Painting the vortex: The existential structure of the experience of parenting a child with autism

Cashin, Andrew

doi:10.1080/08037060410000632

Cited by 33 publications

(32 citation statements)

References 11 publications

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“…Thematic analysis identified five themes that were pertinent to Irish parents’ experiences of raising a child with ASC. These themes were broadly similar to those reported by parents in other cultures and countries (Cashin, ; Gray, Gray, ; Woodgate et al., ). Specifically, the feelings of loss, desperation and loneliness have been reported by parents in such diverse settings as America (Myers et al., ), France (Chamack, Bonniau, Oudaya, & Ehrenberg, ) and China (McCabe, ).…”

Section: Discussionsupporting

confidence: 79%

On the spectrum, off the beaten path. A qualitative study of Irish parents’ experiences of raising a child with autism spectrum conditions

Byrne

Sarma

Hendler

et al. 2018

Brit J Learn Disabil

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Accessible summary Ten Irish parents raising a child with autism talked about their experiences. They reported that it was difficult but also how it has helped them grow. They hope that their children will be included but are scared about the challenges they will face. Abstract BackgroundRaising a child with autism spectrum conditions (ASC) presents many challenges and learning experiences for parents and other family members. There has been limited research to date on Irish parents’ experience of raising a child with ASC. The aim of this study was to describe the experience of a sample of Irish parents who have a child on the autistic spectrum. MethodA series of 1:1 semi‐structured interviews were conducted with parents in the Republic of Ireland. In total, 10 interviews were conducted. Thematic analysis was undertaken to identify themes. ResultsFive main themes were identified: (a) blame and stigma; (b) isolation; (c) being vigilant; (d) advocacy; and (e) coping with autism. ConclusionsThe findings of the study have implications for professionals who work with Irish families affected by autism. Although Ireland's movement towards social inclusion lags behind other countries, a number of the experiences faced by Irish parents are similar to that reported in other countries, suggesting a universality of ASC parenting experiences. The implications of this are discussed.

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Section: Discussionsupporting

confidence: 79%

On the spectrum, off the beaten path. A qualitative study of Irish parents’ experiences of raising a child with autism spectrum conditions

Byrne

Sarma

Hendler

et al. 2018

Brit J Learn Disabil

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“…Rutter (2007) pointed out that when studying parental reactions to adversity, it is important to consider the life span perspective in addition to past and present mental operations, and individual traits and experiences. This type of exploration allows detecting more expansive themes such as isolation, confusion, lost dreams, and change in parent’s self (Cashin, 2004; King et al, 2006; Midence and O’neill, 1999; Woodgate et al, 2008). …”

Section: Introductionmentioning

confidence: 99%

Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder

Navot

Jorgenson

Stoep

et al. 2015

Autism

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The diagnosis of a child with autism has short- and long-term impacts on family functioning. With early diagnosis, the diagnostic process is likely to co-occur with family planning decisions, yet little is known about how parents navigate this process. This study explores family planning decision making process among mothers of young children with autism spectrum disorder in the United States, by understanding the transformation in family vision before and after the diagnosis. A total of 22 mothers of first born children, diagnosed with autism between 2 and 4 years of age, were interviewed about family vision prior to and after their child’s diagnosis. Grounded Theory method was used for data analysis. Findings indicated that coherence of early family vision, maternal cognitive flexibility, and maternal responses to diagnosis were highly influential in future family planning decisions. The decision to have additional children reflected a high level of adaptability built upon a solid internalized family model and a flexible approach to life. Decision to stop childrearing reflected a relatively less coherent family model and more rigid cognitive style followed by ongoing hardship managing life after the diagnosis. This report may be useful for health-care providers in enhancing therapeutic alliance and guiding family planning counseling.

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“…Restricted access to services coupled with a social isolation make living in a rural area a risk for families caring for children with disabilities. Parenting children with disabilities specifically autism is often challenging but yet rewarding . Parents must learn to cope and adapt with the everyday activities that require physical, emotional and financial resources that are not always available in rural communities.…”

Section: Introductionmentioning

confidence: 99%

Embracing autism in Canadian rural communities

Hoogsteen

Woodgate

2013

Australian J Rural Health

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Painting the vortex: The existential structure of the experience of parenting a child with autism

Cited by 33 publications

References 11 publications

On the spectrum, off the beaten path. A qualitative study of Irish parents’ experiences of raising a child with autism spectrum conditions

On the spectrum, off the beaten path. A qualitative study of Irish parents’ experiences of raising a child with autism spectrum conditions

Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder

Embracing autism in Canadian rural communities

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