Pain Squad+ smartphone app to support real-time pain treatment for adolescents with cancer: protocol for a randomised controlled trial

Jibb, Lindsay; Nathan, Paul C.; Breakey, Vicky R.; Fernandez, Conrad V.; Johnston, Donna L.; Lewis, Victor; McKillop, Sarah; Patel, Serina; Sabapathy, Christine; Strahlendorf, Caron; Victor, J. Charles; Moretti, Myla E; Nguyen, Cynthia; Hundert, Amos; Cassiani, Celia; Insull, Hayley; Hamilton, Rachel; Fang, Geoffrey; Kuczynski, Susan; Stinson, Jennifer

doi:10.1136/bmjopen-2020-037251

Cited by 15 publications

(9 citation statements)

References 49 publications

(65 reference statements)

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“…Contoh penggunaan teknologi menunjukkan bagaimana teknologi digital telah membawa manfaat bagi praktik dan pendidikan keperawatan (Krick et al, 2019) Misalnya, program telehealth di mana perawat menyediakan pemantauan harian, pembinaan, dan triase pasien dengan beberapa penyakit kronis telah membantu mengurangi penerimaan unit gawat darurat perangkat seluler, khususnya smartphone dan aplikasi kesehatan, memungkinkan perawat untuk menawarkan saran jarak jauh tentang manajemen nyeri kepada pasien remaja penderita kanker (L. Jibb et al, 2020;L. A. Jibb et al, 2017) dan melengkapi aspek pendidikan keperawatan dengan memberikan solusi pedagogis inovatif untuk penyampaian konten dan peluang pembelajaran jarak jauh (Buchanan et al, 2020;Chuang et al, 2018).…”

Section: Gambar 1 Webinar Inovasi Pelayanan Keperawatan Berbasis Tekn...unclassified

Development of digital technology-based nursing service innovation in the pandemic era

Dewi

Nursalam

Ahsan

et al. 2022

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Optimizing health services during the pandemic is something that hospitals must do in order to keep improving service quality. This community service aims to educate nurses on how to use digital technology-based nursing services in the pandemic. Health education is provided through webinars, as a method of implementing this community service program. The majority of webinar participants (60%) had sufficient knowledge based on the results of the pretest. Following the presentation of the material, it can be concluded that there has been an increase in knowledge, with 182 participants (90%) having excellent knowledge. Nursing services are benefiting from digital innovation not only in terms of workforce management, but also in terms of changing the way care is delivered. Nurses are crucial in the adoption of digital tools and information technology to improve patient care. This is due to the fact that the quality of digital care delivery has risen to the forefront of healthcare and is being scrutinized more than ever before.

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Section: Gambar 1 Webinar Inovasi Pelayanan Keperawatan Berbasis Tekn...unclassified

Development of digital technology-based nursing service innovation in the pandemic era

Dewi

Nursalam

Ahsan

et al. 2022

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“…New digital technologies can provide new opportunities to let children decide when to assess their pain themselves and children have shown a preference for the use of digital assessment tools over paper versions 11 . With the development and refinement of digital tools, real‐time appraisal of pain will increase, 6 which may empower children to engage in pain management in all of their natural environments 12 . The child's perception of pain assessment may differ between the digital format and an analog assessment tool.…”

Section: Introductionmentioning

confidence: 99%

“… 11 With the development and refinement of digital tools, real‐time appraisal of pain will increase, 6 which may empower children to engage in pain management in all of their natural environments. 12 The child's perception of pain assessment may differ between the digital format and an analog assessment tool. Therefore, it is very challenging to translate analog tools unequivocally into a digital tool.…”

Section: Introductionmentioning

confidence: 99%

Psychometric evaluation of the electronic faces thermometer scale for pain assessment in children 8–17 years old: A study protocol

Castor

Björk

Bai

et al. 2023

Paediatric and Neonatal Pain

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It is often a challenge for a child to communicate their pain, and their possibilities to do so should be strengthened in healthcare settings. Digital self‐assessment provides a potential solution for person‐centered care in pain management and promotes child participation when a child is ill. A child's perception of pain assessment differs when it is assessed using digital or analog formats. As we move into the digital era, there is an urgent need to validate digital pain assessment tools, including the newly developed electronic Faces Thermometer Scale (eFTS). This study protocol describes three studies with the overall aim to evaluate psychometric properties of the eFTS for assessing pain in children 8–17 years of age. A multi‐site project design combining quantitative and qualitative methods will be used for three observational studies. Study 1: 100 Swedish‐speaking children will report the level of anticipated pain from vignettes describing painful situations in four levels of pain and a think‐aloud method will be used for data collection. Data will be analyzed with phenomenography as well as descriptive and comparative statistics. Study 2: 600 children aged 8–17 years at pediatric and dental settings in Sweden, Denmark, Iceland, and USA will be included. Children will assess their pain intensity due to medical or dental procedures, surgery, or acute pain using three different pain Scales for each time point; the eFTS, the Faces Pain Scale Revised, and the Coloured Analogue Scale. Descriptive and comparative statistics will be used, with subanalysis taking cultural context into consideration. Study 3: A subgroup of 20 children out of these 600 children will be purposely included in an interview to describe experiences of grading their own pain using the eFTS. Qualitative data will be analyzed with content analysis. Our pilot studies showed high level of adherence to the study procedure and rendered only a small revision of background questionnaires. Preliminary analysis indicated that the instruments are adequate to be used by children and that the analysis plan is feasible. A digital pain assessment tool contributes to an increase in pain assessment in pediatric care. The Medical Research Council framework for complex interventions in healthcare supports a thorough development of a new scale. By evaluating psychometric properties in several settings by both qualitative and quantitative methods, the eFTS will become a well‐validated tool to strengthen the child's voice within healthcare.

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“…Interventions for the home setting are warranted. Some efforts have already been made to address this using mHealth, such as the Pain Squad + smartphone app [22], the tablet-based Pain Buddy program [23], and the Color me Healthy app [24], which were all developed to improve pain management in children with cancer. The KLIK Pain Monitor app, named after the existing KLIK PROM (patientreported outcome measures) portal [25], was developed to reduce pain in children aged 0-18 years old at home during cancer treatment with the aim to (1) monitor pain in the home setting, enabling healthcare professionals (HCP's) to follow-up with families and offer help more quickly, and (2) provide families with psycho-educational information about pain.…”

Section: Introductionmentioning

confidence: 99%

Reducing pain in children with cancer at home: a feasibility study of the KLIK pain monitor app

Simon

Schepers

Grootenhuis

et al. 2021

Support Care Cancer

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Purpose This study assessed adherence to, feasibility of, and barriers and facilitators of implementation of an app developed to monitor and follow-up with pain in children with cancer at home. Methods Children (8–18 years) receiving cancer treatment (all diagnoses) or their parents (of children aged 0–7 years) used the KLIK Pain Monitor app for 3 weeks. Pain was assessed twice daily using an 11-point numeric rating scale (NRS-11) (ranging from 0 to 10). Healthcare professionals (HCP’s) from the hospital’s Pediatric Pain Service were instructed to follow-up with clinically significant pain scores (≥ 4) within 120 min (scores 4–6) or 30 min (scores 7–10). Adherence, feasibility, and implementation outcomes were assessed using questionnaires, app log data, and interviews. Results Twenty-seven children (M age = 7.3 years, 51.8% male) and six HCP’s participated. Sixty-three percent (N = 17) of families used the app on a daily basis during three weeks, and 18.5% (N = 5) reported pain scores twice daily during that time (family adherence). Twelve out of 27 children (44.4%) reported a clinically significant pain score at least once. In 70% (14/20) of clinically significant pain scores, HCP’s followed-up with families within the set timeframe (HCP adherence). Outcomes reveal feasibility for the majority of app functions (i.e., positive evaluation by ≥ 70% families/HCP’s), and non-feasible aspects could be resolved. Identified barriers and facilitators were used to improve future implementation efforts. Conclusion Use of the KLIK Pain Monitor app seems feasible. Future research will determine its effectiveness in reducing pain in children with cancer at home.

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Pain Squad+ smartphone app to support real-time pain treatment for adolescents with cancer: protocol for a randomised controlled trial

Cited by 15 publications

References 49 publications

Development of digital technology-based nursing service innovation in the pandemic era

Development of digital technology-based nursing service innovation in the pandemic era

Psychometric evaluation of the electronic faces thermometer scale for pain assessment in children 8–17 years old: A study protocol

Reducing pain in children with cancer at home: a feasibility study of the KLIK pain monitor app

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