Outcomes in neonatal pulmonary atresia with intact ventricular septum A multiinstitutional study

Hanley, Frank L.; Sade, Robert M.; Blackstone, Eugene H.; Kirklin, John W.; Freedom, Robert M.; Nanda, Navin C.

doi:10.1016/s0022-5223(19)34223-0

Cited by 319 publications

(225 citation statements)

References 32 publications

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“…35 However, the increased female risk was not shown in non-HLHS specific heart lesions including atrioventricular septal defect defects, 36 tetralogy of Fallot with pulmonary atresia, 37 or pulmonary atresia with intact ventricular septum. 38 The diagnosis of TS is often missed in the neonatal period. 39,40 In fact, less than 30% of TS is diagnosed in the first year of life.…”

Section: Discussionmentioning

confidence: 99%

A population-based analysis of mortality in patients with Turner syndrome and hypoplastic left heart syndrome using the Texas Birth Defects Registry

Lara

Ethen

Canfield

et al. 2016

Congenital Heart Disease

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Section: Discussionmentioning

confidence: 99%

A population-based analysis of mortality in patients with Turner syndrome and hypoplastic left heart syndrome using the Texas Birth Defects Registry

Lara

Ethen

Canfield

et al. 2016

Congenital Heart Disease

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“…12 Evaluation of right ventricular hypoplasia is essential when considering therapeutic strategy for fetuses with PA/CPS. [13][14][15][16] Hanley et al have recently proposed a Z-value to apply in the evaluation of right ventricular size and in determining whether the hypoplastic right ventricle will tolerate biventricular surgical repair or not. 14 Because cardiac size is affected by fetal growth, the RV/LV internal diameter ratio in fetal echocardiographic analysis may be helpful in evaluating right ventricular size in utero.…”

Section: Discussionmentioning

confidence: 99%

Echocardiographic findings of pulmonary atresia or critical pulmonary stenosis and intact ventricular septum in utero

et al. 1999

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“…Previous reports on PA-IVS had largely been limited to single-center, small cohort studies, and many of the larger series were hindered by a broad span of inclusion dates (some spanning multiple decades of institutional experience), or very small cohorts where more contemporary approaches were employed but statistical power was wanting ( Figure 1). [10][11][12][13][14][15][16] The CCRC studied a contemporary, relatively large cohort of neonates with PA-IVS. We evaluated a host of echocardiographic and hemodynamic factors and identified that preintervention tricuspid regurgitation was associated with a host of important clinical end points following right ventricle decompression in neonates with PA-IVS.…”

Section: His Torymentioning

confidence: 99%

Comprehensive comparative outcomes in children with congenital heart disease: The rationale for the Congenital Catheterization Research Collaborative

Petit

Qureshi

Glatz

et al. 2019

Congenital Heart Disease

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Clinical research in the treatment of patients with congenital heart disease (CHD) is limited by the wide variety of CHD manifestations and therapeutic options as well as the generally low incidence of CHD. The availability of comprehensive, contemporary outcomes studies is therefore limited. This inadequacy may result in a lack of data-driven medical decision making. In 2013, clinician scientists at two centers began a research collaboration, the Congenital Catheterization Research Collaborative (CCRC). Over time, the CCRC has grown to include nine cardiac centers from across the United States, with a common data coordinating center. The CCRC seeks to generate high-quality, contemporary, statistically robust, and generalizable outcomes research which can help address important clinical questions in the treatment of CHD. To date, the CCRC has reported on multicenter outcomes in: neonates with congenital aortic stenosis, infants undergoing right ventricular decompression for pulmonary atresia and intact ventricular septum, and infants with ductal-dependent pulmonary blood flow. The CCRC has been successful at leveraging large multicenter cohorts of patients in a contemporary period to perform comparative studies. In the future, the CCRC plans to continue to perform hypothesis-driven retrospective and prospective observational studies of CHD populations where controversy exists or Individual University affiliate Hospital affiliate Membership Abstract Presentation at Society for Cardiovascular Angiography and Interventions 2018 Comparison of ductal arteriosus stent and Blalock-Taussig shunt as palliation for neonates with sole source ductal-dependent pulmonary blood flow: results from the congenital catheterization research collaborative 39Abstract Presentation at American Heart Association 2018Differences in somatic growth and mode of feeding by palliation strategy for infants with ductal-dependent pulmonary blood flow: results from the congenital catheterization research collaborative 18Abstract Presentation at American Heart Association 2018Comparison of outcomes at time of superior cavopulmonary connection between single ventricle patients with ductal-dependent pulmonary blood flow initially palliated with either Blalock-Taussig

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Outcomes in neonatal pulmonary atresia with intact ventricular septum A multiinstitutional study

Cited by 319 publications

References 32 publications

A population-based analysis of mortality in patients with Turner syndrome and hypoplastic left heart syndrome using the Texas Birth Defects Registry

A population-based analysis of mortality in patients with Turner syndrome and hypoplastic left heart syndrome using the Texas Birth Defects Registry

Echocardiographic findings of pulmonary atresia or critical pulmonary stenosis and intact ventricular septum in utero

Comprehensive comparative outcomes in children with congenital heart disease: The rationale for the Congenital Catheterization Research Collaborative

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