with lived experience. A community survey was conducted with 44 persons with lived experience in a BC region to identify priority SCI health-related topics. Twenty-five topics were ranked from 1–14, with bowel and bladder management ranked 1 and 4, sexual health ranked 5, and pressure injuries ranked 7. Clinical perspectives on the priorities were collected from 102 clinicians in the BC region, who independently ranked 14 of these SCI topics and considered the former 4 topics to be lower clinical priority (ranked 11–14). These priorities informed a series of SCI clinical education workshops held at healthcare facilities in three regional cities. The goals were to improve clinicians’ knowledge and confidence levels when managing spinal cord injury health and to facilitate person-centred care. Positive feedback demonstrated that educational workshops supported by lived experience perspectives effectively enhanced the clinicians’ understanding of spinal cord injury and their priorities. Future plans include engaging more administrators as part of this initiative and conducting workshops in other regions of BC.

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“…Our study is the first study that systematically evaluated the tool types available to support knowledge translation. Other studies focus on defining or assessing the quality of clinical practice guidelines (155)(156)(157), developing or validating tools (158-160), or prioritising research agendas (161,162). Some organisations use A-to-Z's and glossaries but without detailed analysis and comparisons.…”

Section: Strengths and Limitations Of The Studymentioning

confidence: 99%

Rules for tools

H.H.

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Chapter 2 The Dutch chaos case: a scoping review of knowledge and decision support tools available to clinicians in the Netherlands Chapter 3 Lost in definitions: reducing duplication and clarifying definitions of knowledge and decision support tools. A RAND-modified Delphi consensus study Chapter 4 A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting Chapter 5 Different knowledge, different styles of reasoning: a challenge for guideline development Chapter 6 The clinical practice guideline Palliative care for children and other strategies to enhance shared decision-making in pediatric palliative care: pediatricians' critical reflections Chapter 7 General discussion List of references Summary Samenvatting Valorisation chapter Developing quality criteria for patient-directed knowledge tools related to clinical practice guidelines. A development and consensus study

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Outcomes and reflections on a consensus-building workshop for developing a spinal cord injury-related chronic pain research agenda

Cited by 11 publications

References 72 publications

Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit

Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit

Implementing Lived Experience Workshops in Regional Areas of British Columbia to Enhance Clinicians’ Confidence in Spinal Cord Injury Care: An Evaluation

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