Pain and Palliative Care for People Living with HIV/AIDS in Asia

Coughlan, Marie

doi:10.1300/j354v17n03_13

Cited by 3 publications

(6 citation statements)

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“…Del Borgo et al .,[ 3 ] in their article on pain in HIV patients say that pain is one of the most frequent symptoms in these patients and it is present at all stages of disease although it is more frequent in the advanced stages. In her article on pain and palliative care for people living with HIV/AIDS in Asia, Marie Coughlan[ 4 ] observed that the prevalence of pain in HIV/AIDS patients is as high if not higher than in cancer patients. As early as 1999 Bernard N et al ,[ 5 ] said the prevalence of pain in HIV patients is between 30-80% and pain is frequently under-estimated by physicians.…”

Section: Introductionmentioning

confidence: 99%

Prevalence of pain in patients with HIV/AIDS: A cross-sectional survey in a South Indian state

Nair¹,

Mary²,

Prarthana³

et al. 2009

Indian J Palliat Care

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Objectives:Primary - To measure the prevalence of pain in HIV/AIDS with patients.Secondary - To assess the type, site, severity, management of pain and impact of pain on quality of life in these patients.Design:Multicentre cross-sectional survey (This paper is a pilot study).Settings:ART centre at St. John's Medical College Hospital, Bangalore and Snehadan, A supportive and care centre for HIV/ AIDS patients at Bangalore.Materials and Methods:Data sheet, Brief pain inventory and Short – Form McGill pain questionnaire.Subjects:This is an ongoing study and the pilot study includes 140 HIV/AIDS patients in different stages of the disease.Results:About 66.7% (28/42) in-patients and 24.5% (24/98) out-patients complained of pain. Of the 52 patients who reported pain, 32% (14/52) reported neuropathic pain and 68% (38/52) reported noci-ceptive pain. Headache was most common followed by pain in the soles of feet and low back. Only 26.9% (17/52) received any form of analgesic. Pain severity significantly affects the quality of life.Conclusions:Pain is a common and debilitating symptom of HIV/AIDS. It is however, under-estimated and under treated.

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Section: Introductionmentioning

confidence: 99%

Prevalence of pain in patients with HIV/AIDS: A cross-sectional survey in a South Indian state

Nair¹,

Mary²,

Prarthana³

et al. 2009

Indian J Palliat Care

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“…57 An article about palliative care for people living with HIV/AIDS in Asia identified that healthcare staff rarely inquired or assessed patients’ pain. If patients complained of pain, they were labeled as “difficult,” “demanding” or “drug seeking.” 53…”

Section: Resultsmentioning

confidence: 99%

“…). Studies about TB 48 and HIV epidemics identified that stigma related to substance use prevents access to and delivery of healthcare, 48,[53][54][55][56] including management of pain 57,58 and other symptoms. 59 Healthcare professionals, including caregivers for patients at home, 54 reported that pain management was challenging for people with substance use disorders because they were concerned about contributing to the patients' substance use disorder, diversion, and serving as a "source" for unregulated substance use.…”

Section: Stigma (N = 14mentioning

confidence: 99%

“…If patients complained of pain, they were labeled as "difficult," "demanding" or "drug seeking." 53 Studies reported that HIV infections were often associated with assumptions about sexual behavior and substance use, specifically homosexuality and injection drug use, and people were often judged negatively and rejected by others. [60][61][62] Due to fears of being stigmatized by healthcare professionals 59 and past traumatic medical experiences, 55 some people with HIV did not want to access healthcare.…”

Section: Outcome Definition Examplesmentioning

confidence: 99%

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Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines

Buchman

Ding

et al. 2022

Palliat Med

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Background: People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for people who use drugs is important from a service delivery perspective and for reducing population health inequities. Aim: To explore what is known about communicable disease epidemics and pandemics, palliative care, and people who use drugs. Design: Scoping review. Data sources: We searched six bibliographic databases from inception to April 2021 as well as the grey literature. We included English and French records about palliative care access, programs, and policies and guidelines for people ⩾18 years old who use drugs during communicable disease epidemics and pandemics. Results: Forty-four articles were included in our analysis. We identified limited knowledge about palliative care for people who use drugs during epidemics and pandemics other than HIV/AIDS. Through our thematic synthesis of the records, we generated the following themes: enablers and barriers to access, organizational barriers, structural inequity, access to opioids and other psychoactive substances, and stigma. Conclusions: Our findings underscore the need for further research about how best to provide palliative care for people who use drugs during epidemics and pandemics. We suggest four ways that health systems can be better prepared to help alleviate the structural barriers that limit access as well as support the provision of high-quality palliative care during future epidemics and pandemics.

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“…In this study, both cancer and non-cancer patients experienced moderate pain (mean 46.2, SD 37.1). Pain is one of the most common and feared symptoms experienced by patients with advanced illnesses [ 6 ], and can significantly influence the psychological and emotional wellbeing and overall QOL of both patients and families [ 50 , 51 ]. In Bhutan, although oral morphine is available at all levels of healthcare except in BHU Grade II [ 52 ], it may be inadequately used as PC is an emerging concept [ 26 ].…”

Section: Discussionmentioning

confidence: 99%

Palliative care needs among patients with advanced illnesses in Bhutan

et al. 2021

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Background Palliative care improves the quality of lives of patients and families affected by advanced illnesses through the prevention and relief of suffering. While palliative care is well established in developed countries, it is inadequate or non-existent in most developing countries. Palliative care is an emerging concept in Bhutan, a tiny Himalayan Kingdom. A small community palliative care service is available in the national referral hospital with three dedicated inpatient palliative care beds. This study explored the needs for palliative care among patients diagnosed with advanced illnesses and is a component of a larger project aimed to inform a suitable palliative care model for the country. Methods This is a cross-sectional descriptive study. A survey, using a structured questionnaire including the EORTC QLQ-C30, was carried out among patients with advanced illness in hospitals, primary care units and communities across the country. Purposeful and snowball sampling strategies were used to recruit study participants. Results Seventy (76%), out of 93 eligible patients, agreed to participate in the survey. Participants reported low to moderate scores on physical, role, emotional, cognitive and social functioning, a moderate score for the global health/ quality of life scale and moderately high (worse) scores in symptoms including fatigue, pain, insomnia, loss of appetite and the financial impact from the disease. Conclusions The symptom burden experienced by patients affected by advanced illnesses demonstrates the need for palliative care in Bhutan. These findings will help inform the development of a public health-focused palliative care model, modified to the Bhutanese context, as recommended by the World Health Organization.

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Pain and Palliative Care for People Living with HIV/AIDS in Asia

Cited by 3 publications

References 0 publications

Prevalence of pain in patients with HIV/AIDS: A cross-sectional survey in a South Indian state

Prevalence of pain in patients with HIV/AIDS: A cross-sectional survey in a South Indian state

Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines

Palliative care needs among patients with advanced illnesses in Bhutan

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